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williamp302

Member Since 18 Jul 2012
Offline Last Active Jul 27 2012 12:20 PM
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Posts I've Made

In Topic: In Need Of Some Guidance

18 July 2012 - 04:25 PM

Oh boy. You need a better GI doctor. <_<

(1) blunting of the villi IS celiac disease. That IS your Diagnosis.

(2) the doctor is an asshat and should have told you more than "avoid wheat", since gluten is also in rye, barley and contaminated oats and other things that are cross-contaminated.

YOU NEED a CELIAC savvy--GI to take care of you! You are going to need follow up care for life.

(3) an allergy is ENORMOUSLY different from celiac disease (it is a misnomer that celiac is a "gluten allergy" -it is an autoimmune disease, not an allergy )

(4) I have celiac and I do not register on any skin prick tests as having a wheat "allergy". These are two different mechanisms.

Please, read about celiac disease so you know what you are dealing with.

I know you still do not feel well, but it could be because you are only avoiding wheat. There is a lot more involved than that, hon.

Trust me , I feel alot better than I did 6 months ago..I weighed 20 pounds less than I do now, wanted to sleep all the time, no energy, and red blood cell count was way down, felt like I was freezing all the time..None of those problems now since going gluten free.

In Topic: In Need Of Some Guidance

18 July 2012 - 04:21 PM

Oh boy. You need a better GI doctor. <_<

(1) blunting of the villi IS celiac disease. That IS your Diagnosis.

(2) the doctor is an asshat and should have told you more than "avoid wheat", since gluten is also in rye, barley and contaminated oats and other things that are cross-contaminated.

YOU NEED a CELIAC savvy--GI to take care of you! You are going to need follow up care for life.

(3) an allergy is ENORMOUSLY different from celiac disease (it is a misnomer that celiac is a "gluten allergy" -it is an autoimmune disease, not an allergy )

(4) I have celiac and I do not register on any skin prick tests as having a wheat "allergy". These are two different mechanisms.

Please, read about celiac disease so you know what you are dealing with.

I know you still do not feel well, but it could be because you are only avoiding wheat. There is a lot more involved than that, hon.

Ok, thanks for the advice..another question, if I avoid gluten but every now and then have an orange (one of the foods I showed an allergic reaction to) will that cause the same problems as gluten ? or is that something entirely different and won't cause any serious medical problems the same way gluten would? Thanks

In Topic: In Need Of Some Guidance

18 July 2012 - 03:26 PM

Whew! Where to begin?

OK, there is a big difference between an allergy and an intolerance. Allergies give you histamine reactions - hives, shortness of breath, and they can be fatal. (Think peanut allergy).

An intolerance is the kind of thing that can cause digestive symptoms.

And celiac disease is what causes blunted villi.

It sounds to me like you DO have celiac, but there is a lot more involved than not eating wheat. You can't have rye or barley either, and often celiacs cannot tolerate soy or oats. The dairy thing varies from person to person. There are plenty of us who have no problem at all with dairy.

To become truly gluten-free, you must learn to read labels. As a matter of fact, when you first start out, it is best to go with whole foods only - meat and fresh fruits and veggies. Processed foods can be really tricky. Some may SEEM gluten-free, but if they are made in a facility that processes wheat/rye/barley, they can be cross contaminated.

Also your pots and pans, especially scratched teflon, any cast iron, any wooden utensils, and your toater, all need to be replaced.

There is a thread for newbies that will explain more. It may seem impossible at first, but it can be done, and for your health, it MUST be done.

Now, about the testing. A colonoscopy is for the large intestine. Your villi are in your small intestine. It sounds like they must have done an endoscopy if they found bluted villi.

And it's a shame there are so may clueless doctors out there, but like so many folks, you have one of them. If you have blunted villi, you DO have celiac.

Sorry. It's not the worst diagnosis in the world. Once you get your diet straightened out you will find that you can live a completely normal life, with the possible exception of eating out. Ther ARE some restaurants with gluten-free menus, but the chance of cross contamination is so high, many of us won't take the chance. But we eat before we go, go join our friends and have either a salad, or just a beverage, and our social lives are not affected at all.

So go read the newbie thread, then ask lots of questions. We are here to help and give you support. You came to the right place, so welcome!

Ok it was just confusing when I showed no reaction to wheat..also should I get the blood test to confirm??