mamacat

I have been gluten-free for around two weeks now and I've noticed my tongue has become very painful- it almost feels like there are open cuts all over it, thought I don't see any on my tongue. I'm starting a food journal to try and track possible causes, but I was wondering if anyone else out there has had a similar reaction like this, and if it was caused by another pop-up allergy or to the gluten-free diet itself. I know people find out after starting gluten-free that they have other reactions to casein, etc. I haven't eliminated dairy or oats (only eat gluten-free oats) and have tried a bunch of new certified gluten-free product which I know may have new ingredients than what I'm used to.

If anyone out there has had this kind of painful tongue sensitivity I'd love to hear if it's commonly caused by certain ingredients or if it's different for everyone. If I can narrow mine down with the food journal I will certainly post an update. Thanks!

I saw Pizzeria Uno has a gluten-free menu, which includes gluten-free pizza. It got me wondering about cross-contamination and whether they were really using different pans, etc. to keep it separated.
If a restaurant has a gluten-free menu, should I still ask questions to confirm that it's truly gluten free, or are there standards for gluten-free menus so I don't need to worry about it?

I was wondering what the blue v. green v. greyed-out-blue folders mean on topic threads. Thanks!

I just wanted to share my story in case someone else is searching for more information on testing for celiac. I had terrible joint pain, stomach issues, fatigue, and other symptoms, which led me to get tested by my dr. The celiac panel was from Quest Diagnostics and included the Total IGA, ttG, and Deamidated Gliadin IGA tests. Of these, I was ONLY positive for the Deamidated Gliadin IGA test!
My results:
TISSUE TRANSGLUTAMINASE ANTIBODY, IGA = 3 (Ref <5=Neg) U/mL
IMMUNOGLOBULIN A =238 (Ref 81-463 mg/dL)
GLIADIN (DEAMIDATED) AB (IGA) =>100 (Ref >20=Pos) Units

This led two doctors to believe I didn't have Celiac because I was negative for ttG, which they claim is the old trusty test. I went to Jefferson Hospital in Philly that has a Celiac Center, and they were smart enough to do upper endoscopy. The biopsy showed I was POSITIVE for Celiac!!!! Just got diagnosed last week and starting gluten-free diet. Hope to feel better soon! I think the Deamidated test is far more sensitive at detecting Celiac, since it shows the antibodies themselves. I was more than five times the normal positive limit, which should've tipped off the first doctors I saw.

Just want to share with people that you have to be your own advocate. Don't let doctors brush you off. One dr. I saw didn't even realize the deamidated gliadin test is a newer, more reliable version than the old gliadin tests, so there is a LOT of mis-information out there. If you suspect Celiac, don't give up with testing and good luck!