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Member Since 15 Jun 2012
Offline Last Active May 26 2013 05:13 AM

Topics I've Started

I Just Did The Most Stupid Thing............

20 February 2013 - 06:25 PM

I was dx last june and have been hyper vigilant about everything that goes in my mouth since then. The labelling laws here in Australia do make this easy though which is good. However, last night i went shopping. I saw Greenseas flavoured tuna was on sale. I grabbed 4 tins and went on my merry way. 


This morning i gabbed one out and just started eating it with a spoon right from the tin. About a 1/4 of the way in, i suddenly realised! SHIT!!!! I looked at the ingredients, no wheat rye barley or oats. BUT underneath, Processed on equipment that processes wheat, may contain traces. Oh my god! 


Not only had i eaten it without checking, i did not even look or think to look at the label when i bought them. 


I ran to the loo and threw up as much as i could before i rang Greenseas to see just how much would be in it. Thankfully the lady told me there is most likely none in it as the machinery they use is throughly cleaned before swapping processes but the company wanted it on the label just in case. But she was confident there would be none in it. I guess I will find out later on though. I got rid of as much as i could but there would still be a small amount in my stomach.

I just can not believe i was so stupid! I mean how did i just stop thinking altogether? I have never not checked any label, even those that display gluten free i check. I wont eat any food that has been prepared by someone else, not even my housemate who knows my condition. 


Have you ever done something like this?







Do You Get Crazy When Glutened?

28 October 2012 - 02:15 PM

Hey all. I've been gluten free for almost 6 months. A few times I think I have been glutened I get pain in stomach very quickly but the next day I get mood swings, rage and really crazy thoughts. Yesterday I was talking suicide to my mum
she was freaking out. They funny thing is I had no intention of killing myself it was the rage talking. But by late last night it had worn off and I was all good again.

Has anyone else experienced this or something similar?

The biggest symptoms I had with celiac was mental health issues, all have since cleared up after diagnosis and going gluten free. I suppose it makes sense its the place hardest hit when I get glutened.

Any help would be great.

Many thanks

Needing Reassurance :-)

19 September 2012 - 02:20 PM

ok 3 months gluten free.

diagnosed by biopsy and gene test. negative blood work. specialist says prob celiac. response to diet at this early stage is promising.


i can not stop focusing on the negative blood test. the blood test was for AGA IGG and TTG but no total IgA level test as the pathology believes its not needed with the high sensitivity with that test. Both results did not provide numbers, just that they were under 20 and 5 respectively.

GI Dr wont say 100% until a year from now when she sees the damage gone on new biopsy and then wants to do a gluten challenge!

so is a positive biopsy (moderate damage, we don't use marsh system in Australia but based on what Dr said it would be marsh 3) and HLA-DQ8 gene enough to say yes?

My Own Research

19 September 2012 - 01:17 PM

This is just a thought i have been mulling over. Its not scientific by any means but would like opinions.

I have celiac, positive biopsy - negative antibody test. One of my sisters since tested positive to anti body test. My other sister and my mother have both tested negative to antibody test BUT both have the same gene i do (DQ8) and the same symptom profile i do. They are both going to have a biopsy to confirm but it looks like they both have it too.

Now, why would 3 out of 4 test negative to the antibody test? I tried to think what do the 3 of us have in common. Then i realised, all three of us have had our tonsils removed. I know that the tonsils are an integral part of the immune system. Is it possible that not having them can alter the antibody test or affect the immune response?

How many of you have had your tonsils out and then, down the track, tested negative to antibodies for celiac but then had a positive biopsy?

We all had chronic tonsillitis as children that antibiotics did not seem to help and my specialist said there is a link there to celiac.




Interesting Observation - Coffee

29 July 2012 - 04:18 PM

This may be TMI for some so be warned LOL

I love coffee! But have always had a problem with it. It always made me gooooooooooooo! With in 5 min of a cup i would be running to the loo and while not having diarrhoea, it would certainly be classed as an emergency evacuation. Also if i had more than 2 cups a day (sometimes just 2 was enough) i would get symptoms like increased anxiety, electrical currents through the body things like that. I always put this down to too much caffeine.


5 weeks gluten free this week. NO REACTION TO COFFEE AT ALL! No running to the loo, no anxiety, none of the things that would normally happen. 0. Ziltch.

This can not be a coincidence. But i have no answer as to why coffee and celiac could be linked in such a way. Its not the lactose in the milk because i switched to soy milk for a year a few years back and had the same reaction.

I was also told that coffee was a trigger for my GERD/GORD, but since gluten free GERD/GORD is gone too.

Its a mystery to me :-)

anyone have any insight?


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