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Nyobi's Mom

Member Since 29 Aug 2012
Offline Last Active Sep 05 2012 04:02 AM
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Posts I've Made

In Topic: Doc Probably Calls Me The Crazy Mom

04 September 2012 - 08:41 AM

I would suggest you do two things. A: Remember that caring for your children, and discussiong their medical needs in regards to the latest research is NOT crazy. B: Quit letting your family members opinion interfere with how you care for your children. Chances are you are doing an awesome job, esp, if you are reading about biopsy dyes, etc. I have a ton of family that seems to disagree with what I talk about regarding my kids health. My Mom told me that my youngest daughter didn't have Asthma, and then cried a few months later when she watched my DD have an attack and realized she was very wrong. Nobody is with your kids as much as you are. If it helps your child, then keep it up, regardless of what the biopsy results say, esp given the feedback above about consuming gluten before the biopsy.

In Topic: My Son's Health Continues To Decline!

04 September 2012 - 08:30 AM

Do you live near a Mayo clinic? I know some are better than others but the one in Rochester Minnesota is the best. I have known people who had things nobody else could figure out and when they went to Mayo, THEY found out. AND they take payments. :)


I second this advice. It sounds like its time to go to a major medical clinic/ childrens hospital and DEMAND answers.

In Topic: So Many Questions

31 August 2012 - 04:33 AM

There are a ton of issues which can cause failure to thrive in infants. I think you are doing an excellent job finding a new GI and working so hard to offer her solids before the Pediasure. There are some pretty strange allergies out there, aside from the eleven you hear about all the time, and its hard to diagnose allergies in infants (Corn, Oats, molds...etc.) . If you are waiting on test results for the EEG and an MRI my course of action would be the following; keep up the pediasure and offering solids, and pretend you are a nurse. Keep a chart/ notebook of her intake and her temperature three times a day. If blood sugar is an issue, start taking that as well. Sending you hugs and support.

In Topic: Canada Requires All Food Labels to Declare Gluten, Other Allergens - Celiac.com

31 August 2012 - 04:21 AM

This is awesome. I wish they would do this in the US as well.

In Topic: Gained Weight Before Diagnosis

29 August 2012 - 06:06 AM

We cook gluten free for the kids, but I cheat all the time. After reading all these, I wonder if this is why I can't seem to lose weight, even when I eat well under my calorie intake.

And yes, I think gluten effects get worse when you exercise. Taking my then three year old for a walk used to feel like I was torturing her unless I agreed to carry both her and her irish-twin sister.