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alwaysafter8

Member Since 18 Jun 2012
Offline Last Active Aug 01 2012 08:28 AM
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Posts I've Made

In Topic: Ttg Levels Almost Triple After Eliminating Gluten?

31 July 2012 - 01:23 PM

Of course, I find out my ridiculously-high-TTG-results on the anniversary of 6 weeks into my elimination diet. Man, if I knew this super restrictive diet stuff wasn't helping AT ALL I would have just continued to eat my gluten-free grains/bread/muffins & been a whole lot happier! :rolleyes:

In Topic: 15+ Years Suffering W/ Mis Info.

18 July 2012 - 07:23 PM

Fellow Vancouver celiac here :)

I can relate so much to your post -- I had all those gross symptoms too. In the beginning cutting gluten I've found it's hard to differentiate between possible cross contamination, other food intolerances (dairy, soy, corn, nightshades, coffee, etc) & just general healing. It wasn't until I cut gluten completely that I realized I had other food intolerances, which I was mistaking for gluten reactions. Lactose intolerance is common for celiacs, for instance. If you still eat dairy you could try cut it for 2 weeks then add it back in & see if you react. If you react to it, there's the chance you could tolerate dairy later on, once you're healed from being gluten-free.

For the first 8 months of me being "gluten free", I was still eating a lot of packaged "gluten free" foods, but I've since found instead of switching to all gluten-free versions of foods (some of which are made in a wheat-processing-facility), it's best to stick to whole foods. After being sick with gluten for so long it's important we're eating as much good food as we can -- usually means avoiding packaged stuff, even the 'gluten free packages'. Luckily, meat, eggs, fish, fruit & veg are all naturally gluten free & safe :)

Making your own sauces is the way to go. I've been infusing bottles of olive oil with herbs &/or garlic cloves for extra flavour. Stock up on safe spices: McCormick brand (glass bottle with the green label) is gluten-free.

Cooking in batches is a good idea too; freeze individual meals in ziplocks.

Choices sells a lot of gluten-free (safe) things & they have a rice bakery that does only gluten-free baking. They have ridiculously good "sourdough" rolls! Enjoy Life & Glutino are safe brands for snacks too. Silverhills makes two great gluten-free bread (the best I've tried), "Chia Chia" & "Mack's Flax". They are usually in the frozen section of SaveOnFoods or at Planet Organic. Make sure you get the gluten-free version though, as they also make regular bread with identical names.

If you're going to buy packaged, look for the gluten-free in a circle label; that means it's certified safe. Some products say 'gluten free' (as in no gluten ingredients added), but if they're made in a wheat facility, they're not safe for the super-sensitive.

A great source for certified gluten-free nuts/dried fruit/choc/candy/treats/baking goods is: nuts .com; they sell bulk & ship to Canada. Nuts & trailmix (you can buy bulk ingredients & mix your own :) are easy grab&go snacks. Did I mention they're CERTIFIED gluten-free?! (Just make sure you're shopping in the gluten-free section only; they also sell reg stuff).

If you do any baking (or are willing to try), google Elana's Pantry; she has lots of really simple easy recipes (bread/muffins/desserts inc. meal ideas). I am not the baking type but her recipes are great & pretty much foolproof. Best of all, most recipes use the same base ingredients so you don't have to buy lots of different items!

I found going "paleo" at first helped immensely. I've been eating this way for a month now & my symptoms are finally fading. My gluten-free diet was not enough. Elimination diets or restricted diets (like paleo) are an option to look into if a gluten-free isn't helping. Also, a full-spectrum multivitamin, digestive enzymes & probiotics are helpful to take in the beginning to support your digestion.

Otherwise, for cross contamination, make sure you have your own toaster, set of wooden spoons, teflon dishes, scratched cutting boards, colander.. all of those items can 'hide' gluten.

Hope some of this helps :)

In Topic: New Celiac, Healing But Still Having Symptoms.

20 June 2012 - 11:31 AM

Definitely no quick fix! My doctor said to look at as if you were a burn patient. Severe burns take over a year to heal, plus surgery. Now pretend your gut was in a fire.

:lol: I hope that gave you a little chuckle. Try and have a good day.


Good visual.... it does feel like my gut is on fire sometimes!



Thanks for all the support, I guess my gut took decades to get to this point so I shouldn't expect it to heal within a month or two. I knew this, but sometimes it's hard to know if I'm getting better or not, with symptoms flaring randomly (or so it feels like it!)

I've started a food journal again to try map this out & am on my third day of no-grains... so far my bloating seems to be reducing a bit. I'm craving baked goods all over again though! Going to try cutting them all for 3 months on an elimination diet & eat low FODMAP foods for now as I seem to have difficulty with foods that all fall under that category.

I'll definitely stick around & see what else I can learn here. The recipe forum, too :)

In Topic: New Celiac, Healing But Still Having Symptoms.

20 June 2012 - 11:27 AM

I don't know about the bloating part, but it took a full 18 months before I began to feel somewhat "normal." For me, the bloating was the first symptom to disappear, since bloating tends to indicate that you've eaten something that you can't digest or tolerate well. Yes, you may have additional sensitivities, but only time will tell what they are. I suppose you've been keeping a diet diary (?). If not, it's a good place to start.

As for your DH coming and going, you MUST stop your intake of iodine for a while in order to get it to simmer down. It takes gluten and iodine for the DH to erupt (for others, it takes salicylates). Avoid seafood, iodized salt (which includes crackers, fries, and chips), and asparagus for starters. You will have to add iodine back into your diet eventually because it's a necessary nutrient; however, it fuels the DH without your ingesting gluten until your immune system quietens down. Also, there's the possibility that you're sensitive to salicylates.

Could you be getting contamination from handling pet food? Most pet foods contain wheat or barley. If you have a cat, that means it's in their saliva and on their fur, so you should be careful to wash your hands immediately after touching your cat (and probably a good idea not to kiss your cat). Have you changed to gluten-free shampoos and creme rinses? If not, that can help with both the DH and contamination. Do you kiss a significant other frequently who is a gluten eater? Again, this needs to be avoided...or the loved one has to wash his/her mouth before kissing you.

Just some suggestions--hope you heal soon!


Interesting; I hadn't heard about the iodine connection! I do eat a lot of seafood for the Omega 3s & because it's my favorite kind of meat. Guess I'll cut that down & see if it helps my DH. Thanks!

As for my cats, well, they've been grain free even before me! My one cat doesn't tolerate grains at all.. I guess that should have been a hint that her mom wouldn't, either :)

In Topic: Are Sympoms Worse After Not Ingesting Gluten And Then Ingesting It?

18 June 2012 - 05:18 PM

ravenwood,

Do you mind me asking how you know if you are having intestinal bleeds in your small intestine? How scary for you.


I'm not ravenwood, but I get internal bleeding from gluten too.. basically when you go to the bathroom there's blood. For me, a pretty significant amount (sorry TMI). Or you can have blood showing up in your stool, it makes your stool look black & 'tarry'.


Before I was diagnosed I lived exclusively on gluten, not even kidding. I couldn't get enough. I had lots of symptoms, but none immediately after eating. Now, since I have been gluten free I have the same symptoms when I eat gluten, but much more intense & symptoms I haven't had before, too. I can tell halfway through the meal if there is any gluten in it. In a way I've come to look at it as a good thing; at least I know right away.