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scarlet_willow

Member Since 25 Aug 2012
Offline Last Active Oct 02 2012 03:43 PM
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Topics I've Started

Do You Buy Kraft?

24 September 2012 - 07:26 PM

"However you should know that we do not guarantee that our products are gluten-free because we sometimes purchase flavoring, color or spice ingredients from suppliers who do not list every possible source of gluten beyond what is required by law.
We do not have a list of gluten-free products and, unless labeled as such, do not guarantee that our products are gluten-free. Formulations and ingredients change too frequently to ensure that such lists are always up-to-date and accurate."

source: http://kraftfoods.cu...etail/a_id/1969

Would you feel comfortable eating anything from Kraft after reading this? I am really thinking of not buying any of their products anymore. But it isn't going to be easy! They make everything from my mustard to my baking chocolates!

Pediatrician Won't Test For Celiac

13 September 2012 - 06:39 PM

I am a newly diagnosed Celiac. My gastro advised that we get my 3 boys tested, regardless of symptoms. Well... their ped will not test them unless they present with symptoms! I find this incredibly frustrating because I love our pediatrician. He has been my boys' only Dr and he's been very, very good. But everything I have read says that all 1st degree (and sometimes even 2nd degree) relatives should be checked for this.

I have a well-child appointment scheduled for October, so I can try to convince him again then. Maybe I can get him to reconsider. My other options would be going to a pediatric gastro (which will be a huge hassle with 3 very young children) OR paying otu of pocket for one of those any labs places to do it... which would probably be even more expensive.

Any thoughts or suggestions of what I can say to help convince out ped to test my boys now? I don't want to lie to him and say they have symptoms when they don't.

I Wonder If My Dad Has Dh

10 September 2012 - 08:38 AM

I was just diagnosed with celiac disease a month ago. But my dad has had a pretty severe rash on the tops of his hands and fingers for years now. It's bright red and itchy and bumpy in places. He has tried pretty much every cream and hand lotion out there. He finds some relief with intense treatments and wearing gloves. But nothing makes it subside that much. He has flares when it gets worse but it never fully goes away. He's had a dermatologist tell him it was excema, that was a few years ago.

I'm trying not to over-diagnose all of my family members hehe My mom has RA and has already decided to put herself on a gluten-free diet. I'm wondering if my dad should get a biopsy of his skin or just try the diet and see (since my mom is going on the gluten-free diet anyways). How long (at the most) after being on a gluten-free diet should his symptoms improve?

Having Trouble Accepting The Diagnosis

25 August 2012 - 08:13 PM

I am a brand new member, so hello everyone. Let me give a little background. And thank you in advance for any experience or advice you can offer.

I have had positive bloodwork for celiac disease. Earlier this month, I finally had an endoscopy. By just looking at my small intestines, my Dr said that she saw extensive damage, indicative of celiac disease. When the biopsy came back, it indicated Marsh 3B level damage. My Dr said she was very confident in saying that I have Celiac Disease. I started a gluten-free diet right away and have been very strict with it.

My problem is that I am having trouble accepting this diagnosis. For one thing, my symptoms had really calmed down 2 months before I had the endoscopy. I had just cut out gassy foods (onions, beans, bell peppers) and that seemed to help me a lot. So finding out I still have Celiac Disease without many symptoms is just really weird for me. I never seemed to notice reactions to gluten when I had eaten it (accept for intermitant bloating). I notice way more problems when I eat high-fat foods (like avocado and bacon) than when I ever ate gluten.

My only other symptom is that I have been 15 lb under my normal, healthy weight for 3 years now. I was always a good weight before and filled out my clothes nicely, but now all my jeans from college fall off my hips. I was also having a hyper-thyroid episode around the same time I lost this weight though. The thyroid problem and weight loss all happened after the birth of my second son. So if i do have celiac disease, I think it probably began around the same time my thyroid problem did, in response to the pregnancy.

So.... I am internally fighting this diagnosis. I keep wondering if my Marsh 3B damage could have just been caused by the other foods that I had trouble with? (gassy and high-fat). Or if if is at all possible to just have that amount of damage and NOT have celiac disease? My Dr did mention a few other very rare things that can cause that kind of damage but basically said that my chances of having any of those is pretty low. I am a 28 year old woman of irish ancestry already with a diagnosed autoimmune disease (Hashi's), so she said with that information combined with all of my tests done... it is fairly certain that i have celiac disease. But it just seems surreal to me. I still don't feel like I have it. I'm just looking for advice or anything. Thank you.