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Member Since 22 Jun 2012
Offline Last Active Jun 28 2012 04:34 AM

Posts I've Made

In Topic: Need To Vent...husband Doesn't Get It!

23 June 2012 - 06:33 PM

My husband was eating pizza today and asked me if I wanted a pepperoni from his pizza. I told him "no" of course and then told him that instead of trying to get me to eat things I shouldn't he should be telling me not eat them. I asked him if he wanted me to feel awful all the time? He has always had a problem if I need attention for something and if I am feeling bad its something that is affecting his comfort. He'll get over it eventually and realize how serious it is but until then I will keep plugging along trying make my life as gluten free as possible and hope that someday he learns not to dip his wheat crackers in my gluten free hummus.

In Topic: Not Sure What To Do.

23 June 2012 - 05:57 PM

I think you should work hard to get blood testing done before you leave for vacation. See if your Dr. will call in labs in the next couple days. Mine will make a lab slip for me to pick up if the test is warranted. :) Agreed it isn't worth ruining your vacation with gluten!

Your results are interesting and suggestive of celiac. I can see why you are thinking in that direction. IgG gliadin is prone to false positives as far as celiac but having an IgG reaction to all the gluten grains seems significant.

I agree. I was actually considering that. I might try and overload on gluten for a couple days and see if that helps, and then I will have time to go back on gluten free, and maybe do a some detox tea for a few days to help flush it out. My doctor will pretty much do whatever I ask within reason. Thanks for your help and suggestions.

In Topic: Not Sure What To Do.

23 June 2012 - 01:59 PM

There is no validated test for gluten intolerance. What test was done and what were the results? It may have been that your Dr. misinterpreted a celiac test.

If I read your post correctly you've only been gluten-free for a week? My understanding is that only a week off gluten isn't enough to throw a celiac panel to the point where you need to challenge for months. I'd give it a week or two eating gluten and then get the testing done.

Actually I was sort of gluten free but cheating often, and then I went full on eating whatever I wanted and I started feeling really bad. I was even nauseous quite a bit. But since I realized I can't have it at all(not what the doctor said) I went back on a gluten free diet and that has been about a week. feeling much better already, again.

As for the test it was done by Alletess Lab. I went to an ENT who is also an Allergist. She was recommended by a holistic lady I knew. The test was IGG and she test for food reactions to 96 foods. Most of the what I was "allergic" too was gluten containg grains, dairy, eggs and Oats. How the test read was, less then 0.200 was negative and over was positive. For gluten I was 0.391 and that was specifically gluten not the specific grains. Wheat and Rye I was positive and barley, bran and malt I was borderline. But that I think is not gluten just the rest of the grain. I was told people become "allergic" from over eating something and I obviously had eaten too much gluten so therefore I was intolerant but if I removed it from my diet and then only ate it once or twice a week I would be fine. I never went back to that Dr because I questioned her reasoning. I was never tested for Celiac Disease per se but I believe this one test is part of that comprehensive panel. I never thought to be tested either, kicking myself now. But when I look back on my life and other people in my family I wonder, is there a connection. I have read that there is such a thing as non-celiac gluten sensitivity, maybe that is what I have.

I have an Aunt who when young was very small and the doctor was concerned because she seemed like she was not getting enough nutrition. In recent years she has had unexplained health issues that medication does not help.

I am going on vacation in a week, there is no way I am going to eat gluten and then feel awful on vacation. If I thought a test my show something I would get tested next week but I have no guarantees either way.

In Topic: How Many People Self-Diagnose?

23 June 2012 - 12:02 PM

As a nurse I hesitate to diagnose my self but I do know I have a Gluten Intolerance per a blood test. At that time I did not have the specific blood test for celiac disease. I wish I had know more because what I know now makes me think I have celiac disease. But the symptoms I have are the ones most doctors don't think as celiac disease. Over the past several years I have gone to the Dr for one complaint or another but because they were all happening at different times I didn't put it together. I have always had fatigue and hypoglycemia since a child. A few years ago I was tested for Meniers and I have had A1C done for blood sugar check and a couple years ago I started having chronic headaches. They would come and go all day. It was awful, I was taking motrin, naprosyn and even xanax to help. I did find out I have mild sleep apnea but that did not cure everything, at the same time I found out I had Gluten Intolerance. I went gluten free, sort of. I was much better for a while and then I slipped back into regular food and then my symptoms came back and worse along with constipation. I really believe I have celiac disease and I think my 10 dd has it too or least leading up to it. I did have her tested but she tested negative but did and wheat allergy per RAST Immunocap test. She does have stomach problems at times and her stools can be very large. She has ADHD symptoms and very high strung. She also has back molars with enamel erosion. My mother in law has IBS and fibro and my grandmother had Rheumetoid arthritis. So we have some auto immune on both sides of the family.

I guess what I am saying, more than likely I have celiacs but I hesitate to be confidant about it.

In Topic: Not Sure What To Do.

23 June 2012 - 07:08 AM

I have never been diagnosed with celiac. It started as a wheat allergy and a gluten intolerance. When they did the bloodtest for celiac on me, I was already wheat free, so I assume that was part of the problem. I decided I was done with gluten and it's been about a year and half and I don't miss it at all. I am frustrated that I didn't get a diagsosis because I have five children and they get frequent issues that I wish I could say "I have celaic, so chances are you may too" but until there life is being limited(sick frequently or potty issues all the time) I am not having them tested. We do have a pretty gluten free home. Our meals are all gluten free, but they do get regular bread, snacks, and school lunch with gluten. My 9 year old son doesn't even eat bread and many other things because they make him feel icky!

I guess what I am saying is I never needed a diagnosis to justify my self...But I would need one to justify taking my children off gluten completely...

I don't need a diagnosis for me either, but I feel it would help doctors take me more seriously with my children. But I will probably just wait until they get older and then have them tested. I am a nurse so I am a fact person, I never assume but I do know I cannot eat gluten and probably have celiac disease or highly predisposed to it. My Grandmother has rheumatoid arthritis and who knows may have had celiac disease. Thanks for your input.

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