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kelly97

Member Since 03 Sep 2012
Offline Last Active Apr 07 2013 07:24 AM
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Topics I've Started

Celiac's & Pathology Of Crohn's?

16 October 2012 - 04:41 AM

Hi everyone, I was diagnosed with Celiac's maybe a month and a half ago. When I was speaking with my GI doctor yesterday, he said that I had something like crypt architecture distortion in my colonic mucosa. I asked if that was Celiac's related and he told me, "No." And that it's typically seen in people with inflammatory bowel disease or Crohn's.

Does anyone else on here, who has Celiac's, have this crypt distortion in their colonic mucosa? It's basically like I'm in between diseases - because it's not an extremely strong pathology presentation for either - although pathology & symptoms for both.

He just shrugged his shoulders and said that it's all autoimmune, so he doesn't know - anything can happen.

Thanks,
Kelly

What Type Of Doctor?

16 October 2012 - 04:34 AM

Hi, What type of doctor do you see for your Celiac's? The GI who diagnosed me at the University said that GI doctors don't typically see people who have Celiac's. I kind of basically took it to mean, once you're diagnosed you're on your own - or try to ask questions of your primary, instead.

Thanks,
Kelly

Diagnosis Without Positive Bloodwork? Fever?

19 September 2012 - 04:13 PM

Hi all, I was diagnosed 2 or 3 wks ago with Celiac's based on my biopsies and my symptoms.
The biopsies the doctor took showed duodenal mucosa with abnormal villous architecture and increased intraepithelial lymphocytes. And my colonic mucosa with crypt architectural distortion with no evidence of colitis. Essential, he says I meet the gold standard for celiac disease. And my symptoms are malabsorpsion, massive weight loss, etc.

However, I received the lab report in the mail from my doctor from the blood work that was taken after the biopsy. It says all my labs are normal, but I can contiue with a gluten-free diet to see if it helps. I realize now that I have "switched" to a gluten free diet, that my diet was already pretty much almost gluten free.

I don't meet with my GI doctor for a month. So...my question is - can I have a diagnosis of Celiac's without a positive blood test, but with positive biopsies? I'm not one of the ones that has IgA deficiency. Does anyone else fall into this category?
On a side note, does anyone else with Celiac's experience continuous intermitent fevers thru-out the day for months and months (I'm going on over a year now)?

Thanks,
Kelly

New And Worried

03 September 2012 - 06:48 PM

Hi All, I was diagnosed last Monday with Celiac Disease. My oncologist sent me to a GI doctor to do further investigation, so I was double scoped (looking for tumors). The biopsies the doctor took showed duodenal mucosa with abnormal villous architecture and increased intraepithelial lymphocytes. And my colonic mucosa with crypt architectural distortion with no evidence of colitis. Essential, he says I meet the gold standard for celiac disease. My oncologist is sending me for another CT & I also have to do a capsule camera swallow test.

I'm just worried. I've lost 25% of my body weight and continuing to go down. I currently only weigh 93lbs. They say I have malabsorpsion. I'm currently taking pancreatic enzymes since May. And just switched a week ago to gluen-free. I've been seeing an oncologist since May - my ct scan in Apr showed multiple reactive mesenteric lymph nodes with stranding, and hypoattenuated lesions/cysts on my liver. And I was diagnosed with MS a couple of yrs ago. I have constant fatigue with off and on fevers and all sorts of other symptoms.

I just can't help but wonder if all of this is related.
Does anyone else have mesenteric lymph nodes reactive or enlarged from Celiac Disease? Or have stranding in their mesentery from it? Not sure if it's related to the probable cancer or if Celiac's could cause it. And not sure how long I've had Celiac's so...as I've read - it could cause intestinal cancers?

Thanks for helping,
Kelly