Jump to content



   arrowShare this page:
   

   Get email alerts  Subscribe to FREE Celiac.com email alerts

 
Ads by Google:
Celiac.com Sponsor:                                    


DogWalkerNYC

Member Since 30 Jun 2012
Offline Last Active Jan 17 2014 08:06 AM
-----

#812574 Some gluten-free Bread May Not Be Gluten Free!

Posted by DogWalkerNYC on 21 July 2012 - 04:44 PM

That isn't what you were saying. That doesn't say corn is bad, it says there might be a wheat, barley or rye addded to a corn product, so don't assume. Read ingredients.

Honestly, I don't know if we aren't explaining something well enough, we are all misunderstanding each other, or you are too upset to really read what people are trying to say. I don't think there is anything else I can do, tonight, to help you. Tomorrow is a new day.


I completely understand what you're saying. First of all you're blowing off 'the product guy's' research, which may or may not be accurate. Assuming it is not accurate, you're saying corn by itself is gluten free but can easily be contaminated because it is often manufactured in facilities that also manufacturer wheat products.

Great! I want to know that. And I want to learn it from the gluten free organization I choose to trust. When I read that corn is on the acceptable list, I want an asterisk next to it warning me of cross-contamination.

When I go to the mall to buy a product containing corn, I want a disclaimer next to the product again warning me that it may be contaminated.

Not every single food product falls into the 'iffy' category.

I expect to be advised about those that do.

My company sells products to pet owners. We have warnings everywhere to advise them of any possibility. Should I just let them find out by trial and error? I don't think so. Forewarned is forearmed.

I did not know about cross-contamination of corn products until today, yet I consumed a lot of corn because it's on the 'safe' list.

How much more can I explain my point of view? I don't mind that corn is on the safe list. I do mind that there was no warning about cross-contamination, since it seems to be more problematic than with other foods.
  • -3


#812534 Some gluten-free Bread May Not Be Gluten Free!

Posted by DogWalkerNYC on 21 July 2012 - 02:40 PM

:lol: :lol: :lol: Now that I understand! :P


If that's all you understand from my posts I'm very sorry for you. This is not a game.
  • -2


#812529 Some gluten-free Bread May Not Be Gluten Free!

Posted by DogWalkerNYC on 21 July 2012 - 01:58 PM

Especially since corn is such an iffy food with so much controversy surrounding it's safety for celiacs. How could a website, called celiac.com not mention that? I expected the celiac.com website to be the gold standard of current, up-to-date info and resources. I expected to find lists of safe foods, unsafe foods, controversial foods. Do you not believe the tests that 'the product guy' mentioned in his article? Do you not believe any of the controversy? If not, it should at least be mentioned on a site called celiac.com. I will call the product guy back Monday to get more info about the testing, and maybe I'll call Dr. H. in India. This is my life and my health.
  • -2


#812528 Some gluten-free Bread May Not Be Gluten Free!

Posted by DogWalkerNYC on 21 July 2012 - 01:40 PM

One of the basic tenants of a celiac diagnosis is to also try and exclusionary diet to find other foods that might cause you issues, as many celiacs also react to milk, corn, oats, soy, etc., but these are considered separate intolerance issues and not part of celiac disease. The fact that some celiacs can't tolerate corn is not new news, and I've writing about this for many years on this site.

Take care,
Scott

PS - Which is why on The Gluten-Free Mall you can filter out those items and sort products by those other ingredients.


Unfortunately, either you guys are just not understanding me, or choosing to ignore my point. When a newbie comes to the celiac website or The Gluten-Free Mall, before that newbie knows what works and what doesn't, it would be nice if the website or the store selling the food products had a disclaimer, or a welcome page, advising newbies about some of this technical stuff. 'Welcome Newbie, we're glad you found us. Enjoy our site or store. Here are some things you might want to be aware of as you make your purchases, etc."

Scott, on the celiac.com website you list corn as an acceptable food on a gluten free diet, with no mention that it may not be appropriate for some people. You say: "In any case, as far as we know, corn does not seem to cause harm to celiac patients."

Would it hurt to say that corn may be harmful to some people? Do you see what I'm saying? I'm coming to you for current, accurate information and making a blanket statement that corn does not seem to cause harm, etc. is absolutely not accurate across the board.
  • -2


#812498 Some gluten-free Bread May Not Be Gluten Free!

Posted by DogWalkerNYC on 21 July 2012 - 10:52 AM

For those of you who are eating corn and feeling great, I read on this, and other forums, that if you are a true celiac even the smallest amount of gluten can cause damage to your intestines, whether or not you feel the damage. If corn contains gluten aren't you concerned about that? If not, why?

To Jestgar, of course we are all responsible for our own health, even me! And part of that responsibility is to learn who to trust, which people and companies run their companies ethically and honestly. We all cannot be experts, not even you. And so we rely on the experts we choose, and expect them to fill in the gaps in our knowledge base.

I am a business owner too and my clients expect me to be 'the expert' in the services I provide. When I do business with other companies I expect them to be 'the experts'. That does not mean I am not responsible for my own health. To the contrary, it means, I am very much responsible, and acting responsibly. And that means expecting the experts I turn to, to do their job.
  • -2


#812493 Some gluten-free Bread May Not Be Gluten Free!

Posted by DogWalkerNYC on 21 July 2012 - 10:23 AM

I am discussing corn at this moment because I was in the supermarket several hours ago buying Schar bread when I received the email saying that some gluten free breads are damaging to celiacs. That is the reason I'm discussing corn at this very moment. When I arrived home I went online to the Gluten-Free Mall to see if they carry the same product, and if there's a disclaimer, etc. And they do, and there is no disclaimer.

I completely disagree with you about the disclaimer. Any company that sells food products geared towards a particular group of people owes it to those people to provide them with every single detail, and every bit of information, about their possible or probable reaction to eating the food they are selling. Period. It is their moral and ethical obligation to their customers, who already have food issues and are coming to them to get healed.

Attention Celiacs: Certain celiacs are sensitive to one or more of the following products. Please be aware, or please speak to your doctor, or please do a test, or please anything, etc.

Yes, we all have different reactions to different products. But there are only a handful of items that are potentially harmful to many of us: corn, soy, dairy, nightshades, salicylates.

How hard would it be for a store selling gluten free products to mention the more common allergens? Corn has been iffy for while, from what I read. This is not a new problem food.

You can ban The Gluten Free Society for spamming or whatever they did, but it irks me that I heard about corn from a website that hasn't received a penny from me and not from The Gluten Free Mall, who sells this stuff to make a profit.
  • -5


#812486 Some gluten-free Bread May Not Be Gluten Free!

Posted by DogWalkerNYC on 21 July 2012 - 09:34 AM

Exactly. This forum, and other similar forums and resources, are here to help people navigate through this situation.

As a fellow sufferer wouldn't it have been helpful when you first started out if you were made aware of some of the innuendos of dealing with celiac? Do you really think the better way is to learn by (painful, damaging) trial and error? Wouldn't you have appreciated being told, on some of these information sites, that some celiacs react to corn or soy or nightshades, etc.

Certainly on a site that sells food, like Gluten-Free Mall, I expected no less. Just a simple little disclaimer would have done it. Is that really too hard for them to do or might they be concerned about the effect such a notice would have on sales?

Also, you mentioned that 'not all celiacs react to corn'. But I read on this and other forums that just because celiacs may not have a reaction to eating glutened food that does not mean that damage to the intestines is not being done. In other words, just because you don't feel the damage doesn't mean it's not happening.
  • -1


#812467 Some gluten-free Bread May Not Be Gluten Free!

Posted by DogWalkerNYC on 21 July 2012 - 08:29 AM

In my opinion, the point is if corn affects even one celiac it may affect many. How many posts have I read from people saying they are sticking to the gluten free diet and still having symptoms? How many of those may be eating corn thinking it's a safe food, but for them it's not. Isn't it worth it for even one of those sufferers to be told that corn may be the culprit? It should be noted on the home page of Gluten-Free Mall: "Attention Celiacs: Some celiac sufferers react negatively to products containing corn. If you are sticking to the gluten free diet and still having symptoms, you might want to consider removing corn products from your diet to test if corn is an irritant." Something like that would really be helpful.
  • -2


#812451 Some gluten-free Bread May Not Be Gluten Free!

Posted by DogWalkerNYC on 21 July 2012 - 07:52 AM

It may not bother you but it may bother others who are continuing to have symptoms despite strictly adhering to what they think is a gluten free diet.

Are you saying The Gluten Free Society is not a reputable resource or do you not believe the study? Here's a link to their website: www.glutenfreesociety.oMy linkrg

The issue is not that corn doesn't bother one person with celiac, the issue is that corn may bother many others.
  • -1


#812446 Some gluten-free Bread May Not Be Gluten Free!

Posted by DogWalkerNYC on 21 July 2012 - 07:35 AM

I received an email from Gluten Free Society at 8:30am this morning. The subject of the email is: Gluten Free Bread Causes Celiac Damage.

Here is a blurb from the article:

"A recent study found that patients with celiac disease can react to "gluten free" bread made with maize (corn) protein. Serum IgA was measured against the prolamine in corn. Previous studies have found similar reactions with corn in patients with gluten sensitivity."

Upon reading this, I immediately sent the following email to Schar:

"Hi Schar,

I just received an email from Gluten Free Society saying:

"A recent study found that patients with celiac disease can react to "gluten free" bread made with maize (corn) protein. Serum IgA was measured against the prolamine in corn. Previous studies have found similar reactions with corn in patients with gluten sensitivity."

I am very upset to read this because I have been enjoying your bread and rolls for awhile now, but your products contain corn starch, and if eating them is harming me I will find another manufacturer that does not include corn in their ingredients.

Please let me know your thoughts on this. Is corn starch the same as corn protein? If it would be helpful I can forward you the complete article.

When people on the celiac.com forum and members of celiac sprue read about this I'm sure they too will stop purchasing these products if eating them is causing us harm.

Thanks,
Laura"

Forum members, Schar products are sold in the Gluten-Free Mall. Is this nothing to be concerned about? If not, great. But if it is, why are these products for sale in the mall and why is this company being touted as a trusted gluten free company? If this is new research why isn't it on the main page of celiac.com, and if it's old research why am I receiving an email today about this? And again, why are these products for sale in the gluten free mall.

I am trusting my health to forums like this one and expect consistent, updated info.
  • -1


#810989 Please Read & Respond

Posted by DogWalkerNYC on 14 July 2012 - 08:23 AM

P.S. Isn't the idea here to reduce the damage to the intestines? Does it make sense to start the healing process and then re-damage my intestines just to be tested, especially since the results are iffy at best? If eating gluten free is healing my intestines and making me feel good that's good enough for me, regardless of whether the initial damage was caused by a gluten intolerance or an allergy to beta blockers. If sticking to this diet reverses my symptoms I'll stick to it for life, and work with a dietician or nutritionist (not sure of the difference) re supplementing with vitamins, etc. As my dad used to say: "If something works, don't fix it."
  • 1


#810987 Please Read & Respond

Posted by DogWalkerNYC on 14 July 2012 - 08:09 AM

Hi Kareng, I'm not having the colonoscopy and endoscopy to test for gluten intolerance. I'm having those tests as a normal part of health care for a woman my age. I don't plan to get pregnant at 65 (:D) and have no kids to test. I don't need a formal diagnosis and truthfully self-diagnosing based on symptom reduction seems to be the most reliable test out there. Being told by a doctor that I 'officially' have Celiac Disease, or being told that I 'officially' do not is not going to change how I eat. My symptoms will change how I eat, and already have, so I don't see the point of poisoning myself and suffering to take some tests that might or might not be accurate.

Regarding a possible allergy to Ziac and other beta blockers my game plan is to stay gluten free and slowly but surely, gently reduce the drug. I do not have high blood pressure but I will gently reduce the drug as I strictly adhere to the gluten free diet. Time will tell. Again, being tested will not change anything, so why do it?
  • 2