Thank you all! I have finally come to terms with the fact that I will never have a conclusive diagnosis and am trying to settle under the umbrella of gluten intolerant. I have started weaning myself off the Prilosec, and after a rough first week my stomach is feeling much better than it has in a long time! I have also been doing pretty well with avoiding contaminated spaces, I'm still very paranoid about it but I feel that I'm doing the best I can with what I've got to work with. At any rate, I was able to add back in rice cakes and have been experimenting with gluten free oats and breads with okay results. I've also started taking digestive enzymes and a bunch of vitamins, and my fibro has gotten good enough that I have been able to take my dog out for 20-30 minute walks every day this week! It was a pretty quick turnaround, I think the Prilosec was holding me back.
Of course now my lower stomach is acting up and I'm not sure why. I have been having constipation, stomach pain/pressure and truly awful gas for the past four weeks or so. I live in constant terror that it will act up while I'm at an appointment or with other people! I would blame the rice cakes but I don't think I've been eating them that long, although the timeline's a bit fuzzy. I initially thought it was from adding avocado to my diet, but I haven't touched the stuff since mid-April. Then I suspected aloe vera juice was the culprit, but that seems to be a no-go as well.
Also, I have noticed that since I added the grains in I am more prone to binges. As I've mentioned before I seem to swing between binge eating and severe undereating, and I'm starting to wonder if it's not all psychological. I've found that I've been having very strong binge compulsions like I haven't had since last summer. I have also been getting very intense, detailed food cravings at the drop of a hat- they can be set off by a word, a sound, a picture, a smell. Once it's in my head it's like I can taste it and feel it and smell it and it's the absolute worst. It's usually sugary, carby kinds of foods. I had the same food cravings when I was 'detoxing' from grains in the beginning, and I don't know if they're temporary but they definitely don't help with the binge compulsions.
I've also been having odd depressive mood swings. I completely shut down for about four days, scared my Mom half to death. It hit so suddenly, it was kind of alarming. I had just started eating Udi's hamburger buns and oddly the sudden depression lasted four days, just long enough for me to have a bun each day. The day after I stopped eating them, my mood improved. It was very strange. There was nothing happening in my life that should have caused it psychologically, if anything my life has been improving. Could it be related or is that crazytalk?
I suppose I should probably cut out all the grains again and see what happens, but it's going to be really difficult to overcome the cravings for them. Especially now that I was able to add back mustard and found out that my favorite lunch meat was gluten-free! ):
Edit: Oh man, now my fibro is flaring again. I really thought I was done with that! Dang.