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Member Since 30 Jun 2012
Offline Last Active Jan 17 2014 08:06 AM

Topics I've Started

Diagnosed With 'gluten Sensitivity' & Gastritis. Help!

14 January 2014 - 09:44 PM

Really need some help. Several years ago I self-diagnosed myself with some sort of gluten issue after my stomach pain and reflux responded to a gluten-free diet. But I've been binge eating (gluten and non-gluten) on and off since then and totally out of control due to some stressful situations in my business, and the pain has come and gone accordingly.


I just had my yearly colonoscopy and endoscopy. The result is I have very bad diverticulosis (not diverticulitis - the infection) on both sides of my intestines. My GI doc said it's usually only on 1 side. He also told me I have moderate gastritis. He did several biopsies that showed I do not have celiac disease. He diagnosed me with a gluten sensitivity.


The reflux from several years ago seems to have resolved even when I gluten myself but the pain in my stomach area (between breasts and belly button) almost makes me cry. It's a burning, bloating ache, like eating too much junk at the circus when I was a kid. When I have this pain even clothing touching my stomach is painful. In addition to the stomach pain my eyes burn, I feel weak and all I want to do is lay down and cry.


I bought a juicer and have been juicing a 'mean green': organic kale, celery, cucumber, green apple, ginger root, lemon. I also juice organic carrots. As I drink the juice it feels (and tastes) amazing and it feels like it's coating my stomach and the pain eventually resolves.


If I stick to a gluten-free diet, and by that I mean single-ingredient foods (fruits, veggies, organic fish, etc.) I think I would be pain-free. I also take Barleans Oil and turmeric, both for inflammation, which is what gastritis is. I was told NOT to eat processed foods labeled 'Gluten-Free' because they contain ingredients that are not as healthy as the single-ingredient foods mentioned above.


I bought some organic bananas yesterday and had one several hours ago. I am so sick now as I type this that I can't think straight!!!! I did a search for 'are bananas gluten free' and found the info below on www.glutenhatesme.com:


Bananas contain a protein called lectin, which is also found in many of the “night shade” foods that some people with Celiac or gluten intolerance have trouble with. Lectin is somewhat similar to gluten and can create an autoimmune response. This is due to the body confusing lectin with gluten.  Some researchers even speculate that gluten sensitivity is actually a lectin allergy that was previously unknown. I also found that many of the foods, including bananas, have been processed with GMOs which can contain lectin and can cause gluten-like symptoms.


I am going to try the Paleo diet and keep a close eye on every single thing I eat. I appreciate the opportunity to post this and would love any and all feedback and support.


Thanks very much.







Ncgi Or Ncgs

13 February 2013 - 07:43 AM

Hi, I don't know if it matters but is it Non-Celiac Gluten Intolerance (NGCI) or Non-Celiac Gluten Sensitivity (NGCS). Are they the same thing or 2 different conditions? Thanks.

Just Diagnosed 'probably Non-Celiac Gluten Sensitivity'

08 February 2013 - 04:41 PM

Hi, several months ago I joined this forum thinking I had dermatis herpetiformis. I was absolutely miserable. I had many of the gastro symptoms and an incredibly itchy, horrible rash on my arms.

It turned out not to be DH but my gastro problems persisted. But when I ate gluten free, the gastro issues were virtually non-existent. I was not going back to eating gluten just to test, especially since I had read that the tests were unreliable.

My last colonoscopy and endoscopy (August 2012) showed major diverticulosis, among other conditions (including fibroids and a 'simple cyst' on my ovary. My GI guy sent me for a cat scan and ultrasound and both confirmed the above. I also had low vitamin D and iron.

My primary physician wasn't concerned about the vitamin D and iron and all my other doctors (including the 2 radiologists who read the results) told me these are common conditions in a 65 year old (which I am).

My GI guy knows nothing about gluten, or the effects of food on the gut (can you believe!!). In addition to all the other tests he wanted me to have a capsule endoscopy (where you swallow a camera and it takes hundreds of pictures as it goes through your gut).

At that point I decided to switch GI doctors and found one who works with a nutritionist who was trained by one of the top gluten doctors in the country. I saw her several weeks ago (before having the capsule endoscopy) and she put me on a strict gluten-free diet and asked me to keep a food diary of when I eat, what I eat and how I feel.

Under her care I've been feeling great and only have bloating/heartburn issues when I eat too much food, or food that's not 100% gluten-free.

On Monday I had the capsule endoscopy and got the results yesterday: 'Normal small bowel. No evidence of Crohn's disease or Celiac Disease. Probable non-celiac gluten sensitivity. Recommendations: Continue a gluten free diet.'

Can anyone offer me any advice about this probable diagnosis, what it means and how to proceed? In other words, aside from a gluten-free diet, do I have to buy gluten-free toothpaste, cosmetics, etc?

Also, this probable diagnosis was made as a result of my recent endoscopy, colonoscopy, cat scan, ultrasound, capsule endoscopy and symptoms. How accurate do you feel it is? I am not going back on gluten to do further testing.

Sorry for this long post and thanks very much for your help.


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