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Member Since 24 Jul 2012
Offline Last Active Jun 29 2013 03:18 PM

Posts I've Made

In Topic: Two Doctors, Two Diagnoses

20 February 2013 - 05:50 PM

That must be making you crazy! Can you get a copy of the biopsy report? If it shows signs of villi damage, I'd go with the celiac diagnosis myself.


As far as I know, there is no biopsy finding that can indicate "gluten intolerance but not celiac."


There are a few other rare causes of villi damage (certain parasites, for example) but non-celiac gluten intolerance isn't one of them. Maybe it's time for a new GI doc... where oh where are the enlightened ones?



My biopsy showed blunting of the villi, but not totally damaged.  It also showed that I had numerous leukocytes in the biopsied tissue.  That is why he wants to give me the gluten intolerance instead of celiacs disease diagnosis.  I'm leery to not get a true celiacs diagnosis now, because I have gone off gluten already.  My cancer diagnosis was missed for 18 months because my test were inconclusive and my doctor thought, "it's probably just messed up hormones from having a baby 6 months ago."    I am the queen of inconclusive testing. 

In Topic: Two Doctors, Two Diagnoses

20 February 2013 - 05:40 PM

Thanks everyone.  My endocrinologist states she views my diagnosis as celiac disease as there was damage to the villi and the biospy report states that it is consistent with early celiacs disease.  It's the GI doctor that isn't wanting to give the diagnosis.  After talking with him I have decided he doesn't understand much about Celiac's/gluten intolerance.  He was suppose to call me back today, but of course, he never called.


I have already had a total thyroidectomy due to thyroid cancer secondary to Hashimoto's Thyroiditis. I also have vitiligo.  So I already have a few autoimmune disorders.

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