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Member Since 25 Jul 2012
Offline Last Active Jun 24 2013 10:26 PM

Posts I've Made

In Topic: Dermatitis Herpetiformis?

24 June 2013 - 10:07 PM

And also, since I am a new expert on lichen planus, I would suggest you do some image searching of that as well, because it is often associated with changes of the mucosa of the mouth as well. 

In Topic: Is My Biopsy Wrong?

22 June 2013 - 03:17 PM

Thankks Bartfull, but I guess I'm looking at it from the other side. What if it's a chance I don't have DH? I think it's worth it, given that it's such a huge, life long change. Lichen Planus clears up by itself after running its course, so it was not necessarily eating gluten-free that cleared my rash. I will always be eating low gluten regardless because I have had issues since infancy. But there is a big difference in terms of vigilance and lifestyle changes between being intolerant and having coeliacs. 

In Topic: Is My Biopsy Wrong?

22 June 2013 - 02:51 PM

Lyn is it possible that you could have lichens planus??


Adalaide I've not heard of gene tests being inaccurate. Have you heard of cases like this? I'm into day 3 now and still doing ok...

In Topic: "severity" Of Dh/celiac?

01 June 2013 - 10:47 PM

Hi Krystal, just the description of what happens sounded exactly like how my DH started and felt. And I'm not sure about the combination of gluten+msg etc, but it is worth remembering that those of us with DH don't often get the severity of illness from the gut suddenly after ingesting gluten. Mine is definitely a gradual build up. Some people can tell straight away,even with DH. I cannot. So it could just be a function of the build up process...also if you are really serious about doing the gluten challenge, you'll need to have some good 'active lesions' and make sure your derm biopsies from beside the lesion, not the lesion itself (my derm did both!) And I totally hear you about having a confirmed diagnosis for your own mental strength. it was extremely validating for me. Lots of people do fine without it, though. Let us know how you get on.

In Topic: Light Sensitivity

14 March 2013 - 12:04 AM

heat, humidity and sweat...absolutely make the itch worse. I mean if you're sweating, the salt goes into any open lesions, you're automatically itching and stinging! Here in India, the heat and humidity are huge factors, over 100 for most of the year, and not much less than that at night. In fact, we're planning on going back home to Aus for the hot season, partly because that's how bad it makes my skin. But more than the sun, I would say it's humidity.

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