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Member Since 12 Jun 2012
Offline Last Active Yesterday, 09:41 AM

Posts I've Made

In Topic: Confirmed Celiac Curious About Lactose Intolerance

Yesterday, 09:44 AM

To me, lactose intolerance feels quite a bit like a gluten sensitivity when it comes to my gut - bloating, pain, constipation or diarrhea  are often the result of consuming milk for me.  About 50% of celiacs are lactose intolerant when they are diagnosed.  After many months, or even years, many of those regain the ability to consume milk after their intestinal villi (which makes the lactase that digests the milk sugar, lactose). Healing can take a while, for me it took almost two years before I could have some ice cream without pain, and I still can not have it frequently or I feel a bit poorly - dairy less than once a week is all I can handle.


Many cheese's are lactose free. Lactose is a sugar and the hard cheeses have very little milk sugar in them. If you do have cheese, buy lactose free cheese or the very hard cheeses like cheddars.


Try going through all of your prepackaged foods, meds, and lotions/soaps.  Maybe gluten is slipping through?  Otherwise, I would cut out all dairy for a while and hopefully that will do it for you.


Hope you feel better soon.

In Topic: See-Through Scalp In Frontal Crown Area

27 October 2014 - 07:30 PM

Yes, darn it! Me too.  It thickens up a bit for a few months and then it sheds again (probably due partially to Hashi's). I try to comb my hair pretty flat so it is a bit less noticeable...and I've started buying hats.  LOL  I've got a thin spot in the back too so my part goes down the back of my head.  Yuck.


I'm about 2.5 years gluten-free.

In Topic: Coeliac Or Gluten Intolerant?

27 October 2014 - 09:42 AM

Good luck with the gluten challenge.  I hope you don't feel too poorly.  

In Topic: Coeliac Or Gluten Intolerant?

27 October 2014 - 07:46 AM

The gastro is the one who would do the endoscopy in all cases.  Most are referred to the gastro by their GP; having an endo in a celiac diagnosis is a bit unusual.


It is a good idea to get check for celiac disease if you have Hashi's. I think I read that up to 3-6% of Hashi's patients have celiac disease, and 10% of celiacs have hashi's.


Most people have no problem with an endoscopy, but I can only comment second hand as I never went through it myself.  Most people are sedated during the procedure, although some opt to be awake.  Some say they have a mildly sore throat for a day or two, and I remember one person (in the last 2.5 years) who was sickish for a week after having the anesthesia, but side effects are usually very mild.


If you do get the endo done, you need to be consuming gluten in the 2-4 weeks prior to the biopsy, and make sure at least 6 samples are taken.


If you have questions about your results, feel free to bring your results back here or to start a new thread and we can try to give you some help with it.

In Topic: Just Diagnosed!

26 October 2014 - 01:40 PM

Thank you everyone for your help! I thought it would be easier for me to make changes slowly but as I'm reading your advice, it feels like it's going to be easier to do it all at once, especially with all the precautions needed to avoid the cross-contamination. I am reading a lot of posts on the forum today and rented a few books about getting gluten-free. Did any of you consult a nutritionist, or did you just get all the information needed in books/internet?


Unless your nutritionist is knowledgeable on celiac disease or the gluten-free diet, they may not be a lot of help.  I've heard very mixed reviews on seeing a nutritionist.


Basically, for me it boiled down to the fact that it is healthier to limit your gluten-free substitute foods as they tend to be less healthy than wheat flour foods.  For example, prepackaged gluten-free bread is generally less healthy than normal bread because most flours are fortified with vitamins and tend to have a bit more fibre. Also gluten-free baked items tend to have a higher glycemic index and convert to sugar very quickly in our bodies.


Usually the healthiest option is to not replace your "glutenous" foods.  If you are having cheese and meat sandwich, then skip the bread and just eat the insides or use a rice wrap.  Noodles can be substituted with rice noodles but an even healthier solution is spaghetti squash. gluten-free muffin mixes are often like dry cupcakes; its better to use almond or coconut flour and skip the rice flours and starches when you can.... You see what I mean?


If you read a few books, I'm sure you'll find most of what you need, including a list of unsafe ingredients like this one:http://www.celiac.co...ents/Page1.html  It is handy to carry a list like this around in the first few months.


Also, about half of all celiacs are lactose intolerant while they are healing during the first 6 months or so.  It is often a good idea to skip dairy if you feel that you are still having problems.


The first few months are definitely the hardest.  Just hang in there.  :)