My son had a similar situation at a 1 1/23rd old with constant vomiting, profuse diarrhea, rapid weight loss - for us it came out of right field because he had not had any indications of a problem before that - in and out of the hospital - doctors insisted it was a virus. Long story short, when he went gluten, dairy & soy free - his issues resolved quite quickly but he was starving. For about 6 weeks, I fed him ever 3 hours - and the meal sometimes lasted an hour. It was a lot of work! I kept the food simple but hearty & filling stuff like lots of mashed potatoes, rice, chicken, homemade chicken soup, roast beef, applesauce, gluten-free pasta. His need to eat constantly subsided as the weight came back in & about 6 months in he was back to eating on a normal schedule. Don't be afraid to overfeed him, he is only absorbing some of the nutrients you are giving him now. And be really cautious to avoid cross contamination - a tiny crumb can set him back. I made our whole kitchen gluten free for his safety & as it turned out, my little family of 5 was better for it (we learned gluten was the cause of all kinds of problems we were facing). My Tommy turns 3 next week & is happy, healthy & growing like a weed. Your son will be too! It's gonna take a little work from super mom but I promise, it will get easier than it is now. Feel free to message me if I can offer any advice or if you need someone to vent to (been in your shoes). Stay positive!
My 7yr old has struggled with this as well. Gluten free improved his toilet issues but it wasn't until we went tried dairy free that his problems resolved. If he gets glutened or has more than a little dairy, he's back to a few days of problems. It's worth trying, Almond Milk is a easy substitute and he noticed an great improvement within a few days!
My 1 1/2 yr old was diagnosed last year. Trust me, its not all that unusual.. but it is unusal that your doctor did the test and figured it out! Count your blessings...celiac dx is live-saving at a young age & she wont suffer the way countless others who go undx do! It is essential to get her body off of gluten immediately...she is not absorbing the nutrients she needs. You will see dramatic improvements on a gluten-free diet & SHE WILL BE FINE, HEALTHY!
The GI will want her on gluten to do an endoscopy to confirm dx and see damage/issues then advise u on nutritional/diet details. Peds GI offices are known for long waits for appointments...if they wont take u right away CALL EVERYDAY, ask to be on cancellation list, threaten to remove gluten before appointment...dont be afraid to push them. The one thing I learned is I needed to be my sons advocate & fight for him!
Dont be scared of celiac, it takes time to adjust but isn't terrible, I promise! Gluten ended up being the answer to all kinds of problems in my family of 5. Good luck!