jlaw

Grrrr. After having to figure out my son's skin and all that mental stress, my dear daughter (nearly 6) has popped up with her own variety of skin blisters. A few on her fingers, two on her face. One on the back of her leg near her foot, all within the last 3 days or so. I'm thinking maybe dyshidrosis (relying on google here...) Does anybody have any experience with this? Not looking like DH I don't think because each blister is beautifully isolated. No redness around it. But wondering if it could be related.Would appreciate any advice :-/

Hi friends, I have been sent an article on DH, written by a dermatologist who has coeliac disease himself and specialises in DH. Only problem is it is electronic (PDF) and I'm not sure how to make it available. If anyone wants it, perhaps email? Or can I attach things in private messages here? Anyway, let me know if you're interested in figuring it out. Otherwise I won't worry!

...was the result of my son's skin biopsy. Which quite frankly, I knew before I even took him to the doctor's office. I was kind of hoping to clear up the 'non-specific' part! So needless to say a little frustrated. And a little mad. When I spoke to the arrogant doctor (as previously documented on this forum :-) ) we discussed that he would take 3 samples - two blisters and a clear bit. When I took the dressings off, I saw he took the first two only. So I'm wondering if that's what's led to this result? Is it possible that such an inconclusive outcome is due to just taking two blisters and no clean skin?

So yesterday I had my four year old biopsied for DH. It was one of the most frustrating experiences of my life. This is the same dr that did my skin biopsy after literally arguing with him that I did not have scabies. So I walk in with my son whose skin has started to blister in 4 different patches. The dr tells me my son has scabies. (Here we go again.) I say no. He says four year olds don't get DH. Fair enough, it's rare. BUT it is genetic, and his skin is blistering. It's worth following this up. So he says we'll do the blood test first. I say no. My blood test came back negative, and my biopsy positive. Let's just go straight for the biopsy. He calls me ignorant and says 'If the mother wants a biopsy, we do a biopsy' in such a condescending way I could've punched him.
(Can't believe he didn't learn from last time!)

So while we're actually doing the procedure (which let me tell you is painful for a mother to watch), he says to my four year old "how many times do you want to punch your mother for putting you through this pain?"


End rant. Take a deep breath, and remember I need to do this for my son.

ANYWAY, while we're there, he saw how bad my skin is. He wrote me a prescription for dapsone with no suggestion of follow up bloods. No, I won't be taking that under his care. When I brought that up to him, he said we could check my blood in a month.

He also wrote me a prescription for oral prednisone. This is the one I am confused about. I know it can be an issue taking prednisone before testing, but I'm done with my testing. What are people's thoughts/experiences about this?

Hi Friends, I'm only a few months into this (feels longer!). My DH is extremely bad so my gut symptoms are minimal, but I'm starting to notice my eyes getting sorer. It feels like I've been swimming in a pool with too much chlorine. Does anyone relate? I've read a little about sjorgen's - but they don't seem dry so much as sore. Also, if it was related to sjorgen's is there any logical reason I would notice this now after recently going gluten free?
Since I was little and thught I was wheat intlerant, I used to get a pain in my (always my left??) leg and have now started to feel it in my arm as well after a glutening.

Appreciate any advice, particularly the eyes :-(

Thanks