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justlisa

Member Since 12 Jul 2012
Offline Last Active Sep 15 2012 07:25 AM
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#819613 Popcorn, Indiana Kettle Corn

Posted by justlisa on 24 August 2012 - 06:13 PM

From www.popcornindiana.com :

Is Popcorn, Indiana gluten free? Yes. Popcorn and other corn varieties are naturally free of gluten. Gluten is a protein typically found in barley, wheat, rye, their cross-breeds (triticale), and by-products such as flour and MSG. While none of our products contain any of these ingredients and popcorn is a gluten-free grain, we had a FDA-affiliated lab analyze our popcorn because we are very concerned about our customers. The test results found no traces of gluten using the AOAC/CODEX Certified R5 method at a 20 parts per million accuracy level.



So.. Out of concerns (the company's), they've found NO traces of gluten...none. They are only stating that the testing would "find" gluten with an accuracy of up to 20ppm. Pretty definitive, IMO.

It is my opinion that, to be safe, the company is merely ruling out any potential cross-pollination that could occur in the fields. The fact that they don't have to...well, that's even more in their favor. That's pretty darn responsible, IMO.

Coupled with the fact that NONE of their products contain gluten AND it is a dedicated facility? Oh and Non-GMO corn? I'd say their products are about as safe (from gluten) as you could hope to, possibly find.

If I was looking for a "commercial snack product"...I would RUN for the nearest bag.
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#819439 Fell Off, Now To Get Back On!

Posted by justlisa on 24 August 2012 - 12:05 AM

Personally, I think the people who don't think of gluten as POISON are the ones who struggle the most....are the most tempted...have the most doubt. Even when they've proven what gluten was doing to them...

Somebody should make a Gluten Scared Straight video...with the sickest among us being interviewed... It should be required viewing in medical school, too. IMO
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#819173 Just A Little Vent But Advice Would Be Apprciated

Posted by justlisa on 22 August 2012 - 02:52 PM

My son just finally stopped Pre-empting every snack given to his friends with "it's gluten-free because my mom is allergic".

The first 9 months or so brought lots of eye rolling from him...and more than a few nasty remarks.

One of his friends, whom I adore, eats everything I give him and says its delicious. I love that child.

But, to both his credit and hubs neither one came unhinged in the Las Vegas airport in our futile attempt to find a gluten-free meal. But I did - felt horribly guilty, not to mention panicked by feeling "trapped without food".

Anyway, most people have no idea what being gluten-free entails not to mention other F's - and ignorance and rudeness abound. Mostly I've found, it's ignorance. At this point I figure it's payback because I'm sure I've had my dumb and rude moments...I like to think I'm learning more than gluten-free.

I have a hard time making new friends. My mom thinks I should go into a field needing security clearances because according to her, I am NOT forthcoming and keep about twenty walls up.

Anyhoo - you do have to appreciate the changes gluten-free forces on you and those close to you. I don't think it's fair to act like it isn't a PITA sometimes. I think it does complicate relationships - or has the potential to. It probably also exacerbates the weaknesses...especially if the people involved can't meet in the middle and work on it.


Well said...

My 17 yr old son is that kid that other mothers love... They could be cutting out a kidney and he'd just smile and ask if they need the other. But...for mom? Sigh...

I tell him, almost daily, that there's a reason God makes mothers love their kids... I so love 17... ;)
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#819165 Being Celiac In America Is Unacceptable!

Posted by justlisa on 22 August 2012 - 01:49 PM

Yup pretty much. You cannot trust anyone these days it is a shame. You never really know what you are getting. Companies are greedy and lack values. I think the value system as a whole has been depreciated in America. It seems it used to be that you didn't give/sell anything that you would not be willing to use yourself or make something you would not feed your kids.

I believe in self-accountability but I also believe in responsibility for our neighbor, not just because we may get sued but that it is the right thing to do.If I sold a neighbor some lemonade and did not bother to tell them that I chopped the lemons on the same board I made peanut butter on, I would feel responsible if they became ill for giving them something exposed to peanuts while I know they are extremely allergic.

Companies are made up of People who sell things to People and I do not believe they should be excluded of the same values, morals and responsibilities we expect of our neighbors.


The thing that sticks out, to me, with your example is that "you would know of your neighbor's peanut allergy"...how can companies "know" about the individual needs of their consumers?
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#818984 Magnesium Deficiency? Still Having Nagging, Chronic Complaints? Something T...

Posted by justlisa on 21 August 2012 - 04:06 PM

Please take the time to read this... So many posts here from folks who have "gone gluten-free" but continue to have some significant symptoms. Fatigue, constipation, etc. I see B12 deficiency, thyroid, etc as suggestions...but I haven't come across magnesium deficiency, yet. So, I really wanted to bring it up...

Magnesium is a CRITICAL element...used in over 300 of our bodily processes! Also, magnesium deficiency is EASILY MISSED (sound like something we're all familiar with?) because only 1% of our magnesium level is found in the bloodstream... only 1%.

This deficiency is linked to many symptoms and diseases.

I'm hoping that some folks in here will find this info helpful and a good starting point to help with recovery.

Oh and... The statistics that I've been reading indicate that well over 50% of us do not get our daily allowance...not even close. Not to mention that steaming, broiling, etc can "remove" this vital element from our diets.

http://www.krispin.com/magnes.html
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#818384 Five Guys And Fries

Posted by justlisa on 17 August 2012 - 08:37 PM

I really haven't eaten out since going gluten-free (it's a trust issue)...

But... Today, after my husband took me to my mri appointment, he was starving. So, we went to Five Guys and Fries so he could eat (I figured I would just sit, drink my bottled water, and watch him...lol). I mean.. I didn't ever really eat "fast food" BEFORE I went gluten-free so, I didn't really see it happening now, ya know?

Was I ever surprised!

They were VERY helpful and accommodating. And, to be honest, it was just about as perfect a scenario for no cross contamination as one could hope for really. The buns which are kept separate from the other foods and are grilled on a dedicated grill...just for buns. Fresh, hand-cut french fries...dedicated fryers. The don't deep fry anything else there!

I could watch the guy who prepared my food (donned new gloves).

I have to say it was a terrific experience and I felt so comfortable eating...confident.

Just wanted to share... :)
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#818379 I Made An Interesting Discovery Today!

Posted by justlisa on 17 August 2012 - 08:20 PM

For reasons I won't get into here, my full brother and I did not speak for a very long time (family dynamics...sigh). However, approximately 4 years ago, he found me on facebook and sent me a friend request... We've been friends on Facebook ever since...

So, lately, I've been posting a LOT about celiac/gluten intolerance/gluten free/etc. Today, I posted about how my dogs went gluten free when "mom" did.

My brother posted a very long comment about celiacs and how HE was dx 3 years ago... Blew me away!

I mean...once I started figuring out what my problem was (because the docs couldn't), I could easily see SO MANY "gluten" connections with my dad, grandmother, aunt, cousin, etc... (IBS, thyroid, etc, etc).

To hear about his dx...well, it just hit me, you know? I mean I can't tell you how many times I've heard, "there aren't any celiacs in the family"...yada yada yada.

Anyway, I just had to share this...
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#818200 Testing After Being Gluten Free

Posted by justlisa on 16 August 2012 - 06:16 PM

You say diagnosis instead of testing. ????

I did NOT have blood work before my endo. As I stated before, my endo and biopsy offered me a diagnosis. I'm certain I'm not the only one.


It was a sincere question... I really haven't come across that before...

I was just looking for clarification because "testing" was being discussed, but you said "diagnosis". From what I've been reading, very few get a "diagnosis" with positive blood work, anyway...

As for the rest of the discussion: There are SO MANY sick people who are struggling and unable to get an official diagnosis. It would be very hard, for me, to advocate a position (shorter GC) when I see so many who can't get a diagnosis when they've been consuming gluten all their lives. I would need to see some major advances in testing. Just my thoughts.
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#818116 Testing After Being Gluten Free

Posted by justlisa on 16 August 2012 - 01:03 PM

Seems to me that the advice of 3 months (by many members here and other forums I visit) for an increased chance of "accurate" test results is based on the experience of members AND the experience of others (many folks have stories of "false" negative testing).

As I've said before, I believe that the current testing is seriously flawed...and that, at some point, "they" are going to figure that out...

Personally, I could never consider a gluten challenge...I want to live... But, if someone I know is considering it, I'll recommend at least 3 months...

Just my opinion...
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#815434 My Biopsy Word For Word

Posted by justlisa on 01 August 2012 - 06:43 PM

I actually merely corrected some misunderstanding on your end. It seems you didn't handle that too well.

I never questioned the diagnosis, I only asked for the source of your information (to which you gave me a smart ass reply about using google and then gave me a misguided lesson on blood tests). The purpose of this board is to educate each other, is it not? By posting a scientific question I assumed you wanted somewhat scientific answers. My only goal is to keep an objective yet open mind. That's why I asked for your source of information - for my learning too. I'm not intentionally playing devils advocate to upset you.

I am not here to make you doubt anything. As I said your family history along with biopsy results make a convincing case for celiac disease. If I was in your shoes I would absolutely stick to the diet. It is hard at first but I've tried it for some months and it does get significantly easier (especially if your symptoms respond).



Davemu,

You've tried gluten free for "some months"?

I'm confused... Your profile indicates you've been a member since'04...and, per your posts in'04, you were getting tested back then... Did you test negative in'04? And, as a result, decide to not go gluten free? Are you having symptoms now (as you state you're, now, considering endoscopy).

When did you try a gluten free diet... any improvement?

I'm interested in what's happened with you over this amount of time...
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#814903 What Happened To Me? Could Celiacs Have Caused All Of This?

Posted by justlisa on 30 July 2012 - 05:10 PM

I cried like a baby...still am truth be told.

I know, firsthand, what you feel... I'm there...

I've been "dying" for the last few years. Can't tell you how many times I've said, "I probably won't 'be here'"..."I just want...blah blah blah...while I still can...", etc, etc. And, of course, I'd get the obligatory "you'll be fine"..."you're not going to die"...yada yada yada.

I would just want to SCREAM at people (more often than not, I didn't scream, though...),"I'm not looking for sympathy, you morons"...or the rest of that crap! I really think I'm dying here! Nobody really "got it". How could they, really? All I really wanted was to make sure my son was going to be "okay". I wasn't looking for a pity party. In fact, it wasn't the fact that I felt like I was dying that made me want to scream...it was all the people who were poo-pooing me...not helping me...making me feel like a crazy person. Even those who were watching me deteriorate a little more every day.

When you are that sick...getting worse EVERY DAMN DAY...and NO ONE can figure out what's wrong with you? When you can't do the simplest things anymore? How can you not feel like you're dying???

While I'm still sick, I have found HOPE that I could get better.

With all that commiserative-ranting aside...I agree about, perhaps, looking into an immune suppressor. I believe you need to mitigate some of your autoimmune responses while you heal. You're too sick to wait
hat out, imo.

We are here for you...and we "get it"...
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#814395 Losing Hope...

Posted by justlisa on 28 July 2012 - 01:07 PM

Well said, GFreeMO! People do get passionate about Celiac when they nearly die from it. I know that road well.
It's time people realize they do not have to live and die by what a doctor says. If you wait around for a diagnosis to come, you may end up so sick, recovery won't happen. There are huge limitations with the medical community when it comes to chronic disease and much of what they do is money driven these days. There is no money in Celiac disease, people. You recover on your own, through dietary changes and it takes a long time.
No pills, no surgery, no treatments. Just food and they don't have control over the food. Start to trust your own instincts on this and you'll get better. Listen to Irish......she's a smart lady!


Agreed! Probably right up at the top of the list of reasons "why" celiac/NCGI is the red-headed step child of the medical community...no money...
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#814382 Losing Hope...

Posted by justlisa on 28 July 2012 - 11:51 AM

You know what? People like Irish are the reason I keep coming back here..

I've read through this thread 3 times thinking I'd missed something. Good grief...every bit of advice/opinion she gave was done well...

I have to say this... I'm a grown woman and it's getting old the "walking on eggshells" that has to take place in here. And, you're probably not going to like this either but... I think some of the moderators are just a little too quick to chastise in here. I've yet to see anything that "crazy" and I've seen so many "interventions"... I can only speak for myself, but I'd prefer to come in here knowing I'm going to be treated like a rational adult. It really can be very insulting... I guess we will see if I'm allowed back?
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#813468 Awaiting Results!

Posted by justlisa on 24 July 2012 - 06:04 PM

Renee... Good for you... Hopefully, your actions will get you the answers you are looking for...

I would like to say, though, that his cavalier attitude (McDonald's) at the end is just another example of how completely "ignorant" the medical community is regarding food/autoimmune issues... Not "stupid"..."ignorant"... Sad...
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#813440 Misdiagnosed?

Posted by justlisa on 24 July 2012 - 05:08 PM

IrishHeart... Excellent post!
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