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Hornet

Member Since 03 Jul 2012
Offline Last Active Aug 19 2012 12:34 PM
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Topics I've Started

1St Celiac Md Visit

14 July 2012 - 03:56 PM

I saw Dr Leffler one of the big guns in Boston. Gave a list of all the symptoms I'm having. Not sure what I have. Had a systemic allergic reaction to a drug I've taken 100's of times and everything makes me itch. Have been gluten-free since May which he did not think was very long. He did several blood tests including the genes and wants me to do the camera pill to find out why I am losing iron.
Has anyone had such allergic reactions it doesn't matter what you swallow? Won't have results for a few weeks. Feeling discouraged with so many health issues and need a smarty to put the pieces of the puzzle together. Thanks in advance for any thoughts.

Specific Test Names

09 July 2012 - 07:52 AM

I am going to see an MD for a dx in a few weeks. I am told to stay on my gluten free diet until I see him.

Can someone provide an accurate list of lab tests by name do I can discuss these when I see him.

I have read look the sections and haven't come across a specific list.

Thanks for helping me out.

Symptoms

08 July 2012 - 03:06 AM

I started with severe stomach pains under my left ribs. One day I could eat gluten the next day terribly sick from it. Told to start an elimination diet. Out of the blue got suck from soy. I have had all sites of issues like fibromyalgia, iron defiant anemia and the latest is to get an itchy burning face, feet and eyelids whenever I eat anything, including my meds. Then yesterday I got this pain that runs down my back on the right side from the shoulder blade to the ribs. Nothing like heat, ice or Tylenol helped that. This really hurts and there is some thought this is liver related or gallbladder but all labs were normal for this on 6/28. Allergy doc said itchiness is not a symptom of celiacs, but rashes are. I have no rash.
Has anyone had similar types of symptoms. The itchiness from ingesting anything seemed to relate to taking a Zantac. The back pain was out if the blue.
I am so confused and yet to be diagnosed. Any ideas are welcome. I see the celiac specialist on the 27th.
Thanks

Celiac Specialists In Boston

07 July 2012 - 01:18 PM

Has anyone had any experience pro or con with Dr Daniel Leffler at BIDMC? He is the head of the department.thanks.

Starting A New Post Or Getting In To A Thread

07 July 2012 - 01:16 PM

I keep tweeting Scott because I see no option to introduce a new topic or get in on a thread like asking about a dic?
Please email me.
Thanks