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Nenee

Member Since 06 Aug 2012
Offline Last Active Aug 12 2012 01:00 PM
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Posts I've Made

In Topic: Endoscopy Showed Normal Bowel Does This Mean I'm Not Got Celiac

12 August 2012 - 07:51 AM

I started eating gluten free bread but I still bloated up after that does anyone else have this problem after gluten free bread? Unless I have an issue with yeast to?

Iv been eating gluten free for a few days now and iv noticed my anxiety is better and anger to!

Just don't get that a gluten free wheat free bread makes me bloat???

At this rate il be living of rice and water :-(

In Topic: Weird Lumps On Face But Not Blisters?

10 August 2012 - 11:37 PM

I had my camera tests and he said my bowel looks normal. He took random biopsies I think he managed to get one from the small bowel he said?

Would someone with celiac disease gave a normal looking bowel to the naked eye but then show up in the biopsies?

Did any one have a normal camera but the biopsies showed celiac? Iv got to wait 4 weeks now.

Since iv given gluten up my mood has lifted and iv stopped getting spots on my face :-)

In Topic: Weird Lumps On Face But Not Blisters?

07 August 2012 - 11:07 PM

Thank you so much

Finding others who no what I'm going through and actually understand is a relief

I don't no how to approach my doctor telling him to do these tests I'm from the uk and our NHS is not great compared to private medical care.

On the sheet iv got for bloods all he's written is Tga nothing else

What does IGA and IGG test for?

I will ask them to take at least 6 biopsies does this heal ok?

I'm worried I don't show as celiac then I will look like I am just mentally ill because there's no test for gluten in the uk they say is accurate.

I think I had intolerance test ige? Which said I had gluten issues but my doctors say it's inaccurate.

I just want a solid diagnosis so I can then say to people this is why I'm always ill

I will be going gluten free though iv never

In Topic: Weird Lumps On Face But Not Blisters?

06 August 2012 - 11:36 PM

Hi there

My doctors finally took note that my health is suffering and only because I felt pretty low depression wise and had low ferritin levels 5 years in a row, I'd lost weight and have diarreah first thing in the morning and it's dark sticky and foul smelling so I was referred to the bowel clinic

The doctor looked at my history and symptoms and decided he wanted to do a colonoscopy sigmoidoscopy blood test scan and biopsies. I'm due to have these Thursday and I'm hoping they will have answers

Iv suffered with IBS. Symptoms for over 15 years here are my symptoms sorry there's many:

Depression/anxiety/mood swings , brain fog dizziness a feeling of not with it And feeling really poorly that nothing worth getting up for

Bloating straight after bread, gas, discomfort and heavy feeling loose stools which smell disgusting and are sticky eww

Iv had peri oral dermatitis once rash all around my mouth that went after antibiotics but I now get these red lumps under my skin that you can see in different lights they are not itchy or have pus just lumps they are on cheeks chin side of forehead ,,, my skin also ITCHES. Like crazy early morning like I have insects crawling all over me I have lumps on my neck in my hair line but only a few I then scratch them and a scab forms they can be there for ages if I keep scratching. Iv had itchy palms to but not rash and itchy scalp but nothing there. Whilst pregnant I got lumps more on my buttocks and top of shoulders which have left marks.

I have dark shadows in the corners of my eyes

Very lethargic especially after eating wheat I feel very sleepy

Diagnosed with fibromyalgia I have pain in my neck and shoulders most days but it can go for a bit and come back(it was improved on a low carb diet)

Dry eyes

Thinning hair and notice I loose some

Ferritin levels low for last 5 years

Reactions to chemicals I sneeze and have itchy nose if I breath hairspray etc iv suffered with lots of sinus infections blocked and itchy nose to

Sores in my mouth my saliva gland on the bottom swelled up and was sore and my gums also my teeth have become very sensitive to

Bad pmt breast pain cravings for sugar

MIGRAINES. and dull headaches a lot which make me feel depressed I feel chocolate can set them off

Dry skin on my legs and front of my legs are dry scaly and itchy even when iv taken omega 3

Rumbling gurgling noises in my stomach after food

Disrupted sleep

And generally feel like I have a hang over

I had the blood test for celiac about 2 years ago and came back normal but not biopsies etc

I did a blood test for food intolerances about 15 years ago said I was intolerant to wheat and gluten egg whites and dairy I cut out dairy and only eat whole meal bread which I seem to be ok with in small amounts I did that up until now but iv got so much worse( I didn't really take the test seriously as so many people says it was accurate as done through a company and not my doctor as they say you can't do accurate intolerance tests) so I thought its rubbish and carried on for years eating wheat.

But I feel my immune system is in a mess and I feel pretty poorly. I'm worried about the depression side as I have 3 children 2 under 5 years and I just can't cope.

I feel going insane and have been back and to for years with different issues and getting no where

I think my husband thinks I'm just mentally ill but I no I'm feeling like this cause I feel so poorly.

Im worried because I did low carb for 4 months the test will see villi damaged. (I did wat small amounts of wheat though) and for 4 weeks before my biopsies etc iv eaten wheat about 2 to 3 times a day and boy I feel horrid )

Iv also put 4 lbs on in weight since I started eating gluten I thought celiacs were supposed to lose weight it's the opposite for me

Phew a lot there

Should I ask for any other tests?