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Member Since 03 Sep 2012
Offline Last Active Oct 04 2012 08:44 PM

Posts I've Made

In Topic: Friends! Happy Friday! Please Share Your Story Of The Onset Of Your S...

02 October 2012 - 02:21 PM

I think it was a combination of things that set off my illness. Before the end of August when the severe symptoms came out, I had noticed symptoms such as a rash - I actually convinced myself it was some weird parasitic rash because it seemed to have come out exactly when I was poked by a king crap leg - and also bloating, chronic constipation, and reflux. I was diagnosed lactose intolerant in 2007 and I assume this may have also been when the gluten intolerance started.

I think what set my illness off was my eating disorder - a combination of severe anorexia and bulimia. I don't think the anorexia was super harmful in term of gluten intolerance but the bulimia was the bad one. My binge foods were carbs, all carbs minus some lettuce, ice cream, and chocolate. I think that just made everything a million times worse, whatever problem was there was exacerbated. However, I also might have to consider that my brain injury may have played a part as it caused quite alot of changes in my mood which caused an increased in carb eating before my eating disorder took hold. I started loading up on carbs to deal with my depression in 2005 which resulted in a 30lb weight gain (that December is when my anorexia began). I also think the problem was that when I was in recovery from anorexia (re-feeding) I was on a carb-heavy diet with tons of gluten in it so, my intestines that hadn't had any food in ages were being pushed these massive amounts of gluten, I think it was just a bad thing all around to do (if I could go back, I definitely would NOT do the same re-feeding process).

Oddly, months after I successfully go into recovery from my eating disorder (both anorexia and bulimia) my body decides to go into some sort of crisis which is what happened in August when I couldn't get out of bed for a week. I had crippling abdominal pains and I was exhausted. I barely ate and what I did eat was (unfortunately) pasta and crackers. I had a CT scan, 2 ultrasounds, was in 2 doctor's offices, was in the ER. No one knew what the hell was wrong. I came upon gluten intolerance myself. I cut out gluten from my diet and within 3-4 days it was like heaven opened up and a miracle took place. And just in time too, as college started just a few days later.

Everyone told me the symptoms I was having all along were something else. Bloating (eating disorder recovery), chronic constipation to the point of being in the ER once (eating disorder recovery), rash (ezcema which runs in my family - even though it never went away in 3 years time and actually got worse just before the August crisis).

So, there's a combination of factors at play . Basically, it was all down to over ingestion carbs, at least that's what I think.

In Topic: Hmmm... Help Me Figure This Out Please....

20 September 2012 - 09:16 AM

I have issues eating regular ice cream because they almost always contain xanthan gum - are you able to eat that? I know that I tried regular ice cream multiple times because I missed it so much and kept getting reactions - not cotton mouth, but the feeling like I was about the pass out, very dizzy, etc. Also, when I looked online at my favorite coconut ice cream it said it contained gluten even though nowhere on the package did it mention that it contained gluten. While I know that your ice cream states gluten free - just checked - I know they also make ice cream such as cookies and cream, double fudge brownie, etc which obviously all contain gluten, possibly some cross contamination? I've found that home made smoothies are the best (I make them in a Margaritaville blender that crushes the ice automatically, expensive but worth the investment if you use it often enough). You can also take Yoplait Whips yogurt and put them in the freezer. It's not perfectly like ice cream but it's pretty close - lots of flvors too - even chocolate, although personally raspberry ranks at the top of my list.

In Topic: No Friends

18 September 2012 - 03:17 PM

I understand this completely. I'll be 22 in a month and I am in a similar situation, stuck in the past. When I was on a successful gluten free diet I was really outgoing, now I think I may be reacting to something or another or possibly have a flu so I'm super exhausted. But, in general, since going gluten free my personality has blossomed. I'm so much more outgoing and have the ability to talk to people more. In my past, I really didn't have that ability, I was too exhausted and with my history of depression, I didn't want to. I fully believe that my gluten intolerance is strongly related to my mood and has a huge influence on it. Anyways, now that I'm outgoing and able to talk with people I'm stuck. I'm stuck with my past behaviors. It's almost as if my past, being mostly alone, has become habit. Habit is difficult to break, especially because it is comfortable. I've started branching out, I've joined a club at my college and the people are great. I even had a conversation start with someone over something as simple as my purse. I didn't even know her, we just started talking and I managed to hold my own in the conversation. Being random can really pay off. And exposing yourself to social situations will help you meet people more - like simply reading a book at the cafe in a bookstore, you never know who may stop and say "hey I know that book!".

In Topic: Headache Meds

18 September 2012 - 02:26 PM

I used Excedrin Migraine and Excedrin PM when it was on the market and it worked lovely. After it was removed I took the generic I found at Walmart. Equate Migraine Relief and Equate Acetaminophen PM. It's identical in primary ingredients to Excedrin except the PM version contains slightly less diphenhydramine than Excedrin had (25mg versus 38mg). And yes, I saved the bottles of Excedrin for comparison! I feel that it works for me just as well when I get migraines (Side note: I was also prescribed topirmate because I was getting migraines 5-6 days a week. So, migraines are infrequent now).

In Topic: "seizure Like" After Eating Contaminated Foods

18 September 2012 - 12:00 PM

Oh my gosh, that is so obvious I can't believe I didn't think of that.

The only problem is that I can't find any information about gluten-containing drugs. Invega has absolutly no information on it. And then I take generics for all the rest, the brand names are safe but there's no information on the generics. I'm going to change multivitamins as I found that it's not guaranteed gluten-free.

Wow. So obvious can't believe I didn't think of this!

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