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nvsmom

Member Since 12 Jun 2012
Offline Last Active Today, 04:51 PM
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Posts I've Made

In Topic: Symptoms Other Than Gastro

25 May 2015 - 08:22 PM

The stomach pain is often the symptom that resolves fastest.  I to get fatigued, cranky, achy, migraines, constipated, bloated, and I swear my IQ drops, but that could be the fatigue.  I even lose hair.   :rolleyes:

 

There are over 300 symptoms of celiac disease... It's amazing how the symptoms can manifest!

http://www.curecelia...SymptomList.pdf


In Topic: Test Result Accuracy .. Please Help

25 May 2015 - 01:29 PM

The rates for false positives in those tests can be as high as 25% for the tTG IgA, and 60% for the tTG IgG.  Conversely, the tTG IGA has a sensitivity between 75 and 95%, so it does catch most celiacs, but not all.  The tTG IgG is not nearly as sensitive.

 

This is where I got my info:

tTG IgA info on pages 10-12:  http://www.worldgast..._long_FINAL.pdf

 

tTG IgG info:  http://www.jfponline...tt_news]=172034


In Topic: Can Somebody Confirm Something For Me

25 May 2015 - 08:05 AM

I agree.  I lot of scary headlines there that don't have much behind them.  Some of them may be true but I think many were taken out of context.

 

It can take a few years to heal from celiac disease.  Going gluten-free isn't like avoiding an allergen - it isn't a quick fix.  Stick it out for the long run and you will get better.  No, you may not get back to 100%, but many celiacs do. Just hang in there and you may see results.


In Topic: 4 Year Old Daughter Test Results, Need Help Interpreting..

24 May 2015 - 11:33 AM

So Sorry, I mis-typed, the negative range is less than 20

 

Ah.  LOL  So that means that she is negative in only one test. It really is not uncommon for a celiac to be negative in some tests yet positive in others, especially if they are in the early years of the disease, which your daughter would be if she has celiac disease.  

 

If you suspect celiac disease, there are still four to six blood tests she could have done, plus the biopsy.  The DGP tests are often the best for detecting celiac disease in young children, you may want to try that route.  

 

You could also try the genetic tests which would tell you if she is indeed in the high risk population.  30% of the world has the DQ2 or DQ8 genes, and 97% of celiacs have those genes.  If she does not have the DQ2 or 8 genes, her chances of being a celiac become quite small.  Negative genetic tests would not rule out any risk of having non-celica gluten sensitivity (NCGS) though.


In Topic: Probiotics

24 May 2015 - 09:29 AM

Thanks.  :)

I don't think I've ever seen that brand up here (Alberta, Canada) but I'll keep my eyes open.

 

Any others that someone knows of?


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