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Member Since 12 Jul 2012
Offline Last Active Apr 20 2015 09:17 PM

#928534 Discussing The Newbie 101 Topic

Posted by on 26 August 2014 - 03:34 PM

I just wanted to mention in the list of blood tests to have/vitamin + mineral levels to have checked, I noticed vit D wasn't on the list, and I'm pretty sure that's an important one for all of us to watch.

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#919913 Super Cranky, Terrible Day. Thinking Of Hunger Striking

Posted by on 11 June 2014 - 01:47 PM

I know... the bad days are soooo BAD... and so long. It make me question my entire plan. Am I eating the right things, is there something I'm not doing? I want to outsmart the process somehow but I think it's really out of my control. I can't possibly do more than I'm already doing.


I wish I could take a day off from all of it, eating, water, supplements, and not think about it, just be... for one day. I figure I don't dare drop the ball though, so I try to stick to my plan.


I'll be glad when I get to the most days are good stage, I'm not there yet, but it gives me hope that I will be. That helps a lot. I believe I will get there.

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#919899 Super Cranky, Terrible Day. Thinking Of Hunger Striking

Posted by on 11 June 2014 - 12:03 PM

Jamie, so sorry to hear that :(  We're all in this together.


I'm also having a bad day and discouraged... yesterday was a great day. It changes so fast and it's hardest having a bad day after a good one. It's like a wave we ride as it goes up and down. When it's down, it feels like it won't go up again... but it always does!


I'm trying to remember that the good days are my life, and the bad days are just a temporary interruption, until I'm back to feeling like who I really am again. That could be as soon as tomorrow or even later today!

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#919194 Chronic Constipation

Posted by on 05 June 2014 - 01:03 PM

....Lastly  your  gut  may not  be  able to handle  a lot  of  protein, fiber   while  it is  in a  state  of  distress...

I  think  in the  beginning  it  is  best  to  eat  very  plain , unprocessed healthy foods...boring  Yes,,, but  it  gives  the  body a  chance to overcome  the  years  of  damage ( torture)  we  subjected  it  to....


I have different doctors suggesting different things and I'm not sure what to make of it. My GI says plain soft, low fiber foods help a distressed gut and my ND says protein and fiber help motility to function.


I'd be so interested to know what others experience has been with this.


I was doing really well, had found the right balance of soluble and insoluble fiber, then trying the wrong food has caused inflammation and C to flare up again. I'm afraid having less fiber and protein will make my C worse. I can't say I'm really in the beginning at this point, I've been gluten and grain free for two years but adjusting my diet at all can still really throw off my digestion.


My current diet is limited to fruits, vegetables, almonds, and homemade slow-cooked chicken with broth, so fiber free isn't an option unless I juice everything. I was seeing good motility response before when I ate the chicken but I'm not sure if that's the case right now.


I've continued with my usual diet but I can't say my gut is happy at all right now or improving after a week and a half since the wrong new food threw everything off (I have developed an intolerance to fish in the last couple months, and my ND asked me to try an Omega 3 fish oil cap, assuring me it didn't have any protein in it and wouldn't cause any problem). Wrong advice!  It completely messed me up. She also insists that continuing with the protein is essential to healing, especially chicken.


I want to help my gut heal after this latest fiasco and I'm not sure what the right course of action is when it comes to my diet.

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#918132 Diagnosed 5 Years Ago, No Symptoms. I Don't Care Anymore.

Posted by on 28 May 2014 - 11:10 AM

I think one reason so many of us end up so sick in our forties, like myself, is probably because I didn't have any symptoms until a couple years before diagnosis. I'm sick enough now that I must have had damage long before I had any symptoms. Once the symptoms finally kick in, it will hit you like a train wreck. I have also lost my career and social life completely... for two years now since going completely gluten-free. Gluten is only the beginning. I've had to give up all grains, dairy, desserts, any processed foods at all. I still don't know if I will ever get back to living a normal life again. Don't let that happen to you.

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#917465 So Frustrated Not Better Yet

Posted by on 23 May 2014 - 10:42 PM

Just wanted to comment on the original info in my post about solving my C problem. I did get the nasty but effective stuff from my DR. that I'll be drinking tomorrow. It won't be pleasant but it should work. I'll be on clear liquids for the day tomorrow, and on soft foods for three days after that.


It's scary to feel afraid something will get stuck inside my colon and not come out. I've been here several times before and it hasn't happened yet, so I guess I'll be ok this time too. I haven't died yet. I have felt sick enough a few times to think I might, (or almost wish I would) when I feel that bad. I have improved a lot though since the beginning when I was throwing up. That almost never happens now.


Now that it seems as though I have my food intolerances figured out (fingers crossed) I'm hoping this will be a fresh start and I won't need to drink this stuff again. Whatever happens it will be ok. I'll get through it like I always do.

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#917406 So Frustrated Not Better Yet

Posted by on 23 May 2014 - 04:05 PM


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#917399 So Frustrated Not Better Yet

Posted by on 23 May 2014 - 03:48 PM

The sugar cravings definitely can go away. I know that my taste buds have changed a lot since I went down this road.


I'll be glad when I get to that stage. Not there yet. Today I'm at the "what made me think I could do this?" stage. I know that will pass. It's a loss to give something up and there's a grieving process. When I start to feel better it will pay off, and I will have made an investment that will keep me going, in the same way that it get's easier to keep on a plan to lose weight when you see those pounds start to come off.


As I heal I can look forward to adding more foods into my diet that will be a lot more satisfying than sugar ever was. This is the second day sugar-free. It will be exiting when I can say it's been a whole week! I'm actually thinking of going to by some gold star stickers so I can put one on each sugar-free food diary page!

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#915696 Fresh Coconut

Posted by on 10 May 2014 - 10:05 PM

This isn't exactly a recipe, but I bought and cracked open a fresh coconut tonight. If you've never tried it, and can tolerate it, there is nothing like eating coconut fresh, right out of the shell. It stores well in a container in the fridge. My grandmother used to have it when we would visit her. It's a food that I've reintroduced successfully, and I don't have many of those, so I'm pretty exited about it. Just use caution removing it from the shell, it's a little tricky at first until you get the hang of it, but it's well worth it :)


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#915695 It Was Supposed To Be Over At Gluten Free! Help :(

Posted by on 10 May 2014 - 09:42 PM

It's just... I'm only 17 and these symptoms appeared so suddenly. My doctor even said that the healing process would be quick for me due to my age and the minial damage done to my intestines. Yet, I've been gluten free for over 4 months and I feel worse...
Do you know of any complications from Celiac Disease that could still be causing me suffering?


I can't imagine dealing with this when I was 17, it must be so hard. It's true healing time is supposed to be shorter the younger you are. I have usually heard 6 months is the minimum time to feel better. I think it's really too soon to be concerned about any other complications you might have. What you are experiencing is very normal at this point.


It is very common to have food sensitivities other than gluten after going gluten free. I couldn't tolerate any grains at all, for example. I stuck to whole foods, nothing processed - the more you can do that the faster you'll heal. You get used to it. Over time you find out which foods you can tolerate and which ones you can't. Figuring that out is what takes time more than anything.


I tried "gluten-free" foods but all of them made me feel bad. You do have to be so careful trying those foods, because some will claim to be gluten-free, but not all of them are.


I'm not sure if you're keeping a food journal - writing down what you eat and how it affects you. It sounds hard to do, but it's the best way to figure out the right foods for you to eat. I know this whole process is overwhelming, so just try to make positive changes as you are able to. It will pay off.


There are a lot of people on this site who have dealt with these things longer than I have. They've been through it all, and any suggestions they make are to try and spare you from going through what they did. No one is trying to judge you, I promise. Everyone here is genuinely concerned about you and wants to help.


I hope your family is supportive and you have some friends that understand. There is a section on this site that's only for young people like yourself. It might make you feel better to talk with other young people so you know you are not alone.


Male sure you take a break from worrying about all this stuff sometimes, and take time to do some fun things you enjoy :)

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#914969 2 Years Later And Still Dealing With Major Symptoms...

Posted by on 03 May 2014 - 09:33 PM

I have also been gluten-free for 2 years, but I'm not better yet. For me other food intolerances have been as big an issue as gluten. I think someone mentioned that they are grain free. I could not tolerate any grains or processed foods from the start. I know there are others who have had the same problem.


I don't know if a Naturopathic Dr. or someone like that could help you, by looking at your situation from a more holistic, natural perspective? Mine has been very helpful with taking the right vitamins and supplements, and balancing my diet. I never realized before how serious vitamin deficiencies can be.


I know how frustrating it is to keep working at it to try to figure it out. It's like a puzzle and it takes a long time through trial and error to figure out which pieces fit. Just when I think I'm going to lose my mind, I find another piece that fits and it teaches me to never give up in my search to solve this mystery. I believe there are always answers to be found if you keep looking :)

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#914700 Some Probiotics Can Increase Histamine

Posted by on 01 May 2014 - 11:48 AM

I've seen a huge difference going low histamine. The allergy-like symptoms have improved, I see positive changes in my digestion, and my joint pain is better so I can sleep more comfortably again.


I have more foods to choose from now, so it's easier. I'm on the right path, getting better, and moving forward  :)

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#912348 I Have A Life Again

Posted by on 11 April 2014 - 06:11 PM

Ummmm.... I want to change my answer, as they say.


I posted recently feeling unhappy. The title was “Tired of Having no Life” and one of the responses I received changed everything. The response said that having a life, or not, is a choice. So, I’m choosing to have one.


There’s nothing wrong with a good rant now and then, we all have the right to do that, and with good reason. I’m talking about a change of overall attitude.


I realized that I do already have a life and it 'aint bad. I'm fortunate in many ways. I was stressing myself out living in permanent limbo, waiting to live again.


I'm much happier now enjoying my life as it is, taking each day as it comes, whatever that may bring. I've always been an optimist and living in limbo was too hard. I've let go of the guilt and stopped having such specific expectations for my life.


In some ways being sick has been a gift. Some of it has to do with the recent new food intolerances I've acquired. At some point you have to say, OK then, the ride may be bumpy, but at least it's a ride, and I'm not the driver.


I really realize what I'm going through is not my fault, and control is not in my hands. I was always too hard on myself before. I'm mellowing in a new way. I’m no longer putting pressure on myself according to what I think others’ expectations are. It’s a relief not to feel stressed anymore... and a million times better for my health.


No, I haven't "found a new religion" or "had a drink". I just became me again. I missed me. Glad I'm back.


Attitude is everything :)

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#912201 Cc From A Teflon Pan?

Posted by on 10 April 2014 - 05:01 PM

Bummer! Those tree pollens and Santa Anas!  I don't get the inhalant stuff... so far.


The gurgling stomach yes. For me it's hunger from trying to figure out what to eat now. The learning curve is straining my brain. I'm getting the hang of it though! I'm cooking tonight!


Hope it's less windy for you tomorrow CL!

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#912077 Cc From A Teflon Pan?

Posted by on 09 April 2014 - 07:57 PM

Just to be clear - the poster is NOT talking about celiac disease cc.

Perhaps a histamine forum would be a good place to ask this? I have no clue if veggies leave a residue. Isn't the high histamine foods about eating smaller amounts but not completely eliminating? Like I said.... I don't really know and maybe people who deal with this more would know.


There are a few of us on here with histamine issues. It's a leaky gut related problem that stemmed from my gluten intolerance. That's why I posted it in "other food intolerances". CC is cc, so I was wondering about the possibility of teflon soaking up things like oil, garlic, soy, like that, just like it could do with gluten or anything else that becmes a problem food after dx.


If there is a histimine forum I'd love to know about it though!

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