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Member Since 05 Jul 2012
Offline Last Active Jul 20 2012 01:33 PM

Posts I've Made

In Topic: Anyone Taking A Vitamin B12 Supplement?

05 July 2012 - 05:30 PM

I took one 500mcg B12 supp pill 2 days ago and I vow here and now I will never touch the stuff again! I have WAY TOO MUCH energy, like a drank a hundred cups of coffee, I'm jittery, panicky, heart palpitations, I hate it.

Anyone ever experience this, and if so, what'd you do to get over it? I already threw the pills out (Nature Made 500mcg), but need to flush this outta me somehow...

I take a sublingual; B12 with no problem.

In Topic: Does This Look Familiar?

05 July 2012 - 05:08 PM

Hey everyone,

I am new to the forums and am learning a lot by reading all the topics. This section is one that interested me the most.

Over the past few years I would get a rash for a few weeks, it would itch like crazy, then go away. We weren't using anything new, so I just thought I had weird skin. I also started developing GI issues, that I just blew off.

Recently things have become bad though. I cannot eat anything without being sick, diarrhea for hours, stomach aches, it is horrible. Some days I eat as little as possible just to get through the day without numerous trips to the bathroom.

As the GI issues got worse, so did the rash. It is so bad that my husband cannot sleep next to me because it burns and itches from the heat. My doctor first thought it was Staph infection, I went on a few rounds of antibiotics and it cleared up. It was not contagious though, as my husband has to help me (I am wheelchair bound) and he never contracted it. I ended up with a new doctor and the rash has come back. He has no idea what it is. He gave me some steroid creme that is supposed to be the strongest, and while the coolness offers relief, it does not. I am constantly itchy and the doctor has no idea. He says it looks like an allergic reaction, but to what? He also has referred me to a GI doctor to see what my stomach issues could be, one thing he brought up was Celiac.

So I made my way to this forum and looked around and found this section...an itchy skin rash! I looked over pictures and the information and was in awe that other people had this! I have included pictures of some of my rash from earlier this year. Does this look like DH?


From everything you've said & the photos too, I would say it's a very good chance you have celiac disease.


No temporary stopping, no gluten light, no "I'll eat a lot of gluten on the last few days before the test but until then be gluten free".

Actually, celiacs with dh tend to test neg. on the celiac panel & they tend to have patchier damage to the villi & therefore it's harder for us to get diagnosed. NOW, there IS a biopsy for dh & a dx of dh IS a dx of celiac. BUT the false neg. rate on the biopsy is 37% & that's when it's done correctly by a derm who really knows their stuff & has done many dh biopsies. You must STILL be eating gluten for the dh biopsy!

You also can get your Primary care doc to order the celiac panel blood work---- you don't have to wait for the GI to get that done.
Here is the current FULL celiac panel:

Anti-Gliadin (AGA) IgA
Anti-Gliadin (AGA) IgG
Anti-Endomysial (EMA) IgA
Anti-Tissue Transglutaminase (tTG) IgA
Deamidated Gliadin Peptide (DGP) IgA and IgG
Total Serum IgA

The DGP test was added recently to the full panel.

Also can be termed this way:

Endomysial Antibody IgA
Tissue Transglutaminase IgA
Total Serum IgA
Deamidated Gliadin Peptide (DGP) IgA and IgG

If you have been on steriods orally or topically in the 2 months prior to skin biopsy then the test will turn up negative. If you've been on oral steroids in the 2 mo. prior to celiac panel OR endoscopy biopsy then you can have neg. results.

It looks like DH to me as well. It is VERY important to continue to eat gluten until you are diagnosed. I went off of gluten and had to have a chiropractor, specially trained in muscle testing,diagnose me 15 years later,once I found out about the procedure.

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