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Dnwestover

Member Since 24 Jul 2012
Offline Last Active Jun 29 2013 03:18 PM
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Topics I've Started

Two Doctors, Two Diagnoses

19 February 2013 - 01:32 PM

I'm a little frustrated today.  About 6 months ago my endocrinologist requested the celiac blood tests.  I don't know what she requested or what my results were, but at the time I was told they were negative.  Then 6 months later, I am still not absorbing my Synthroid the way I am suppose to, so my endo sends me to the GI doctor.

 

I had my endoscopy Feb 11.  My endocrinologist called me the results today and told me that my results were positive for "early celiac disease".  The GI doctor called later and told me my results showed a gluten intolerance but not celiacs at all. When I questioned what my endo had said he back tracked and stated if my blood work would have been positive he would have given me the diagnosis of Celiac's Disease.  I asked him to get copies of the said blood work from the endo and call me back.

 

I'm frustrated by the two differing diagnoses. Although I know in the end, the result is the same for me.  Off gluten I go. 

 

Has anyone else ever had a biopsy showing early celiac's disease and not gotten a diagnosis?


Awaiting Lab Results

24 July 2012 - 08:25 AM

Hi everyone. This is my first post. I've spent several days reading over the forum before deciding to join.

I am currently awaiting some last test to determine if I have celiac disease. My story is a little different. Four years ago (at the age of 27) I had a total thyroidectomy. My pathology results of my thyroid were papillary cancer secondary to Hashimoto's Thyroiditis. Prior to this all my thyroid levels were normal, so the diagnosis took me a little by surprise. I also have Vitiligo, which is also autoimmune.

Ever since I have had my thyroid removed I have never been able to have a stable TSH level. I get my TSH, T3, Free T4 checked every 6 months and then my thyroglobulin checked yearly.

Last Friday I went to the endocrinologist to go over my labs and my TSH was at 11. I am suppose to be under 1 due to my previous cancer diagnosis. Six months ago my level was 2 and my synthroid dose was increased, so there is no reason my TSH should be at 11.

My doctor suggested testing for celiac disease since obviously I am not absorbing my medication the way I need to be. After reading through this forum and multiple other websites, I am positive I have celiac disease.

My symptoms include:
  • diarrhea/constipation
  • easy bruising
  • extreme fatigue (could be thyroid related)
  • gas/bloating
  • irritability
  • upset stomach
  • canker sores
  • heartburn

I have decided regardless of what the blood test state, I am going to go gluten free. I would like to see if any of my symptoms improve or if my TSH levels reduce to within normal range for myself.

I am overwhelmed with how to get started. I will not be able to have a gluten free kitchen at first. I live with my boyfriend and we each have one child from a previous marriage. Our children are 5 and 6 years of age. I have every intention of eventually getting our picky eaters to go mostly gluten free, but also realize that I will not be able to accomplish this overnight. While my boyfriend probably won't follow a strict gluten free diet, he will eat whatever I put in front of him and on his cooking nights will cook totally gluten free. I need to know some good ideas for a starting place to start gluten free. I am also starting with whole foods. I think it will be easier than trying to read lots of labels. I am going out today to get a new toaster, cutting board, etc. Any advice would be greatly appreciated!

Deanna