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nvsmom

Member Since 12 Jun 2012
Offline Last Active Today, 10:27 AM
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#909968 Numbers Are Fun!

Posted by on 23 March 2014 - 12:35 PM

Curse you, Lisa! I just wasted two hours of my weekend on that game.... Evil! :ph34r:

 

I can only get up to a 512 tile. I had a 256 and a few other high tiles at the same time once, but then it all fell apart.

Gah!

 

Eeeeeevilllll!


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#909864 Sent For 2Nd Test

Posted by on 22 March 2014 - 12:11 PM

My new doctor is very young and seems to be very up to date on celiac diagnosis which is great! I believe I've had symptoms since I was a child.. Short stature.. Always vomiting.. Skin issues.. Etc! I also remember horrible abdominal pains into my teens so it's nice to have a doctor that wants to investigate. I have a weird symptom that I can't seem to find much info about.. I'm very dizzy not all the time but in the morning especially and after I eat. I figured it was just low blood sugar and I just needed food but that seems to make it worse! Wondering if anyone else has heard or this. I've had all associated blood work done to check for things that might cause this to a vail. Thyroid.. CBC etc.
I will get my results ASAP.. My doctor mentioned that she wants to make sure it's not a false positive and that some people don't make enough antibodies or it might be in the early stages. She is also happy to refer me to a GI but also wants an ultra sound done before moving forward. Does this all sound normal?
 

 

Welcome to the board, LolaBean.

 

A weakly positive tTG IgA can be attributed to other causes in a minority of cases. According to the World Gastroenterology Celiac Practice Guidelines for 2012 (page 12), the specifity og the ttG IgA is 91-99%, so that means that 1-9% of all positive tests are caused by something other than celiac disease.  This site puts the specificity at about 95%.  It means that chances are slim that your positive is not caused by celiac disease - especially when accompanied by so many symptoms.

 

The other, more rare, causes of a positive tTG IgA are diabetes, thyroiditis, crohn's, colitis, chronic liver disease, and severe infections.  Most of those are linked to celiac disease (autoimmune diseases) so it's a good idea to suspect celiac disease with a positive tTG IgA even if you don't have symptoms... which you do.

 

That all being said, celiac disease, especially if it has been undiagnosed for many years, can cause other problems from years of living with inflammation. It's a good idea to re-address all of your symptoms after you have been gluten-free for 6 months or so.

 

If you are worried about blood sugar going low, you might want to get that checked. Blood sugar that dips too low is often caused when the body is releasing too much insulin, which often leads to diabetes.... I've learned this the hard way recently. LOL I would often get light headed, shake, and feel faint if I wasn't eating every couple of hours, and that's NOT normal even if I (you) try to brush it off as nothing. I am only 40, with a BMI that barely touches the overweight range, and I have early (pre)diabetes. A fating blood glucose, and oral glucose tolerance test can give you info about that.

 

Light headedness can also be caused by poor adrenal function (Addison's or a less major adrenal insufficiency). I have a problem with postural hypotension, meaning my blood pressure drops when I stand up or get moving. It could be something to look at too.

 

Also, hypothyroidism (thyroiditis) will often slow your metabolism enough that you have a slower pulse and could affect blood pressure. Celiacs often have low bp too. Hypothyroidism can also cause stomach issues, skin problems, fatigue and pain. Anyway, thyroid testing should include the TSH (should be near a 1 regardless of lab range), free T3 and free T4 (should be in the 50-75% range of your lab's normal reference range), and TPO Ab.

 

Your doctor mentioned checking antibody levels... That's smart. That would be the total serum IgA that Lisa mentioned. About 5% of celiacs are deficient in IgA, higher than the regular population, and it makes it almost impossible to get accurate celiac testing using IgA based testing. I've only seen one person who was deficient in IgA have a positive tTG IgA blood test, and it was a weak positive.  Just remember that a positive is usually a positive. Chances are you have celiac disease.  :(  Just don't go gluten-free until you are done testing!  

 

Good luck. I hope you get more answers.


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#909197 What Could Cause Elevated Igg And Iga In Toddler Other Then Celiac?

Posted by on 17 March 2014 - 11:58 AM

The tTG IgA and IgG are pretty specific for celiac disease. The tTG IgA has a specificity of 91-99% as seen here: http://www.worldgast..._long_FINAL.pdf The The tTG IgG has a specificity of about 95% as seen here: http://www.jfponline...ws]=172034 This site also shows a higher specificity for the tTG IgA - This means that 5% of positives (or less) are caused by something other than celiac disease.

 

When false positives do occur, it is a weak false positive. After almost 2 years of reading, reasearch, and posting on here more than my housework shoul allow, and I have never seen high poisitives caused by anything other than celiac disease.  On the other hand, I have seen a few WEAK positives caused by thyroiditis, diabetes (T1), crohn's, colitis,chronic liver disease, and infections. I have hypothyroidism and I am guessing that is what causes my tTG IgA to remain slightly/weakly elevated (at 20 point something when the upper normal limit is 20 - when first diagnosed it was over 200).

 

I see she has a pretty high TSH which would indicate hypothyroidism/thyroiditis at some labs. That could elevate her tTG IgA minimally. I'm afraid that I don't know is it would affect the tTG iGG - I REALLY doubt it would push it over 100 in any case. It's celiac disease.  ;(

 

Are you pursuing her high TSH too? If so, a recheck of the TSH would be good (near a 1 is normal), free T4 and free T3 (should be in the 50-75% range of your lab's normal reference range), and TPO Ab are good to ask for.

 

Best wishes.


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#908891 Results

Posted by on 13 March 2014 - 08:15 PM

My kids were negative on their celiac disease tests too so now that they are gluten-free and feeling better, the improvement is viewed as a "coincidence" by their doctor. NCGI is very real and has basically all the same symptoms as celiac disease except the villi atrophy and the dh rash. Nasty! I hope you feel better soon on the gluten-free diet. :)

And ditto Paul, a food and symptom journal is really helpful to see patterns when most symptom changes are too slow to notice on a day by day basis.
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#908890 Help With Test Results

Posted by on 13 March 2014 - 08:08 PM

The AGA IgA and AGA IgG can indicate non celiac gluten sensitivity (NCGS) but the tests have a specificity of 80-95% for celiac disease, so chances are good that the positive results are caused by celiac disease and not NCGS. This report is where I found the info (page 12): http://www.worldgast..._long_FINAL.pdf

I agree that if you want to know whether it is celiac disease or NCGS, then the endoscopy might be a good idea. Just be aware that doctors can miss the damaged spots - false negatives are possible although a minority.

Either result will result in the same treatment - 100% gluten-free diet for life. Hope you feel well soon.
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#908887 Confusing Results

Posted by on 13 March 2014 - 07:40 PM

Good luck.

Don't forget to get your kids tested too. celiac disease runs in families so if you have it, and they are still eating gluten, they should be tested every opulent of years.
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#908436 Stopped Gluten, Still Issues, Blurry Vision, Overnight Issues...

Posted by on 09 March 2014 - 05:14 PM

Welcome to the board.

 

I wonder about being diabetic. I know my sugars can go very high but that was from gluten. Does anyone know can you test diabetes with just a regular blood sugar meter? I don't have insurance right now so I'm doing this all on my own.

 

 

Gluten will not affect your blood sugar much. It's technically a protein, and proteins don't spike sugar much. Carbohydrates are the things that affect your blood sugar, and any flour will do it whether it's gluten filled like wheat, and rye, or gluten-free like corn starch, and tapioca starch.

 

I do agree though that if you think diabetes is a possibility, then you should see your doctor. You've listed a lot of symptoms so it might be good to check it out.  If you do have access to a glucose metre, checking your fasting blood glucose can often tell you if you are having problems can be helpful. If your FBG is between 100 to 125 you are headed for trouble, and if it is above 126, then you've already arrived at trouble. Fast for 12 hours before testing. http://diabetes.nidd...pubs/diagnosis/

 

Some of your symptoms could be due to a thyroid problem like Graves. Google the symptoms and see if it fits. TSH, free T4 and free T3, as well as TPO Ab would be good tests to ask for.

 

LOL And you don't need "someone who knows everything", you're already married.  LOL ;)


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#908434 Cold Snowy Winter Comin'............ Git Ready

Posted by on 09 March 2014 - 04:58 PM

Oh yeah! There is grass! I see grass! Ugly frozen brown grass, but still... LOL


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#907713 Type 1 Vs Type 2 Diabetes Differences Needed In Simple Terms

Posted by on 02 March 2014 - 10:02 AM

Sometimes they call late onset diabetes of adulthood (LADA or latent autoimmune diabetes of adults) is referred to as type 1.5 because it sets in so slowly. LADA can take years to fully turn into type 1 whereas in kids it seems to happen faster, within days to weeks instead. Because LADA takes so long to set in, patients often have symptoms of type 2 and are misdiagnosed. In the end though, type 1.5 ends up like type 1's who can no longer make insulin due to autoimmune pancreatic damage.

It's confusing, isn't it? I've been reading like crazy lately too. Lol
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#906913 Sochi Olympics

Posted by on 23 February 2014 - 01:06 PM

That was a great Olympics! We loved it in our house.

 

Canada was third for golds and forth for overall number of medals. The USA would have been second for total medals and forth for gold.  B) AS my boys would say, "Awesomeness!"  LOL

 

Now we will impatiently wait for the World Cup this summer!  :D


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#906798 Labcorp Stool Test Results And Questions

Posted by on 21 February 2014 - 06:49 PM

I do not know much about the pancreas and fat absorption... I'll get that disclaimer out of the way now.  ;)  But I think if you have a tough time digesting fats, then you would need to consume more fats to give your body what it needs, and it does need fat.  I wouldn't cut fat unless it is causing health problems. Not absorbing fat would be like not absorbing a certain vitamin - a person would take more until the body is working better... I think.

 

Pancreatic enzymes might be a good thing to look into.... I hope someone else chimes in with some wisdom - I've got nothin' here.


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#906405 Doctor Unable To Explain, Please Help

Posted by on 18 February 2014 - 09:12 AM

I'm another who's ttG test took a long time to come down. It was just about normal after over a year gluten-free, and while on mild steroids.   :blink:  Some of us take longer.

 

Also, an elevated tTG can be caused by thyroiditis, diabetes, crohn's. colitis, chronic liver disease, and serious infections. I have thyroiditis and my blood glucose isn't what it should be so I'm guessing that that is what is keeping mine high as I KNOW I haven't been glutened. Just keep being careful and hopefully the doctor can offer some advice.

 

Best wishes.


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#906339 Iodine Patch Test (To See If You Need Iodine Supplement) Uncorn People May Ne...

Posted by on 17 February 2014 - 07:15 PM

Somewhere in the " evidence" presented it says to get your fingers wet and you will leave yellow spots from the iodine coming out.
?


I think that was the site I that I found... I found the oozing a bit odd too. Lol But half of the articles I read I take with a grain of salt as so many of them seem half correct. I know iodine can be helpful with low thyroid function, and low thyroid function is common among celiacs, so I find it a bit interesting to discuss ideas that "could" help. I don't know how well testing iodine on your skin works but it is difficult to take to much iodine so supplementing usually does not hurt.
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#906335 Anyone Have Inconclusive Biopsy Results?

Posted by on 17 February 2014 - 06:39 PM

I agree. You have had one positive (for sure) celiac test, and one test (biopsy) which could be celac, so I would go with celiac disease as a diagnosis and try the diet for a good six months.... Try for six months as many symptoms take months to improve, so if you quit too soon you might mss the benefits and think the diet did not help. A food and symptom journal will help you keep track if your improvements too.

Best wishes. :)
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#905832 Gluten Free 5 Weeks Some Symptoms Getting Worse

Posted by on 12 February 2014 - 04:25 PM

Diabetes popped into my mind when I read a few of your symptoms, Addison's can cause a crazy thirst as well. Have you had your adrenal and pancreas health checked lately?

 

I hope you feel better soon.


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