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Member Since 29 Jul 2012
Offline Last Active Dec 22 2013 05:00 PM

#894909 Severe Muscle Wasting

Posted by on 06 November 2013 - 04:17 AM


you don't have diarrhea, just constipation?  That still can be a sign.  I had diarrhea, bad...but my daughters, both of them had severe constipation.  The one with the less severe symptoms tested high on the blood test and had a lot of damage in the endoscopy.  The one with the worse stomach problems tested fine on both, but has the gene.  They told me to test her every year.  I hated seeing her in pain, so I pulled her off gluten completely.  It is never good to stop gluten before testing.  I did and my diagnosis took a while.  My daughters odds of having a possitive test result in the future are pretty high...I couldn't take her screaming in pain on the toilet, and not being able to walk down the street bc the pain was so intense.  That was it, no more.  I looked at her in the hotel room one day, in pain and said, that's it!  She agreed.

Another thing my other daughter had, was warts.  Those went away after her dx and going gluten-free.  Warts are an infection that the celiacs allowed to take part of her body.  When the gluten was removed, her body was able to fight off the warts.  Not many people talk about that...but I did read it somewhere, and then I watched it in my own daughter.

good luck!

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#814894 What Happened To Me? Could Celiacs Have Caused All Of This?

Posted by on 30 July 2012 - 03:59 PM

I tried to write a response, and I lost it....
I wanted to write to allof you, but I don't have that much stamina. You have all moved me to tears. It is nice not to feel so alone. I have felt so isolated. Laying on my couch for months, not being able to move, watching my friends drive by, water their plants, and no one stopped to visit. They all thought I was faking it, or it was in my head, i was depressed, stressed or unhappy in my marraige. I think even my husband believed that it was stress. He never denounced it. My dad never doubted me. He knew there was something wrong.
One friend texted me when she heard the diagnosis, " I heard the good news!!". I said, " what was that? That I have celiac disease? That I have the same rare tumor Steve jobs had? Or that im not just stressed??"
The next week my cat had to be put to sleep, it was sick and old, and I will spare the gross details. This friend responded with so much concern over the dead cat, and asked " what really happened?". I told her, I'm not sure, I think it was stress!"
The only people that got it were my friends that were nurses and those with celiacs.
I am so glad to be here.
I t amazes me how long a glistening can last. I was bad the last few days, today is up and down. It's hard for others to understand it. I know bc I used to be one of those others who thought, " what's the big deal.". Oh, I get it now, and I am so ashamed I ever thought that before.
Thank you all
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