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Nenee

Member Since 06 Aug 2012
Offline Last Active Aug 12 2012 01:00 PM
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Topics I've Started

Endoscopy Showed Normal Bowel Does This Mean I'm Not Got Celiac

10 August 2012 - 11:50 PM

Hi there

I had my colonoscopy and endoscopy the other day they took random biopsies and managed to get 1 from the entrance to the small bowel

He said my bowel looked normal but I feel so I'll on gluten it's in real. Iv also had low iron levels for 5 years and lots of symptoms

Has anyone ever had a normal bowel only for the blood test or biopsies to show celiac disease?

I'm so frustrated
:-(

Weird Lumps On Face But Not Blisters?

06 August 2012 - 11:55 AM

Hi

I'm due for my cameras through the mouth and bottom are with biopsies on Thursday etc

I had peri oral dermatitis once a while back for months but never had it since but I keep getting red lumps sort of under my skin but I can see them on my face all over my face cheeks chin forehead etc then it will go the next day only o return. I thought it was creams but I've tried so many but I keep getting these lumps.

I also get sores(odd one or two) in my neck line shoulder or bottom that gets a scab on it but I do pick :-(

I have lots of other symptoms but just wondering what a gluten rash looks like as I don't have th other type which seems severe like blisters and loads of them
Nenee

Few Questions Before My Camera Tests

06 August 2012 - 11:35 AM

Hi there

I'm due to have a camera through my mouth and bottom area where the doctor will take biopsies on Thursday and take a tgg blood test and scan etc

Prior to seeing my doctor I had gone with wheat for nearly 4 months although had in small amounts here and there in that time but mainly no wheat

Since learning I'm due to have celiac tests I've been eating lots of gluten for about 4 weeks now and to be honest feel really poorly
Such as:

I have loose foul smelling poos in the morning which seem sticky
Bloated after eating gluten with rumbling squelching tummy noises , gas and discomfort
Migraines and a feeling I have a hangover
Very tired
Had low ferritin levels for 5 years!
Depressive episodes with anxiety palpitations and mood swings
Itchy skin with the odd skin sore in my hair line bottom area but also I get red lumps on my face which are not blistered or have pus they are just lumps

Dark circle in the corner of my eyes and dry eyes
Hair thinning and I loose a bit everyday
Neck and shoulder pain most days
Sinus problems and reactions to chemical sprays such as perfume
Brain fog and a feeling of dizziness and not with it

Could this be celiac as I feel pretty unwell ;-(

Also would my villi still be damaged enough to show up on biopsies if I only reduced gluten for 4 months but en went mad and eaten loads of it for 4 weeks prior to testing

I also feel like I balloon with water when I eaten gluten my body feels heavy

Should I ask my doctor to test for Igg as I've read about it but I'm not sure what it's for I do feel a test on my immune system would be beneficial any advice?.

Please advise as I'm due in hospital on Thursday
Nenee