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Member Since 12 Jul 2012
Offline Last Active Sep 29 2012 09:07 AM

Topics I've Started

Sushi Rice Sometimes Not Gluten Free

27 September 2012 - 09:49 PM

I knew this was a questionable area and haven't located an exact answer on the forum here, but I just found out a little bit more tonight at a sushi restaurant in Bellevue, WA.

Awhile ago, I discovered there is a rice vinegar that contains a gluten ingredient. I can't seem to find that now, but will keep looking.

In the meantime, this restaurant wouldn't let me get nigiri sushi (on rice) because they use mirin to make the rice. I can't find a mirin with gluten in it so far, but what they told me is that they cut it with soy sauce (or it comes that way?). It gives it more flavor and mirin is expensive, so it reduces cost. The manager said 99 percent of sushi restaurants use mirin and not rice vinegar. I'm not sure that's accurate, but it gives me pause and it explains why some people get sick when they eat sushi.

I don't know if that means they always cut mirin with soy sauce, but I found evidence of this method with this recipe here: http://www.streetdir...hi_at_home.html

(oops. Correction. This recipe is not for sushi rice, so I'll still be looking for more evidence that this is the case)

Trader Joe's Shared Facility?

26 August 2012 - 08:01 PM

I'm pretty sure I've now been glutened twice by Trader Joe's products that were made in shared facilities. How can I know what products I can try? I really don't want to be so vigilant. Once, I marinated chicken with their Romano Caesar dressing. SICK. Very sick. Then, I ate their black bean chili... also made in shared facility with wheat. Again... SICK... and on my birthday too.

How do you decide? I want to stop being cross-contaminated, but making everything from scratch is hard with my schedule. :(

Vitamin E, Tocopherol, Tocopheryl Acetate - What's The Deal With These?

23 July 2012 - 09:27 PM

I've been reading and searching and asking since I've started ditching stuff from my household and this is one topic I can't seem to get a straight answer on.

What IS the deal with this stuff? I read on the forum somewhere that one of the moderators/admins said he didn't think vitamin e from wheat would be a problem (although don't quote me on this) - something to do with the process? I read in many places I should be worried. Cosmetic companies don't seem to know where it comes from half the time or whether it's been CC'd. I also find it's in a LOT of stuff.... cause vitamin e is awesome. I saw that the amount per gram of vitamin e in wheat is way more than other sources, thus probably easier to get?

What are you all doing about this? I've discarded hundreds of dollars in kitchen and bathroom stuff with wheat and cross-contamination. Several of the things not yet discarded have nothing else but tocopherol/tocopheryl acetate in them. Trying to save my last $10 so I can buy a loaf of gluten-free bread. ;)

Real Celiac Specialist In Seattle?

19 July 2012 - 11:28 PM

Hi, Does anyone know of a 'real' celiac specialist in Seattle? I know about Driscoll... and he's not what I'm looking for. He told me not to worry about my Celiac because I had a biopsy after a month on GFD last year and it was clear. I had records in my hand from Columbia 2004-2006 (from when I lived in NYC) which stated a Celiac diagnosis (although 'mild' compared to a lot of people here). I used to see Suzanne Lewis at Peter Greene's office, but now that I'm in Seattle, finding someone with that level of expertise is tough. There are many GI specialists who list Celiac in their areas of expertise, but they really aren't. My biopsy was done at Polyclinic and then I saw Driscoll as a backup. The doctors in both of those places told me I didn't have to be eating gluten since it had only been a month on GFD. I need someone who is well-versed on the neuro symptoms because my gut symptoms had faded over the years and all I had was neuro (BAD) when I saw these docs. They really didn't know anything about it.

My primary is a great ND and she seems to know a lot, but I much prefer my experience at the Celiac Disease Center at Columbia. <spoiled>

Any recommendations would be great. Or maybe some great doc can move to Seattle and start a research center! ;)

There is actually this guy here, Dr. Wangen, http://ibstreatmentcenter.com/ - but he doesn't take insurance and I'm hoping to find an MD to compliment my ND.


My First Celiac Kiss :(

18 July 2012 - 02:43 PM

Well, I'm oddly shy about writing personal stuff online, but I need some advice or something! I'm newly acknowledged Celiac (I was biopsy diagnosed in 2003 and ignored it with the help of my own denial skills and some idiot doctors). Now I'm gluten free since the beginning of June and feeling better, but oh man do I have reactions to CC!

I'm also single and dating which is torture enough! A guy I'm dating kissed me (for about 15 minutes :P ) last night a couple hours after having sliders. I also just remembered he had a sip of my drink right after the sliders. I GOT A STOMACH ACHE! (and my symptoms recently had not been tummy issues - they were neuro). I've seen and read a bunch of the past threads on kissing here, but it seems some people don't have issues and maybe there are a TON of people without issues who just never comment because it's not of interest to them?

So, here's the problem. I still get stomach aches a lot since I'm healing and still determining whether soy, dairy, etc are issues, so how do I know if I need to worry about this? Could the stomach ache have been something else like soy? I'm keeping a strict food diary and DID NOT eat in the restaurant where we went on the date. My doc has me preparing all my own food because I'm getting sick when I eat out no matter how gluten free the food is. There's a chance it could be cosmetics that I have not yet eliminated from the house yet, but I'm trying to feel that situation out as well before replacing stuff like shampoos with wheat.

Problem number two... I don't know how long I'm going to date the guy and I have a feeling telling him to brush his teeth before kissing me may very well secure that fate. :)

What do I do? With him, or with anyone else I end up dating and kissing? I can see working this out with a partner that is more permanent, but this is tough. Lord, I'm 40 years old and I feel like I'm learning about birth control for the first time or something. This is ridiculous.

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