Aprilelayne

Skin testing of suspected allergens was a bust yesterday. Nothing, not even soy showed up positive despite the RAST test and marked improvement since its elimination.

The allergist was apologetic and explained that while she may not have an IgE reaction or response, she obviously is having a gastro response to soy and other stuff.  She agreed that the endoscope is what she would do next to find out truly how damaged her esophagus is from the reflux. 

I dropped off the negative results to the gastro when I left the building yesterday at noon, so I'll call this afternoon to prod them along to see what the plan is.

All I do know, is that since having to be off of zyrtec and allergy meds for the skin testing, she complained about her chest and belly hurting almost daily   she stopped her meds last Wednesday and Friday is when things started going downhill with severe diarrhea again and the complaints.

I'm not sure on the EGID front though either....its just the next dx to eliminate.

I would INSIST they take samples for Celiac testing while they scope.

ABSOLUTELY!

If we are sedating her at all, I want to address as many things as possible in one swoop.

Small update....

We met with the gastro on Friday, who is now bringing the scope on the table sooner  than later in response to the allergist's plan.

We have allergy skin testing on Wednesday of this week to determine any other major allergen issues.  I am to call the gastro's office with the findings or to prompt them to obtain the results from the allergist.

she verbally simply said we would likely scope if any other allergens show as positive for an esophagus condition (dumbing it down for me I presume.)

Her handwriten note on the appt notes: "pending ai test (allergy skin test) probable endoscope to evaluate for ee"

So still moving forward, not celiac-based, but the quest to decipher her gastro and reflux problems.

And I'm fully aware that I'm now more on an allergy quest than a celiac one if necessary, but honestly I haven't found another forum that  is similar enough since her issues are prominently gastro related.  Just being clear that I am fully aware that celiac is not an allergy.

I do know that I have a refluxy,ezcema laden kiddo who vomits regularly and has upset stomach daily who can barely get to the bathroom in time for her foul diarrhea. She will soon hit the embarassment issue at school for her explosive and noisy movements as the toilet is just a sub room within the classroom where everyone (classmates and teachers) can hear what's going on.

I have an irritable, clingy toddler every evening who needs her back patted to help expel the gas.

I am sure that my health deteriorating is due to the stress and focus on hers right now.  But I'll keep chugging along and just vent and whine in here (nobody feel the need to respond! ha, just let me get it out somewhere)

i need a nap.

Met with the allergist yesterday...and honestly I'm not optimistic to answers.  That or I'm just frustrated.

We discussed her history and reaction patterns, I gave her the detailed food logs for the last three incidents, all of which were soy-free days.  Before we got to that she explained that soy is typically a minor allergy that kids do grow out of.  I then explained the cycle and extreme reactions she gets, gave her the daily logs and she agreed there is something else causing her the problem.

We have skin testing on 5/15.  She's testing wheat again because she's suspect of that despite the blood test (which is good for allergy sake, not celiac) and focusing on her suspected reactions to fruit.  She's testing a slew of things but specifically adding wheat and the fruits.

I was just slightly disappointed because while a very pleasant doctor , she seemed not overly concerned because she wasn't have any breathing or wheezing issues with her reactions (as in like a severe peanut allergy) so I felt like it was 'oh, she just gets red cheeks?--no biggie'

I explained that if whatever she is struggling with if anything like mine, she is likely in abdominal pain from spasms or cramps.  That we need to know what to avoid even if she's frigging labelled IBS, I just need to know what to weed out of her diet to let her not vomit once a week or have four to five bowel movements a day.

I'm cranky.

I've been nauseous every night for almost two weeks, no doubt stress induced. 

3/10 - Gastro appt - to discuss scope for reflux

3/15 - Allergist appt - for skin allergy testing