Ed in Baja

Three months post diagnosis, going well. But some weeks ago I went deep sea fishing, fought some really big fish, came home and was flat for a week, all the fatigue returning. Endo Doc says it might be adrenal problems as well, suggested "polyendocrine syndrome". Any body else have experience of this? I suppose it stands to reason, all of the hormones work together(I heave Type 1 diabetes too).
Incidently, this week did a challenge test with 2 tecate beers...the next day got a raging HD lesion in the same place on my thigh, have not had it for weeks before!

Just diagnosed with celiac disease, after 26 years with IDDM. Have had increasing nuero muscular problems for ten years, but always got "what do you expect, you have type 1". peripheral nueropathy, gastro paresis, diabetic myopathy, lots of things suggested, no Dx. one Dr even thought it was stiff man sysndrome. My very active life has gradually been curtailed, and I have coped, until the ataxia started, along with memory problems and mental confusion. A chance conversation with a Nurse PT when I needed an insulin Rx in San Diego led to investigating celiac disease. In 25 years no MD has ever mentioned the possibility...is it outside the comfort zone of the average endo? Oh well.

Over the years when the symptoms got bad I went on extreme diets, the first one being no carb. Later I tried Furhman's Eat to Live Vegan diet. Both helped greatly though at opposite extremes, the one being all protein, the other Vegan. What they had in common was no wheat.
Now, with a week of gluten free diet, muscle pain and ataxia is diminishing rapidly, but the mental slowness persists. Feels like being slightly hypoglycemic (but sugar is normal), or slightly stoned (yes, I inhaled... many years ago, so what) or having had a couple of drinks.
It is scary and frustrating.
I hear conflicting info...mental symptoms go away, no they don't, they get worse even if gluten free, the damage persists but only gets worse if you continue, on and on. I can only surmise that there are a wide range of responses, and the science is not clear. Anyone who has had similar experiences or knows something please respond.
I gave up my profession five years ago, moved to Mexico where it is cheap and warm. But now I am wiped out when I fish, dive, kayak (for a couple of days), can't carve wood anymore,can't windsurf, can't use a hammer without cramping, have trouble on ladders. Can't drink beer, really kicks me in the head. A pisser. Does this get better? I sure hope so.
Ed in Baja