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patti-ann

Member Since 22 Jul 2012
Offline Last Active Feb 02 2013 10:01 AM
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Posts I've Made

In Topic: I Look Pregnant!

31 January 2013 - 05:39 PM

patti-ann, I'm the wrong person to ask about that. I have the skin presentation of celiac disease (dh) & we tend to have less GI symptoms & when we do they are less severe. But I will say once again that we are all individuals & react differently. I want to say that I have read on here where some people do like you did & had a mild reaction rather than a reaction like the days of yore. And I want to say that in those same readings the people have gone on & had more gluten & gotten the strong reaction again. You might have just gotten lucky.

Hopefully someone will come on & answer your question who knows better than I do about it.

patti-ann, I'm the wrong person to ask about that. I have the skin presentation of celiac disease (dh) & we tend to have less GI symptoms & when we do they are less severe. But I will say once again that we are all individuals & react differently. I want to say that I have read on here where some people do like you did & had a mild reaction rather than a reaction like the days of yore. And I want to say that in those same readings the people have gone on & had more gluten & gotten the strong reaction again. You might have just gotten lucky.

Hopefully someone will come on & answer your question who knows better than I do about it.


squimming itch.... you are very informative and i will look into other posts regarding my reaction....and you will not believe this....
my brother in law had been suffering from a blistering itching rash since last fall..... been to doctors had all kinds of diagnosis and prescriptions of which nothing helped.....THEN i remembered your post regarding your condition and talked to my sister and sent her your email...... they went back to docter who reluctingly sent him to a dermatoligist and had a biopsy done on the blisters and sure enough tonight they found out he has celiac.......... they have been through hell!!!!!! and back! he also has other problems like emotional sleeping etc..... all kinds of stuff that celiac affects but you think you must have a neological problem.... and because of you he got diagnosed..... i never heard of the rash before you!!!!! it sucks but is so awesome they found out... he been going crazy with the itch... and the pain!!!!!! and of course i gave them the heads up about the hunger as you did me lol thank you so much!!!!!! they so relieved to see an end in sight.....
THANK YOU!!!!!!!!!
patti ann

In Topic: I Look Pregnant!

30 January 2013 - 06:37 AM

hey....there you are! lol
sorry to hear about the house :( ive had lots of let downs when it comes to buying houses...but i always think there will be another one and there always is!
and so the hunger pains do continue. one thing i have found to help a bit is i have switched to brown rice. seems to keep me fuller longer. question for ya..... had a bad friday night there was no food in the house and i broke down and ate half a jamaican patty. expecting to be extremely sick next couple days but wasnt that bad. bloated like 9 months pregnant, bowel irratbility and finally a bit of nausea. but nothing as bad as i use to get even with accidental glutening. do you know if the longer you are gluten free and the intestines heal does your body handle the gluten differently? not sure if im asking that question right? not that im gona start eating gluten occasionally at all but was really surprised i wasnt worse. usually i vomit my guts out next morning. just wonderd IF the body has healed quit a bit if it doesnt react so violently..as when it is extremely damaged and worn out? let me know your thoughts
welcome back!

In Topic: I Look Pregnant!

06 January 2013 - 06:28 AM

Greetings Patt-iAnn,

When I went to the doctor with my genetic test in hand my doctor said that I looked 5 months pregnant. Indeed I did. I had also been asked several times when my baby was due, when I was not pregnant. Now, I have a reasonable answer to that; I am just bloated by celiac.

I am 6 months grain free and am starting to deflate.

I went through times of intense hunger like you described. I also have times where I am not hungry for several days and force myself to eat. I treat my celiac with supplements, excercise, and sunshine. My diet is of notable importance. You mentioned B12 and a sublingual B12 has been working for me. I am improving and am so glad that I found out what the problem was and it can be helped.

Diana


thanks diana
i find now i only look pregnant after accidental gluten...then its right back to the way i use to be. i have been gluten free since beginning of april... and dealing with intense hunger now. i will try b 12 shots and see if that helps. i go threw days of coping and then days of depression but thats only when im out and about and cant eat on the go like the rest of my family and then find myself having to have my husband drive round and round trying to find something i can eat after everyone else has. just frustrated. i am happy though that i did find out what is wrong....even though it sucks. my life has improved so much....im happier for the most part and im not sleeping my life away i have energy again. my husband cant believe the difference. just had a bad couple days....... :( :)

In Topic: I Look Pregnant!

05 January 2013 - 09:20 AM

You should be fine with rice. The brown rice might or might not be too much for you right now as it's more difficult to digest. But rice is okay. You can even try the brown & see what happens. Just don't do any processed foods for a good long while. Some say 3 months, I would say 4 months to be safer. During that time read on here & you will learn a plethora of things. This will keep you from making mistakes which cause you to have to backtrack & loose ground. You also will have sooooo much more confidence about what you're doing when you shop & get into other foods. And dairy is okay too as long as you can handle it. Many celiacs have to cut dairy though for a time until your gut heals enough to handle processing the lactose. And I will warn you about soy --- lots, & lots of us have big problems with soy & soy is in a ton of things. Oh, & you can have Larabars --- they really don't qualify as a processed food as they are simply dried fruit & nuts; great for sticking in your purse & glove compartment for when you get caught out & hungry & they are yummy too! ALWAYS take some snack food along with you --- throw an apple in your bag or a hard boiled egg, nuts --- stuff like that.

NOW, I don't want to freak you out but I'm going to tell you to expect this & that way you'll know what it is when it happens to you if it happens to you. Gluten withdrawal. It's real. There IS such a thing. A few people get off w/o ever having it but most have to go through it. If you put it in the search box for the site you will come up with hundreds of threads about it. Symptoms include an "out there feeling" or brain fog, sort of dizzy, irritable to downright angry, fatigue, feeling like you have blood sugar problems among other things. Also, most get raving hunger & I mean raving! Constant eating. This is normal. Your body is trying to make up for what it hasn't had while battling gluten. It wants to repair itself, it wants to get nutrition. Don't worry about weight gain. Your body NEEDS to eat. So eat! I ate ALL THE TIME! I literally would vacuum with one hand while eating an apple with the other. EAT. You NEED it.
You will also find yourself needing more protein; especially in the mornings. Protein load but also with some fat so you process the protein. It's almost like you need to turn your meals upside down & have dinner for breakfast & breakfast for dinner.
And as far as carbs such as apples --- go ahead & have some fat with those carbs too --- apple slices with nut butter on them --- get it? Or an apple but also have a handful of nuts.

Oh, & patti ann, read this. It will really be a great help:
http://www.celiac.co...ewbie-info-101/


"squiming itch"
IM STARVING NOW!!! i literally get hunger pains all the time. i cry because food is not accessable when im out. i pack food everyday when i go work but when i have to go out unexpected like a funeral this week two hours from home it was so hard finding gluten free food in a rush only had two hours between visitations to eat. finally found thai restaruant that made me rice and chicken but the time it was delivered and i sat watching everyone eat.... we had to head back to funeral home. thank god i did order a chicken skewer so i could eat it in the car... but i find it embarresing, inconvenient and frustrating and so depressing!!! i never expected these hunger pains thank you for giving me a heads up!!! will this subside or is it part of my life now... would b-12 shots help or vitiman suppliments?

In Topic: I Look Pregnant!

30 July 2012 - 06:01 AM

You should be fine with rice. The brown rice might or might not be too much for you right now as it's more difficult to digest. But rice is okay. You can even try the brown & see what happens. Just don't do any processed foods for a good long while. Some say 3 months, I would say 4 months to be safer. During that time read on here & you will learn a plethora of things. This will keep you from making mistakes which cause you to have to backtrack & loose ground. You also will have sooooo much more confidence about what you're doing when you shop & get into other foods. And dairy is okay too as long as you can handle it. Many celiacs have to cut dairy though for a time until your gut heals enough to handle processing the lactose. And I will warn you about soy --- lots, & lots of us have big problems with soy & soy is in a ton of things. Oh, & you can have Larabars --- they really don't qualify as a processed food as they are simply dried fruit & nuts; great for sticking in your purse & glove compartment for when you get caught out & hungry & they are yummy too! ALWAYS take some snack food along with you --- throw an apple in your bag or a hard boiled egg, nuts --- stuff like that.

NOW, I don't want to freak you out but I'm going to tell you to expect this & that way you'll know what it is when it happens to you if it happens to you. Gluten withdrawal. It's real. There IS such a thing. A few people get off w/o ever having it but most have to go through it. If you put it in the search box for the site you will come up with hundreds of threads about it. Symptoms include an "out there feeling" or brain fog, sort of dizzy, irritable to downright angry, fatigue, feeling like you have blood sugar problems among other things. Also, most get raving hunger & I mean raving! Constant eating. This is normal. Your body is trying to make up for what it hasn't had while battling gluten. It wants to repair itself, it wants to get nutrition. Don't worry about weight gain. Your body NEEDS to eat. So eat! I ate ALL THE TIME! I literally would vacuum with one hand while eating an apple with the other. EAT. You NEED it.
You will also find yourself needing more protein; especially in the mornings. Protein load but also with some fat so you process the protein. It's almost like you need to turn your meals upside down & have dinner for breakfast & breakfast for dinner.
And as far as carbs such as apples --- go ahead & have some fat with those carbs too --- apple slices with nut butter on them --- get it? Or an apple but also have a handful of nuts.

Oh, & patti ann, read this. It will really be a great help:
http://www.celiac.co...ewbie-info-101/


THANKS FOR ALL THE INFO!!!
GOOD NEWS..... Ive been over a week without any accidents. :D im starting to feel and look better! thank you for your help and guidance from everyone who take time to post.
i still feel like theres a bit of a storm brewing down there and waist line hasn't shrunk any but sticking with the whole foods has helped. i also liked the post about thinking about "what you can eat & not what you can't" that certainly helped with my personal "pity party"!
it has been a rough 4 months with trying to be gluten free and having so many accidents. Having the advice from you guys has certainly been a support. I think im on the right track now!
Thank you!!!
I will prepare myself for the "gluten withdrawal" symptons. Im pretty sure ive gone through some of them but will prepare for the worst!