Wow, gluten and dairy together - you are a brave one! Ledge talk down time. It sounds to me like you are experiencing something that not everyone goes thru but plenty do - it's called gluten withdrawal. Google it (you may also find it under wheat withdrawal). Wheat/gluten can act like an opiate and when you eliminate it, some people go thru a rough time - basically your body is in a crisis mode and needs to re-regulate itself. My husband experienced it with serious brain fog and joint pain, everyone is different. IF that is what is happening to you, the good news is....it should end very soon! Some good probiotics would help and a bland diet for now. Get past this rough patch and things will improve quickly!! I'm no expert, just living the life. If it doesn't pass soon, call your doctor.
Testing is not perfect, particularly with a young child. While a medical diagnosis is preferred, if your baby is obviously healthier on a gluten free diet.. make her gluten free (dairy and gluten problems often go hand in hand), it's only food. I suggest keeping a journal and note her reaction to foods, stool appearance & weight gain... I more than suspect you will see it! Then in a year, review her progress and your notes with your doctor and or peds gastroenterologist. Get her healthy momma, your instincts are right on & then discuss if it's worth getting an official medical diagnosis with the professionals. It isn't going to hurt her to live without gluten and dairy if you make sure she is getting nutrients from good sources, it sounds like it is going to help her!
Well done being your own advocate, it sounds like you found your answer (or at least part of it). You are not alone in your frustration with the medical community (I suggest you check out gluten dude's blog online for others doctor horror stories - so that you know you are not facing this frustration alone).
The good news is, gluten free is working! Given you've gone the medical route thoroughly - I'd suggest you keep doing what you are doing, while researching and interviewing new doctors - there are a few online referral sites for doctors kwoledgeable about celiac and gluten sensitivity (for example Dr Tom O'Bryan has a referral network of docs that go thru his training). I wouldn't obsess about a formal diagnosis and focus on doing gluten free right & finding good sources of information & guidance.
Tons of great advocates who understand your issues and frustration are on Facebook & twitter - and may be a help!
Ps- my weight issues were similar, I barely ate but was gaining & gaining - it wasn't fat, it was "bloat" - lots of it - lost it all gluten free (even dropped a shoe size, apparently my feet had been swelling rather than growing over the years)
Hey, this is a good thing! Yes, it is a hassle (especially at first when you are learning) but once you start feeling well again, it will all be worth it! There is a ton of great info on this site & on Facebook & twitter - those of us living the life tend to know better than our doctors!
I would suggest new posts & pans (particularly the porous ones like cookie sheets), ceramic places are probably of - plastic are not -but if you are sharing a kitchen with gluten eaters, having your own HANDS OFF plates & utensils might help. I read recently about a girl getting glutened from her retainer, I'd check with your doctor/dentist on that one. Kiss your daughter - just not on the lips! And ease of dairy, it helps!!
Good for you, it sounds like you have your answer! Sadly, it is all too common for real problems to be overlooked by doctors (it's all in your head) & anxiety/depression to be "treated" instead of finding the root cause. If all of your health problems vanished with a gluten free diet, it is probable that celiac or gluten intolerance is the problem. Its a good idea to talk to a doctor & if you don't like your doctor - find a new one! For an official diagnosis you would need to go back on gluten for a while and there is value to testing because there may be other damage that you don't even know about - its worth talking to a doctor about it. But never forget, you are your own advocate & follow your insticts, they've gotten you better!