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scarlet_willow

Member Since 25 Aug 2012
Offline Last Active Oct 02 2012 03:43 PM
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Posts I've Made

In Topic: The 100% Positive Thread

02 September 2012 - 09:35 AM

The gluten-free Banana-Nut muffins I made taste better than the old ones I used to make with wheat flour :)

In Topic: Having Trouble Accepting The Diagnosis

26 August 2012 - 09:13 AM

When I have my boys tested, what should I have them checked for? They are 4, 2, and 1. Should we hold off on te 1 year old? Should we check for the genes and the same bloodwork I was checked for? I can't imagine putting them through an endoscopy right now, so could I just DX them based on labwork?

In Topic: Having Trouble Accepting The Diagnosis

26 August 2012 - 07:41 AM

Thanks everyone for your responses! I think I really needed to hear from some more actual Celiacs.

My labwork from March 2012 is as follows

Gliadin IgA Ab 79 (0-19 reference range)
Tis. Transglut. Ab IgA 225 (0-19 reference range)

I was also tested for the gene and have the DQ2 variant and DQA1*05 allele(not that that says much). I had read on Chicago University's Celiac Disease Center's website that the TTG can be falsey positive for people who have another autoimmune issue (like Hashimoto's) so I always wonder if that bloodtest was falsely positive. But I guess the endoscopy is more reliable and since that was positive, then I really have no reason to doubt it.

In Topic: 34 Weeks And "mildly Positive"

25 August 2012 - 08:20 PM

I realize you've had your baby already, but I wanted to respond in case anyone else reads this looking for reassurance :)

I got my first + blood test for Celiac when I was around 30 weeks pregnant with my 3rd child. I am pretty sure that was the only pregnancy I went through with undiagnosed celiac disease. I did not go gluten-free during my pregnancy. I tried to initially, but I was dealing with a tremendous amount of stress from my oldest son's hospitalization, my husband's crazy working hours, and moving to a new home, that I just could not put any effort into a new diet (and I didn't even know if I REALLY had celiac disease). I had my son 2 days before his due date and he weighed 9 lb 3 oz (and I am a small girl!). He obviously did not suffer from my celiac disease! I feel incredibly blessed! I also had not tested anemic.

It wasn't until my son was 13 months old that I had the endoscopy and it was confirmed that i have celiac disease. I breastfed him the whole time and still do (he is almost 14 months) nurse him 3 times a day. No problems with my milk supply and he has grown beautifully :) I will warn you that i craved carbs like crazy those first few months of breastfeeding, so if you really think you could have celiac disease stock up on some good gluten-free carby snacky options for the starving nursing mom stage :)

Oh and one last thing.. if you want to get an endoscopy while breastfeeding, they can use propofal to sedate you, which leaves your system sooner than the sedative they typically use :)