Jump to content

Follow Us:  Twitter Facebook RSS Feed            




   arrowShare this page:
   

   Get email alerts  Subscribe to FREE Celiac.com email alerts

 
Celiac.com Sponsor:                                    


flowerqueen

Member Since 02 Jul 2012
Offline Last Active Dec 09 2014 01:51 PM
-----

#908361 Acid Reflux And Ppi's

Posted by flowerqueen on 08 March 2014 - 02:34 PM

I will have a look into it. As I've heard some good reports since researching the HCL. Thanks :)


  • 1


#893019 Muscle Weakness And Pain

Posted by flowerqueen on 22 October 2013 - 08:00 AM

I've been gluten free since July but still getting new or increased symptoms. GI symptoms are pretty much gone but I am experiencing bad muscle pain and weakness. I'm finding it hard to even open a package of crackers and can barely hold my blow dryer up to dry my hair. My finger tips feel cold and tingle sometimes.

I'm having a hard time sleeping with this. My pillow feels more like a brick on my neck then a soft pillow because of the neck pain. I toss and turn throughout the night trying to find a comfortable position

My legs feel like they are going to give out on me. You know how your legs feel after a long bike ride wobbly and "spaghetti legs" that's how they feel, walking up the stairs is a chore.

There's also the red rash I get. They are red dots not bumps and don't itch. I think from pictures it's petachie but of course doc says "blood work looks normal".

I'm feeling like going to the dr will be useless, is this just something that will pass with time?

 

I know exactly what you mean!  Before I was diagnosed with Celiac disease I was so scared, I too was very weak.  I needed a walking stick just to walk very short distances.  I would describe it as being like a bag of jelly (Jello?), even when resting I felt like I had an inner shaking, not visible on the outside, my hair was falling out too.  Do you know what bloods you had done?  I was found to have extremely low ferritin levels at the time and other vitamin/mineral deficiencies.
 
It took a little while to get things back to 'normal' and just when I had got to reasonable health - bearing in mind my other illnesses, when it started all over again.  I finally (by a lot of research) found that if you have low magnesium levels it can cause problems with muscles and I now take a supplement daily, along with zinc,  which helps it work better and also Vitamin B complex.  Now, I can't say definitely that yours will be the same, but it is worth looking into.  Also, don't expect an over-night result, as I was taking it for a few weeks before I started to notice the difference, but I hope my experience helps you and gives you some hope.
 
I'm sorry I don't know much about the rashes etc., I hope someone on here is able to help you with this.

  • 2


#889305 How To Deal With Unsupportive Friends?

Posted by flowerqueen on 22 September 2013 - 06:00 AM

You shouldn't have to go through pain and illness just to prove it to your 'friends'. I had to eat gluten regularly for 6 weeks before my diagnosis and in was hard going, I can tell you! You should not have to 'prove' anything, you know your own body. Also everyone's different when they have accidentally consume gluten, BUT, are you sure you have only been glutened the once and not several times over a few days, if you are being ill for so long? A food journal would be useful to find out for sure.

Personally, I'd be of the view, "It's my body, my life, my business" and if they didn't like it, they can jolly well lump it. You've always got us, here on the forum, to discuss any issues with.
  • 1


#888979 Am I Right To Feel Offended?

Posted by flowerqueen on 19 September 2013 - 02:10 AM

I'm afraid your husband is right! Your sister in law is being insensitive and selfish. She is coming to stay at your home for a week, where, as a guest, you will be taking care of her and her family, then she expects you to go and eat at some place where she knows very well your will be unable to eat anything? What? Stick to your guns, and make sure she knows you are not flexible on this issue.

It is virtually impossible to find a gluten free Chinese restaurant let alone trying to cope with an anti-candida diet. Do not be pressured or made to feel you need to justify yourself and for goodness' sake don't risk it. Put another way, if any of her family were allergic to peanuts, would you expect them to eat one?
  • 1


#876088 Unexpected Hospital Stay And Dietary Nightmare

Posted by flowerqueen on 23 June 2013 - 06:48 AM

What an absolute nightmare! No wonder you lost it! I think anyone would in your position. It makes you wonder how these people can be qualified io have a job in a hospital. It's no better across the pond either, I'm afraid to say. :-(

All I can offer is sympathy. Apart from the food fiasco, hope the surgery went well.
  • 1


#863527 Gluten Or Dairy?

Posted by flowerqueen on 14 April 2013 - 11:30 PM

I get the same symptoms when I eat dairy or gluten (obviously eaten in error not deliberately). So it can be difficult to pinpoint exactly what it is, unless you keep a food diary. I get severe stomach cramps, bloating etc. with both. Although usually, I don't get a migraine when I've eaten dairy, but I do with gluten. That's about the only difference I can think of right now. As with most things, the best way is a food journal making a note of everything that's eaten and write down any symptoms you have on any given day.
  • 1


#863393 Hairdressers Anyone?

Posted by flowerqueen on 14 April 2013 - 12:28 AM

Some of the hairsprays I had at home contained wheat based conditioners in them, so I am guessing that they would have similar ones used in the hair salon and there were definitely plant based (including wheat) in the eye drops as I checked it out. I am just worried that the little mishaps (none of which were on my control) would effect my next biopsy. (I'm crossing my fingers for this one!)



Hi.  I'm not sure whether hair spray would contain gluten, but  nasty fumes yes.  I hate anything unnatural on my hair. I would look much younger if I would color my hair...but I have earned every one of my grey hairs.  And I'm pretty sure that eye drops would not contain gluten.  Just the nature of the product would indicate that.
 
Taking perscribed meds and suppliments can have an interaction.  Recently, a suppliment affected my eyes.  I stopped and back to normal.
 
Hope your upcoming biopsy is great! :)


  • 1


#859096 Question About ''traces Of Wheat'' Etc

Posted by flowerqueen on 18 March 2013 - 05:26 AM

Takala gave a good answer to your question and there's not much I can add to that, other than to say it has to be your choice.  Personally, if you feel that you would improve the quality of your life by cutting out all gluten and wheat, I would also remove foods which say 'may contain traces of wheat/gluten' then you have removed all reasonable doubt that you are helping your condition as much as humanly possible.  Good luck with the diet and I hope it works for you, whatever you decide.


  • 1


#825750 Why I Still Eat Bread...

Posted by flowerqueen on 26 September 2012 - 11:34 PM

Being allergic to something and being intolerant to something are two different things. If it happened 'out of the blue' one day after Christmas, maybe you have reached your tolerance level to gluten/wheat? Have you tried eating gluten/wheat free bread or pasta to see if you can eat that? There are lots of other food choices you could have without wheat, to build yourself up. If you have lost so much weight and being as ill as you say, you need to see a new doctor without delay to get to the bottom of why you are so ill.
  • 1


#824856 Is It Safe To Vacuum Up Gluten?

Posted by flowerqueen on 21 September 2012 - 11:32 PM

You need a vacuum cleaner with a good filtration system and even better a HEPA filter and that should do the trick. I would not advise dampening the plaster first, especially with an upright vacuum cleaner as it could damage the mechanics. For added protection use a face mask, you can also buy these with filters (from a DIY store). Of course, it would be better if someone else did the vacuuming for you but even then I would still advise a vacuum cleaner with a good filtration system so the particles are not left in the air, as this kind of dust takes ages to settle.
  • 1


#814958 Does Anyone Ever Feel Really Good?

Posted by flowerqueen on 31 July 2012 - 01:23 AM

You seem to have had a lot of replies already, but personally, I think it may depend on the individual. Sometimes we find out we have other health issues once one is discovered. I was found to be suffering from malnutrition before being diagnosed, even though I ate well. Apart from being severely anaemic (despite already having had a hysterectomy a number of years ago) and I was also found to be lacking in vitamin D. Since taking vitamin D I can report on my joint/muscle pain improved considerably. Have you had your vitamin and mineral levels checked? I also have an under active thyroid which causes different symptoms (before treatment). I have diabetes, fibromyalgia (CFS) and am intolerant to dairy products and some other foods.

Nothing is 'clear cut' and it's trial and error with a lot of things. Don't lose heart though, there's a solution to every problem. One other thing, have you thought of keeping a food diary with everything you eat and drink?
  • 1


#811127 Gluten Exposure

Posted by flowerqueen on 15 July 2012 - 04:05 AM

Hi, it can be difficult to begin with finding gluten free foods, but it gets easier in time. To fully recover though, you need to remember that you must not eat any gluten bread at all, as even one crumb can cause problems and destroy the villi in your gut. Cheating is not an option as, even Coeliacs that don't have symptoms are risking their health by eating anything with gluten in it, no matter how small.

If I go out for the day, I take my own gluten free snacks and meals with me just in case I can't find anywhere that will accommodate a gluten free diet. It can be inconvenient at times, but it just needs a bit of planning and it's much better than the alternative of being ill.
  • 2