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jlaw

Member Since 25 Jul 2012
Offline Last Active Jun 24 2013 10:26 PM
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#828759 Had My First Pity Party Last Night

Posted by jlaw on 10 October 2012 - 09:59 AM

Well done! So hard, but so worth it. If it were me, I'd totally treat myself to a gluten-free treat because "everyone else had their fun, and now I deserve mine!"
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#828657 Newly Diagnosed with Questions

Posted by jlaw on 09 October 2012 - 09:47 PM

L.J, I will never have anything worthy to add after spuirming has been on - she looks after us well and never seems to tire of having to repeat herself. A real treasure for all of us! But I did just want to say 'welcome' and add my hug ((((L.J)))
All the literature seems to indicate that mucosal blisters (i.e the ones in your mouth) are rare, and I'm sorry that you've seem to have acquired them :-( I'm sure this may have been covered, but can't see it anywhere - if you're going for the biopsy you need to still be ingesting gluten and ensure the biopsy is taken from next to an active lesion and not directly over one.
Do you have supportive people around you? Friends, family, church (perhaps we can rule out colleagues??) One thing I realised is that as a busy mum of young ones and working, I needed to claim some time for research, meal planning etc. I'm still in this phase and I believe it's important to be able to lay a good foundation and to ground yourself in the midst of chaos and new information overload.

Also, the emotional side of this is very real. There is much positivity on here and it is important to have that. But there are also a lot of very wise people who have been travelling this road for years and have got things in place to be able to maintain that positivity. Give yourself much room and grace as you deal with this.

Welcome to our little community
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#815226 Another One Via The Scabies Route

Posted by jlaw on 31 July 2012 - 11:18 PM

Hi friends. Just wanted to introduce myself as a newly diagnosed coeliac. I have been reading the forums for weeks while I was treated for scabies (sure that it wasn't scabies), and am so thankful for all the help I received just from you all being open. It gave me the knowledge and confidence to keep pressing on despite the initial scabies diagnosis ('no, it's definitely not DH"), and negative blood test results. Thank you. So much more helpful than medical sites! I am an Aussie living in India and was diagnosed by skin biopsy with DH yesterday. Looking forward to actually contributing from now on!
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