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Member Since 22 Aug 2012
Offline Last Active Nov 06 2012 12:42 PM

Posts I've Made

In Topic: Thank You

27 September 2012 - 03:28 AM

Posted ImagePosted ImagePosted Image Thank you IrishHeart Thank you Posted ImagePosted ImagePosted Image

In Topic: "cheating"

22 September 2012 - 12:41 AM

[quote name='Adalaide' timestamp='1348060390' post='824286']
I wasn't sure what to say, but I guess I can tell you what it is like for me after consuming gluten accidentally. First, there is the GI symptoms that last for a few hours. Not so bad to be perfectly honest, but it is exhausting. Then, I'll really and truly be exhausted. I will sleep for more than half a day, usually more like 20 hours a day for about half a week maybe. When I can finally find the strength to keep myself upright in a chair for more than an hour at a time I'll still be so weak and tired (physically) that I can barely do anything for weeks afterward. I'll find myself going hungry because I can't find the energy to walk to the kitchen and actually make something and actually get a fork to my face afterward. There is nearly unbearable all over pain. Think like having the flu, only worse. I'll become so tender to touch that my husband loving resting his hand on my arm will be so painful I'll just start to cry. This symptom by itself is the reason I have a separate bed that I have to use for about 3-4 weeks if I've been glutened.

I promise, this is not the sort of thing you want to do to yourself on purpose. Not to know what it's like. Not to know if you are on the right track. I used to wonder that myself but as time wore on and I steadily improved a bit at a time I realized the small things I had been doing wrong but also all the things I had been doing right slowly added up. We've all done so much damage to ourselves for so long with gluten. We just need to have patience. I know it's hard. I assure you I am the queen of not having patience, but there is nothing to do in this case but simply wait. Put one foot in front of the other, get out of bed every morning with renewed purpose. Or with running feet and a full bladder... you know, whichever suits you. :P

Feel so sorry for you .
God Bless you
pray for speedy recovery

In Topic: So Confused - Could This Be Something Other Than Celiac?

04 September 2012 - 07:22 PM

Hi everyone... so I posted a few months back after having a c-section with my 2nd child and becoming extremely ill 3 weeks later. My doctors ran every test in the book and finally 4 weeks later my GI specialist came back telling me that my tissue transglutaminase was at 170 with 1-14 being normal and that I needed to stop eating gluten immediately to see what would happen. I was leaving the next day with my 7 week old baby to be with my parents in another state to help me get better, and since i had been basically unable to eat anything for the previous 4 weeks (while simultaneously nursing my baby), he told me not to worry about getting the biopsy, to just go gluten free and see what happened. He also said that although the test pointed towards celiac, he still 'didn't think i had it'. He seemed to think something entirely different was going on, although he said he didn't know what it was.

Once on the diet, I felt 120% better - within days. Better than i had felt in 5-10 years - I didn't even know i wasn't feeling well most of that time! However, it's now been 2 months since i started the diet and i'm starting to not feel that great again. Not like when i was super sick after my baby was born, but back to how i felt before I even knew i was sick. So not necessarily 'sick' - just not great. I've also recently had a staph infection on my scalp behind my ear - it's come back 2x already now - we can't seem to get rid of it. Prior to having the c-section, I was a completely healthy person - I had never even been to the hospital for any reason in my 34 years of life. Now, since my baby was born 4 months ago, i've been to the hospital and/or ER SEVEN times (all surrounding either my celiac symptoms or this staph infection).

I can't figure out why i'm starting to feel not-so-awesome... i'm still sticking to the gluten-free diet very strictly. I'm feeling like maybe i should try eating some gluten to see what happens. Maybe my GI Dr was right and i really don't have celiac? Maybe this is all due to something else that no one is catching? Has anyone heard of anything that would link my celiac symptoms to a staph infection? I'm just so confused and feel like every doctor i see is concerned with my current situation but doesn't want to hear about everything that has happened and help put all the pieces together. Or maybe i'm just in denial? I found the first month or so of being on the diet not that bad - it was new and it was easy to be positive about it and just be happy I was feeling so amazing. but now that i'm starting to feel bad again and the newness of the diet has worn off... i'm starting to feel sad/frustrated/mad - I hate feeling like this. :( Sorry for the sob story. I know we all have to deal with this - I just feel very confused about everything - my family is pressuring me to try some gluten just to see what happens. I know everyone on here usually advises against that. however, is this situation different since my GI admitted he doesn't really think i have celiac?? I just want/need to figure out what's going on with me.

Thanks in advance for any advice. :)

I am on Gluten free for 6 months , even now i find hidden gluten cc in my diet , few days back via this forum i came to now it was Tea bag making me sick, before that it was corn, even before i realized it was Gluten free chips, sugar coated Vitamins(glutened) ............. what i mean is it is GLUTEN one way or other , gluten is so stupid it knows 1001 way to dodge us , but people like here on this form we won't let him win.
There may be some other problem but staying Gluten Free is always Healthy.
Good Luck

In Topic: Celiac In A 16 Month Old Baby

04 September 2012 - 06:55 PM

Hi All,
I'm new here looking for some advice!! my son has just got a + result after 2 week in hospital in his blood tests for celiacs now going for a biopsy he has lost a lot of weight and refused food and fluid he deteriorated quickly and now only weighs 21lb should be 30lb if you follow his growth chart and is so lethargic and seems to have no energy at all wont even stand up or crawl about :( how long does it take before he puts weight back on and starts eating and drinking???? also any advice on meals for a baby that are gluten free would be greatfully appriciated! thanks in advance Mike

Good Luck and speedy recovery.

In Topic: Dealing With Sneaky Allergies

04 September 2012 - 06:53 PM

So, tomorrow I am going to call my doctor about the plastics allergy. I did not have this problem before the gluten challenge. I had a reaction to a friggin clipboard today and I cannot deal with it anymore. I am gonna put pressure on him to make this a priority. I am tired of reacting to plastics and not knowing which ones; I mean, it Is everywhere after all. Plastics in general are nearly unavoidable, especially if you do not live on a huge farm. Wish me luck guys. :)

Good Luck .

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