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mamacat

Member Since 17 Jul 2012
Offline Last Active Sep 03 2013 10:25 AM
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Posts I've Made

In Topic: Unexplained Weight Loss,increased Intraepithelial Lymphocytes On Biopsy &...

13 September 2012 - 05:51 AM

I had increased Intraepithelial Lymphocytes on my biopsy with no villous atrophy (Marsh 1) and my dr. diagnosed me with celiac, but I was at a celiac center so maybe they are more knowledgeable than a regular GI doc? I think you need a second opinion. I has negative tTG but very high deamidated gliadin IgA tests, so combined with multiple symptoms (joint pain, digestive issues, brain fog, dizziness, etc.) it was enough for them to make the diagnosis. I've been gluten-free for 2 months and most of my symptoms have definitely improved. Before self diagnosing, I would go for 2nd opinion and maybe run more tests. Did you get the deamidated gliadin tests? I've read that can be just as or more effective than tTG, but most doctors just assume it's the old gliadin tests which are unreliable, so they dismiss them.

You MUST be your own advocate and listen to your gut (literally and figuratively ☺). If you still think you might have it, go to another doc, preferably one who specializes in celiac. Good luck!