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alwaysafter8

Member Since 18 Jun 2012
Offline Last Active Aug 01 2012 08:28 AM
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Topics I've Started

Ttg Levels Almost Triple After Eliminating Gluten?

31 July 2012 - 01:21 PM

I was diagnosed with celiac April 27th, 2012.
Prior to this I had pretty much eliminated gluten (since Aug 2011), except for the "made in a facility" things & the occasional cheat (maybe once a month). When I got my TTG test results back, it was at 60.

I got home & immediately eliminated all the "made in a facility" items, only getting glutened a couple times (once in the first week after diagnosis & once about 6 weeks ago). Then 6 weeks ago, since I was still having symptoms, I cut everything & did an elimination diet, to see if there was another intolerance I had. I cut: corn, potato, nightshades, fruit, ALL grains, dairy, sugar, soy, pork, chicken, turkey, onion, garlic, anything packaged/processed.. and I've been VERY diligent. Everything I make is from scratch, anything that I eat that is packaged (spices, nuts/seeds) are stamped gluten-free. My diet is: vegetables (the ones I don't react to), coconut, beef, bison & fish. Fish & eggs make my DH flare up so I limit those. Nuts I seem to do okay with (thankfully!)

I have been neurotically avoiding gluten. Safe makeup, safe shampoo/condish/soap, safe medication/supplements... there's NO way I am having gluten (aside from the couple cc's I mentioned earlier). But there is NO WAY I am eating MORE gluten now, than I was prior to my diagnosis. Absolutely NO WAY. All I've done is cut things since being diagnosed. So, going in for my followup test, I wasn't expecting my numbers to go down a lot, but I was prepared for them to stay the same at the very least. I know healing takes time.

What I DID NOT expect, was to learn my TTG has jumped to 155!!!! My useless doctor says she's "not worried" about my huge levels & that "we'll retest in November". Oh, that's nice, but what about me in the meantime? Clearly what I am doing isn't working, either that or I might have some other autoimmune disease?

Or am I getting glutened because I stare a little too longingly at the cupcakes in the window when I walk past the bakery??? (kidding.... I think?)

Does grainfed beef have gluten in it? What about grainfed eggs? I'm SO confused.

I've had my thyroid TSH checked, it's fine. Sodium/potassium is fine. B12/D2 is fine. Calcium/magnesium okay. I have anemia, but I've been diligently taking my iron supps & my level has been slowly inching up. I have lower-than-expected bone density, but I've been taking calcium for it too. I'm taking a litany of supplements (all gluten free) to make sure I'm getting my nutrients even with this malabsorption thing.

What else can raise the TTG other than gluten? I haven't had a biopsy or any other celiac related tests done (AGA-IgA, etc)... because apparently my doctor is completely incompetent & I guess I am supposed to diagnose myself & ask for specific tests (like I did with the celiac thing). But, sadly, I'm not a medical doctor, I'm just a sick woman who is desperate & slowly (okay, quickly) losing all hope that I'll ever recover from any of this.

Frustrating! Where do I go from here? :(

Red Apple Lip Products?

18 July 2012 - 08:13 PM

Been eying Red Apple lipsticks for a while now & am preparing to make my first order, only problem is I'm having trouble deciding! I like almost every color; this could get dangerous for my wallet, damn celiac :)

Anyone tried these lipsticks? Any favorites?

Does anyone have either "Berry Blast" or "Love My Kiss"? Wondering about the level of shimmer/glitter in these two. Is it very noticeable as glitter or does it just give it a sheen? I'm more of a matte/gloss kind of girl myself, but these two look pretty enough I might be able to pull them off as long as they're not too glitzy. Hard to tell from the pictures, with the camera flash.

Also wondering about their lip balm; does it really help when worn under their lipstick? Or is it just another balm? I'd like to go for their trio deal but don't want to buy just another lip balm since I have two other gluten-free ones.

The lip glosses look nice too, especially for layering. Tell me your favorite combinations / colors, whatever! Are the reviews too good to be true?

New Celiac, Healing But Still Having Symptoms.

18 June 2012 - 05:01 PM

Hi, I am new to this gluten-free world. I wasn't sure if this post should go here or in the intolerance forum, so forgive me if I chose wrong!

Anyway, I was diagnosed with bipolar last August & while I was researching natural ways to treat it, I came across research that showed gluten triggers mood swings. I cut gluten then (all main sources, not worrying about cross-contamination), went through a brutal withdrawal & then felt better. My foggy head lifted more than it has in years! That was enough to tell me I needed to be gluten-free.

Eventually it seemed like my progress plateaued, & yet I still had many symptoms (foggy head, difficulty getting out of bed, pregnancy-esque bloating, cramps, DH, the perpetual runny nose.. etc). I would cheat on my diet on occasion, & I'd get instant cramps & massive bloating, then spend the next 4-5 days in a really bad, low, depressed mood. So I didn't cheat very often, maybe once a month.

I finally got my doctor to order a blood test for celiac this April, even though she said since I wasn't eating gluten regularly it might be a false negative. I wasn't willing to challenge gluten but I got the test anyway & I have celiac disease! My TTG was 60. Since then, I've cut out all the trace gluten from my diet (including the 'made in a facility' items), got a new toaster, new teflon pans, threw out all old wooden spoons, etc. I think I've gotten the hang of it, for the most part.

My issue now is I still have symptoms, most namely bloating & DH that flares up every now & then. The bloating is the main issue, only because it's the only symptom I can actually see (since I'm 'bipolar', it's hard to know if the joint aches, low mood, anxiety, etc are all 'in my head' or symptoms). But still, almost everything I eat makes me bloated. Fruit, vegetables, meat, grains.. I can even have a glass of water & get bloated! I am taking probiotics, l-glutamine, fish oil, slippery elm powder... not seeing much improvement with them yet.

Now I'm not sure if my symptoms are just part of the healing process, or if I'm having intolerances to other types of food. I already know I can't tolerate dairy (casein, not lactose) or coffee & I seem to have issues with corn, potato, soy, rice. I had an allergy test for soy & corn, but neither was positive. I've been eating these grains because I thought they were safe, but then I started reading about cross-reactive foods! Now I'm paranoid that I am prolonging my healing OR doing more damage by eating them because I'm getting bloated. I cut all grains about a week ago to attempt an elimination diet, but as I am severely underweight as it is, cutting starches/grains is a little distressing.

I guess what I'm wondering, is how long did you have symptoms for once going gluten free? Is it common to bloat up like crazy after almost everything you eat when you're still healing, or does this mean I might be intolerant to other things, too? Do sensitivity tests even help? Would cross-reactive foods show up as intolerances if they're irritating my intestine? My doctor is useless when it comes to this sort of stuff & I'm basically just looking for someone to tell me I'm not crazy. Or that I am. Either way, tell me something, please! I feel so lost :(