JoyMurphy

I am severely sensitive to gluten. A glutening can debilitate me for @5 weeks.
My dietician in the celiac clinic has me drinking bone broth throughout the day to promote healing. I make big pots of it and drink it like tea.
From the beginning of the chicken broth, i have felt weird. A little sick to my stomach, bloated and just weird. To the point where I force myself to drink it.
Is there a possibility there is something injjected into chicken parts? I used a whole chicken and 6lbs of wings. I think the chicken was natural....but not the wings.. Which I have eaten before, not in broth, but never had a problem.
Any idea?

Sometimes, I am surprised I am still alive. I don't understand what happened to me.
My low points? My dad rushing me to the ER bc he thought I was dying. I was grey, eyes sunken, emaciated, dehydrated and babbling. The ER doc looked at me and said, I dont understand what you are doing hear or what you want me to do for you!
Or upon waking from a colonoscopy and the nurse cheerfully informed me everything was great! I burst into tears, told her I wanted to go to Boston and I wanted to get better. She told me, maybe I should talk to someone b/c I was depressed. I was sure she was telling me this was all in my head and I was making it all up.
My hell started in December (but can be traced back further) I became alarmed with memory loss. I would forget intense detailed conversations. I had poor word recall and name recall. Not normal stuff, I'm talking severe, people looked at me strangely. My fatigue worse than I had ever felt, 100x worse than pregnancy. Reflux and heartburn went through the roof and I was always nauseas. Distention and diarhea that more resembled urine. My psoriasis exasorbated, joint pain got to the pint where I couldn't walk down the stairs in the am, I slid down the wall. I was up 5 x a night to pee (not much) and had frequent night sweats, enlarged lymph nodes in front and back of the neck
I went to the dr. He suggested I could be diabetic or just depressed. He ran blood tests, called me a few days later w ith the good news I was just fine! Really?
I saw a homeopath for hormone testing to see if my mood swings and night sweats were early peri menopause. She told me she though the real problem was in my gut and I wouldn't feel better until I healed it. She thought I definitely had some food allergies, which made since bc, whenever I ate I got severely congested. She suggested I get off gluten and dairy and see if I felt any better. is take #1.... I got off gluten without a celiac screen. The good news, I started to feel better than I ever felt in my life, my color was better, swelling was down, only woke 2x a night..could now sleep on both sides of my body, reflux was better.
Then, it was like stepping on a hornets nest. I was getting sick all the time. I was blaming it on being cross contaminated everywhere. I was getting weaker and weaker. The homeopath did more allergy testing. I tested possitive for 35 + foods, and reacted to countless more. I was put on an elimination and rotation diet. I realized things I had felt for years and passed off, we're actual allergic reactions.
My body started to reject almost every food I put into it. I was losing a lb a day. In a month I had lost about 25 lbs. I couldn't get off the couch. I could barely walk to the bathroom or shower without passing out. When I walked it felt as if I was sinking into the floor. I needed to be supported when walking a longer distance. I could no longer drive or take care of my kids. That was the end of April.
I went back to my pcp...said something is not right please help me. My BP was through the roof, more blood tests revealed I had a high ANA, 640. My pcp sent me too a rheumatologist. Another week past. They thought I had lupus, the testing took 2 weeks, but the rhuemy told me it had nothing to do with my stomach issues. I burst into tears. No one was helping me. I called pcp, crying, demanding him to do something, he hadn't even ran an X-ray. So he told me to try to get in with a gi... Who thank god took pity on me and saw me. He said.."omg, you are a walking autoimmune disease!!!". Thought my neg celiac screen was high, especially for being off gluten for 3 months. He scheduled a colonoscopy and endoscopy. Then an upper gi and lower bowel series. Again everything looked great and I'm thinking everyone things I'm nuts!!!!!!! The gi wanted me to go to Beth Israel which was where I wanted to be. I was getting worse. I though, and my family thought I was dying. The drs all said I was fine.
I couldn't hold a coherent conversation. I would talk to someone on the phone and hang up mid sentence. My voice was weak and unrecognisable.
Within a week of getting to beth Israel my celiacs was confirmed, I was diagnosed with a neuroendocrine tumor on my pancreas. No one could understand my wide span of symptoms, the neurologist, hematologist, and rheumatologist thought I'd be better after the tumor was removed. Still not sure if anything else was wrong. Why was my Ana so high????
What laid me out for months where I couldn't get off the couch, screamed in pain if my legs were touched. Had a low grade fever everyday. Can only tolerate rice cakes, plain beef, pork, rice, steamed carrots, rice or white sweet potato, salt and pepper. Anything else I have reactions to.
After the surgery I can walk 6 driveways. I had a setback the other day that landed me in the hospital with pains as bad as the first day of surgery. No one can explain.
I have missed my spring and my summer. What happened to me?
The past few days I have been sick and exhausted from being glutened on Friday night. No one believes me that I could still be reacting to something that many days ago.
I just want to cry. Please help me
Joy

Hi,
This is my first post on this forum. I decided to break it into two separate posts b/c my issues are numerous.
I am wondering if any other celiacs have dealt with bouts of MRSA. I donut know if it is a symptom or the cause of my then undiagnosed celiacs going out of control. Since february of 2011 I have contracted MRSA 2 times. As well as multiple yeast infections. I have had stomach issues my whole life, failure to thrive as a child, late onset puberty, multiple miscarraiges, psoriasis, fatigue, memory loss, poor recall, ADD, you name it.
At the time of my celiac diagnosis, they also found a neuroendocrine tumor on my pancreas.
On top of the frequent MRSA, and the long running joke with my past pop, that anytime I go away I come back with some new disease. My ANA was off the charts. That is the nuclear antibodies. A normal high is 80. I was 640. This would point to lupus. However, I was cleared of lupus, rheumatoid arthritis, psoriatic arthritis, etc. it does fluctuate, and has been down to 320. That was both before and after surgery.
My question is, have any of you experienced or have any insight on this?
My next post will contain the rest of my nightmare that brought me here.
Thank you for any advice and help.
Joy