I'm trying to check all my health and beauty products for possible gluten. I've seen a long list of ingredients somewhere that are not safe, but I can't seem to find it now. Does anyone know where I can find that list? Don't know if it was on this site or another one. It was a very long list of chemical names you find on shampoo etc. I don't see what I'm looking for in the info for newbies.
I've made a list of all my products, and finally have the courage to check them all, but I'm having brain fog and not getting anywhere after lots of searching.
Also I've seen a list of safe products, but can't find that either.
Next week it will be 6 mos since I've been gluten free, and I'm still feeling very sick off and on with flu like symptoms. It's been 6 weeks since I last had the most recent food that gave me the same reaction as gluten. There doesn't seem to be any indication that I'm directly reacting to something. I start to feel better, then sick again. Today fruit is the only thing that my body likes. I had to call in sick today.
Is it normal to be having these symptoms still? Feeling scared I may have something else wrong with me. My thyroid tests all came back negative but my ND isn't convinced they were accurate. She still thinks something else is wrong. Doctors don't like not having definite answers.
I really need opinions. I'm freaking out a little here and losing hope.
I've seen some really brave posts on here recently, so I am going to talk about my worst symptom. Severe Chronic Constipation. More people seem to have D on this site, and I never do, so I've been embarrassed to bring up my problem. I've been having severe constipation for three years, trying to figure out why. Then I found out about my gluten intolerance, and started eating gluten free. I start to have normal bm's then get "glutened" again when I try a new food because of leaky gut, and my body has to start over and hasn't really had time to heal enough to see good results long term, even though I've technically been gluten free almost five months.
I occasionally I have a bm on my own, but mostly I am dependent on plain water enemas and occasional colonics. Please no comments from people concerned about that. It's not dangerous or habit forming like docs will tell you. It's perfectly fine to do as long as I need to. I'm also not looking for constipation remedies. I've tried everything that helps most people. Walking, more water, fiber, medications, you name it, I've tried it. It doesn't work for me. I'm not careful about always eating organic though because I can't believe that could be enough to cause this.I take probiotics. I eat nothing other than fresh fruit, raw vegetables, beans, nuts, and water. That's all I can eat with having a horrible gluten like reaction. I use evap cane juice in my smoothies and salad dressing, sea salt, pepper, olive oil. Right now I'm drinking Kangen water to see if that helps.
What I would like to know is has anyone else experienced this symptom like I have from an intolerance to gluten or leaky gut? Did it get better? Can anyone relate? I'd like to know I'm not alone, and it would be encouraging to hear any comments about anyone who's recovered from this. Between the constipation and gluten symptoms, I'm sick so much, I have no life to speak of. I'm happy if I can make it to work.
Well, it's for sure, add another food to the list of things I can't tolerate that gives me the same reaction as gluten: coconut milk, even the canned kind with no additives. The symptoms are specific and unmistakable. I think it's been causing problems longer than I realized. In a way that's good news, just to know that.
The bummer is it probably means I'll still be sick like I have been for another month. That's how long it takes to recover each time I've tried to add a new food. Now that the tears have passed... I'm looking at this as a positive because it's another piece of the puzzle solved. It helps a lot to know you all can relate.
I've been agonizing over the time it's taking to heal, as I've mentioned in previous posts. Then I made an encouraging realization. Recovering isn't taking as long as I thought. I keep thinking I've been gluten free for nearly five months, which is technically true, but I've been developing sensitivities to other foods for the last three months, and was "glutened" a few times each of those months, not by actual gluten, but by other the other foods I've developed the exact same symptoms to: rice, eggs, and nightshades. Each time I was getting better before trying another new food. So, there is a direct link to my current symptoms, and still feeling bad makes sense. I've only been "reaction free" since eliminating the last problem food. That was only three weeks ago! In reality I've only been "gluten" free for three weeks! No wonder I've been so sick. There aren't any foods left to "test", so that's great. I still have to eat the extremely limited diet I'm eating now, for a long time, but I won't be eating anything else new, so I really can start to recover, finally. I already am.
Thank goodness I kept track of each dietary change on my calendar, otherwise I wouldn't be able to put these pieces together. I think the brain fog, depression, and anxiety (all part of the entire group of symptoms I experience) has kept me from seeing this pattern sooner. I can tell my mind is clearing because I'm starting to think about things I haven't thought about in a long time, like my future, instead of just trying to get through each day. I'm feeling a lot more positive, listening to music, working on my artwork, and exercising again.
Things do get better. Even when I have any other setbacks, because, of course, this road will never be entirely free of "bumps", I can look back at this post and others like it, and remind myself to be patient, and that the recovery will come.