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Member Since 03 Jun 2012
Offline Last Active Apr 09 2013 06:50 AM

Topics I've Started

The 100% Positive Thread

29 August 2012 - 08:49 AM

Got something great to say about Celiac Disease that you want to shout off the rooftops?

Know someone who needed to be convinced to get tested and have some advice you gave them that helped?

Sure, we all know that getting a Celiac diagnosis, or even suspecting one, can be scary and frustrating. But there are good things too. Please share how your diagnosis has made you a happier person!

(Please keep this specifically to Celiac; you can start another thread about intolerances if you like but I'd really like this to be something that we can show to people to help give them motivation to get tested for celiac disease).

Thanks! I'll start:

> I have discovered that being hungry isn't supposed to hurt.

(I had always just assumed that pain was hunger.)

> I am feeling more motivated to do things, which in turn makes me feel better about myself.

> I've discovered that it's much easier to eat healthy than I ever imagined.

When you're forced to think about everything that goes into your mouth, it's easier not to eat those potato chips. Similarly, when you are forced to plan each meal in advance or risk not having anything in the house you can eat, it's easier to keep the house stocked with veggies and all that good stuff. I am starting to actually have a positive relationship with food.

> As a combination of all of the above, I have lost 5 pounds in less than a week.

Other Tests To Do

28 August 2012 - 02:06 PM


My doctor is, in his own words, "not an expert on Celiac disease". I have no intention of switching doctors because from what I've read, I am far more likely to end up with a worse doctor, not a better one - and I know this guy cares. He's also pretty agreeable so if I go to him with a list of tests I need done or medication that I want, as long as it makes sense, he'll give it to me.

Is there a reference somewhere that I can give him that will tell him what other things I need to be tested for, what other specialists I should be referred to, etc etc? Bonus points if it's prioritized because he's busy and I doubt he's going to be willing to do everything at once. It will take several 15-minute appointments to get it all done.

Failing that, you could all just tell me your opinions on what to test for, and I'll try to compile a list from it. :)

Oh, and I have already tested for iron, magnesium and B12 deficiencies.


Advice On Re-Glutening

03 June 2012 - 08:38 AM


I had a positive blood test for Celiac Disease a few weeks ago. When I saw that my biopsy would not be for 5 months, and feeling that my symptoms (migraines, stomach pains, etc) were unbearable when I knew how to fix them, I decided to go on the gluten-free diet for a while. Yes, I know that many of you would probably have told me not to, but what's done is done.

Now I am looking to re-gluten, as I knew I would eventually have to do. Assuming I do have Celiac or at least an intolerance (as if I don't, the question is moot) I would like some advice on how best to do so. I have some time yet before it's 3 months before the test, ie when I need to be at a certain minimum level of gluten per day... so my question is, will I be in less pain if I try to re-introduce it slowly, just a bit per meal or per day, or should I just go all out and gluten myself like crazy?

I suspect that probably no one knows for sure which is best, but personal stories and/or best guesses about one vs the other might help too.

Also welcome: any other suggestions you might have for me.


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