I finally found a healthcare professional who is helping me get better!!! She's the Nutritionist on the Celiac/GI team at UCLA (but I see her through her private practice for a lower fee). She has Celiac herself (I'm NCGI) and was willing to do sessions over the phone until I was well enough to make it into her office. Maybe she could do the same for someone who lives too far away to see her in person.
First she resolved my severe C problem which seems like a miracle after struggling with it for 5 years, (and after seeing 5 different Doctors). She thought my C problem was helping to cause my food intolerances, not just the other way around.
Now she's helping me re-introduce new foods into my very limited diet one at a time, in very small amounts (like 1/4 cup at a time). She explained that eating a normal size portion of a new food can cause a reaction just because my body is no longer used to it, when very small amounts to start can be ok, then can be gradually increased. So, I'm testing foods one at a time, and some of them are working out for me. Lots more testing to do, but each new food I can eat gives me a little more freedom.
Never give up... there is always answer