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GwenO

Member Since 16 Aug 2012
Offline Last Active Apr 02 2015 10:15 AM
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Topics I've Started

Disappointed

30 March 2015 - 06:33 PM

So my daughter is fourteen.  She was diagnosed with celiac at eleven.  She was very sick, hospitalized etc.  I'm not sure if they count TTG numbers differently in different places, but at that time her numbers were "greater than 400".  We've worked hard.  We are not a gluten free home, however, we are very careful - she has all of her own kitchen stuff, toaster, counter, utensil, pots etc.  She also suffers from OCD and eats the same things all the time with very little variation.  She seldom, if ever, eats out.  Her numbers have gone down consistently since her diagnosis.  As of August last year, she was at 45, so we were pretty pleased.  We've just had her tested again and it came back at 90!  The lab stated "the increase in number consistent with the patient ingesting gluten". 

 

I'm really upset about this.  The ONLY thing I can think of that's changed is that since she started high school in September, she likes to go to Starbucks once a week or so with her friends.  Usually a chai tea latte - we have checked that the mix is gluten free.  So my question: could she be getting enough cross contamination to spike her numbers, or should I be looking elsewhere?  I so hate to take this away from her.  It's a real pleasure for her and she's worked so hard.

 

I'd appreciate any input.


Sometimes This Really Sucks.....

04 March 2015 - 04:25 PM

Fourteen year old daughter wanted to go a school trip to France and Spain next summer.  They stay in people's homes - eat their food.  It's too risky I think.  Really crappy that this disease can keep her from such an amazing opportunity.  :(