kristenloeh

Hope you're all doing well. I had to see an ENT these last two weeks to see why I'm still in SO much pain. Looks like there is a lot of tissue built up from the brain surgery, so guess what! I get to have ANOTHER surgery on July 3rd. Go me!! >.<

ya...that convulsing crap is no fun -- careful, easy going....are you still a raccoon today?

 

Not nearly as bad as the other day, thankfully. I just started to meds for the diabetes and I'm responding really well to it thankfully.

It can only function normally with hormone therapy the rest of my life. After going through daily migraines, kidney stone 6 different times and the Celiac, I think I can pretty much get through anything at this point.

Oh, the stupidity! How it burns!

Yay! Silly kittehs always thinking the outdoors are going to be fun! No little kittehs! Stay where it is warm and loving!!

Yeah, I was actually happy to be diagnosed with Celiac because I at least knew what the problem was FINALLY after 10+ years of suffering and could get on the track of feeling better. Sorry you don't have the answer yet.

If I only got the tummy problems I could manage okay, but I get the horrible neuropathy, tons of canker sores for weeks, and body aches, along with it just making me so tired I can't function. Thankfully I have no kids yet and trying to find a job at the moment. The Celiact has all the vitamin and enzymes you need along with probiotics as well. I have found that when I'm glutened while on the Celiact, my reaction is far more manageable (haven't been to the hospital because of glutening for months since taking it).

Thanks doll! I've had migraines since I was 5 years old. Guess I am just one of the lucky ones

Although I was diagnosed younger, I've had the disease for well over 10 years, been suffering from all the them symptoms sine I was at least 15, but yes, at least it will only take like 3-5 years to fully heal than 10+ like it could have been.

I figure it's nice for others to hear that even though it is difficult (especially during the holidays), that there really is/can be a light at the end of the tunnel.

And even though last night I was glutened and feel like epic hell right now, I know it will pass and I will be right back to feeling good in a few days

I am now gluten free for 8 months as of this December and have NEVER felt better. I went to my doctors to get all of my labs we done to see if I am actually improving inside along with just feeling improved and all of my levels were NORMAL and great! Even my vitamin D, which was only at 17 right before I was diagnosed.

I only have one problem now. I still have my migraines, and they just keep getting worse. I have done all of the elimination diets, and I have figured out all of my triggers. My triggers seem to change as well though. I have gone through a few preventative meds, all of which have failed. We have now started Verapimil as my preventative, and we have upped the dosage a few times and it is finally starting to make a difference. They are pretty sure that I have chronic migraines and the type of chronic migraines I have are different than most. They are called transfer migraines, so that means i have multiple triggers, and my triggers can change and I can develop more triggers throughout my life. Yay! I had an MRI today, so we hope maybe that will provide even more answers as to where they may be forming and if there could be any other causes, just in case the CT scans have missed anything.

I am just SO very thankful for finally getting to the bottom of EVERYTHING that is wrong with me. Although the Celiac diagnoses is a bummer for going out and what not since I am only 25, it's just simply amazing that I feel this great. Growing up all of my life, I always thought constantly being sick and feeling miserable and being in pain were just normal and that everyone must feel that way. This is the first time in my whole life I have ever felt like a normal human being and I'm getting better each and every day!

I just thought I would post this to maybe lift people's spirits up. I know it can be hard, but there IS hope out there! It took a while after going gluten-free that I finally started to really feel the changes and feeling better. And oh boy, what a good vitamin compound will do for you. That also makes a big impact on how I feel. I take Celiact plus an additional 2,000 units of D3. It really makes all the difference, I can always tell when I have forgotten my vitamins. Well worth it.

Sorry I'm rambling! I hope this post can help those struggling with being newly diagnosed, and those who have had it for a long time and are just having a bummer of a day.

xo
-Kristen

I made a New York Cheesecake with a Pecan crust