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Member Since 19 Jul 2012
Offline Last Active Aug 07 2012 11:26 AM

Posts I've Made

In Topic: Need Advice About My Kids

03 August 2012 - 12:45 PM

Unfortunately, the kids have already been off gluten for about 2 weeks.... would a blood test still show positive if they've been off gluten? Based on my symptoms, the rash, autoimmunity, etc, I feel pretty convinced that I could be a full blown celiac, so I want to make sure I do this right by my kids. I grew up a foster kid, and unfortunately had no opportunity to learn about my family's medical histories until the last few years, and most of that is secondary since many family members have passed away. I have no way to know if anyone of my other relatives have dealt with celiac. But I do know that I, personally, will not go back to gluten after ingesting some 2 weeks after going gluten-free and getting horribly painful stomach cramps and indigestion. NO THANK YOU.

In Topic: Need Advice About My Kids

03 August 2012 - 11:14 AM

Thanks Janet, for your reply.
I'm not too worried about a formal diagnosis, especially for myself. It's become pretty obvious that I have reactions to gluten, and now dairy. (I read that the chance of false negative for celiac is pretty high. My reactions to eating toast made in our regular toaster, and the crazy itchy rash that went away when the gluten did are diagnostic enough for me.) And I just found out that milk allergy runs in my family (I didn't grow up in my family, so I didn't know).
I decided to go ahead and have the kids go dairy free for a trial about 3 days ago after I had read that dairy can cause constipation, along with my new-found issues. I just feel crazy messing with their diets and not seeing any results. At first I felt so positive about this, like I was being a good, proactive mom. Now I just feel like a crazy lady! And my poor 6 year old daughter is just really hating all these restrictions!

In Topic: Could I Have Celiac? I'm African-American.

19 July 2012 - 01:46 PM

Maybe you can find a doctor who specializes in this in your area, or maybe a naturopath or homeopathic doctor. Or maybe even a nutritionist. It is my understanding that these kind of doctors are more likely to identify complaints with celiac or gluten issues.

In Topic: Could I Have Celiac? I'm African-American.

19 July 2012 - 09:39 AM

I don't have any definitive answers, as I'm new to this too, but I would say that if you have ALWAYS felt bad except for the time that you ate no bread, that is an answer. Whether that is celiac, I don't know. We have foregone getting a diagnosis from a doctor and have opted to do an elimination diet. It's only been 6 days, but I feel like I have seen/felt enough to know that something is going on. Your own body is the best diagnostic tool there is. Trust your instincts when it comes to your health!

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