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Member Since 12 Jun 2012
Offline Last Active Jul 28 2015 06:55 PM

Posts I've Made

In Topic: Test Results Not Consistent With Celiac?

28 July 2015 - 06:55 PM

Looks positive to me.  The DGP IgG is something like 98-100% specific to celiac disease, which means if you have a positive you have celiac disease.  You have a positive and your other tests are really close to being abnormal. 


The EMA IgA is rarely dodn if the tTG IgA was negative.  The two tests are very similar but the EMA detects more advanced damage.  Since your tTG IgA was negative, it is very likely your EMA IgA would be too.


If I was you, I would assume you are a celiac whether or not you have the biopsy done.  :(

In Topic: Mom Instinct For The Win: Deamidated Gliadin Igg

28 July 2015 - 06:44 PM

You never know.  The only thing waiting would do is make her sicker so doctors could agree she was sick.  :(

In Topic: Possible Celiac Diagnosis?

21 July 2015 - 07:29 PM

A positive EMA IgA?  That's a sure thing.  I'm glad you know for sure.  


Don't go gluten-free until after the endoscopy. You'll need 2-4 weeks of gluten for that.  And make sure they take at least 6 samples so yout risk of a (confusing) false negative biopsy is reduced.


It is a journey but you'll do okay once you settle in. I promise.  :)

In Topic: Autistic Like Symptoms.

16 July 2015 - 07:50 AM

My oldest son was just like that.  When he went gluten-free about 2.5 years ago his intense focus became a bit less... intense.  It became easier for him to turn away from his passions when need be.


He also found it simpler to be with others in busy environments, although sometimes it still becomes too much for him and he needs to step away for a while or he is overwhelmed.


It hasn't gone away completely for my son, but his quirks seem more like that of a gifted child rather than something that is seen negatively by others who don't understand.


Most celiacs find that the improvements stop after about 3 years gluten-free.  Cognitive and neurological symptoms are often some of the slowest to improve. Give it a couple of more years.  Improvements will probably be slower now, but they may still be happening.


How are you with dairy? Dairy also affects my son's quality of social life.

In Topic: Any Scientific Evidence Than Less Than 20Ppm Can Cause Ttg Rise?

16 July 2015 - 07:41 AM

I thought I responded but my answer was lost.  Oops.


1.  After going gluten-free, your tTG is not going to respond quickly to minute exposures to gluten.  I doubt 1 crumb of a crumb would kick the tTG out of normal.  I saw one study that showed it took most people two weeks on a gluten challenge (~2slices of bread per day) before their tTG levels rose noticeably.


2.  The DGP indicates a reaction to gliadin.  First the body reacts to the gliadin, then it makes tTG to attack the intestines (where the gliadin is), and then it would make EMA to wipe out the whole top layer of the intestines (overkill).  DGP usually rises first.


My guesses are that she is getting more gluten than you realize, or she is just having a blip in her recovery.  Perhaps her immune system was re-stimulated for some reason?


Another guess is lab error.  Maybe her negative was low and that positive was high.


A weak positive tTG can also be caused by diabetes (T1), chronic liver disease, crohn's, colitis, thyroiditis or a serious infection.  These tend to be a weak influence though.  For example, I have Hashimoto's thyroiditis.  My tTG was over 200 at diagnosis, down to 40 something by 6 months, and at a very low 20 at 9 months.  I retested at 2.5 years and it was 4 something and they had lowered the top end of normal from 20 to 14, so my normal wasn't close to zero.  It's still measurable yet low.  I KNOW I am gluten-free, so I guess it stays measurable, but normal, partly due to Hashi's.


I don't know.  If she has gluten symptoms and her tTG is elevated, the most obvious answer is that she is getting gluten.  Even if you think it is tiny, less than 20ppm, it is too much for her.  You'll need to change things and be more vigilant because something is getting her. :(


Best wishes.

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