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spirit_walk

Member Since 09 Sep 2012
Offline Last Active Jul 16 2014 06:15 PM
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Posts I've Made

In Topic: Villi Damage From Other Food Intolerances?

16 June 2014 - 07:19 AM

This is a question that I have had as well. I went from eating any and everything I wanted with no problems (although I has upset stomachs a lot growing up). Then I started having mild pain in my hands over the course of 2-3 years (tingling and sensitive), and then in March of 2012 it went full-blown crazy. My hands were hurting terribly, then it moved to my wrists, knees, hips, and other parts of the body. It was then that I realized that the food I was eating was causing much of this pain. After removing dairy, gluten, nightshades, corn, and eggs, along with other foods that came up in a IGG blood test, my pain got better. To this day, I am not sure about the blood test, but I do know that food is causing my problems. I had an upper endoscopy done last summer, and my villi were normal (I'd been off gluten for about 7 months). This makes me think that the other foods I'm eating are causing damage to the villi. However, my stomach lining was reddish and explained as gastritis. So perhaps the foods I am eating are causing inflammation in the lining of my GI tract even though it isn't necessarily damaging my villi? I don't know. I am eating as healthy as possible, and trying to gain weight (which isn't happening). I have a malabsorption issue and wonder if some of the foods I'm still eating are playing a role in preventing healing.


In Topic: Pancreatic Insufficiency

16 June 2014 - 07:05 AM

pghkid33,

 

Just curious, but do you weight loss as well? I was taking Creon and Zenpep for a few months, b/c my doctor discovered I wasn't absorbing fat. It didn't help me gain weight, and I stopped taking them b/c the prescriptions were expensive.


In Topic: Joint Popping And Muscle Twitching?

14 June 2014 - 05:41 PM

Thanks nvsmom and janpell.

 

I usually feel my best when I haven't eaten for several hours. I'm on a mission to gain weight though, so I've been eating as often as possible. Usually when I finish a meal, I feel it in the wrists first. Some days are better than others, but the popping is always there even on the good days. I've gotten to the point that I don't expect answers, but I still hope for them. :) 


In Topic: Joint Popping And Muscle Twitching?

13 June 2014 - 03:08 PM

The thing is guys, Spirit walk has done all that stuff. He tells me he has seen rheumies & orthos &  all manner of doctors. He and I have discussed this many times.

 

It's not a rheumatological or orthopedic problem. 

 

he said: The rheumatologists I've seen can't explain the joint popping.

 

They haven't been able to explain it which is why I'm reaching out to this community.

 

However Irish, they didn't say it wasn't a rheumatic condition. Well, SOME (I've seen four different ones) have said I don't have arthritis. One said I have inflammatory arthritis and that he could feel inflammation in my joints. The initial rheumatologist I saw said that nothing was showing up in my tests at the time and encouraged me to check into a research hospital or the Mayo Clinic. To be clear, two of those rheumatologists simply reviewed previous blood tests. That is why I went to Mayo. My GI doctor knows that I'm not absorbing fat through fecal tests and said it's certainly possible that I am not getting other nutrients do to malabsorption. They put me on Creon and Zenpep (two pancreatic enzymes) and those didn't change the absorption issues. An odd thing happened earlier this week. My rheumatologist who I hadn't seen since last spring called to check in on me. He asked if any new symptoms have emerged (rashes, swelling, etc). When I told him that the GI doc found that I wasn't absorbing fat and that my stomach lining was reddish (found during upper endoscopy), he said he'd like to be added to their system so he could see my medical records. He said different GI issues are related to joint issues and that it was more pieces to the puzzle.

 

Irish, I've had six straight days of Vinyasa yoga classes, and I feel pretty good. Yoga has been great, and I will continue doing it daily through the summer. I'm still trying to find the culprit to the joint popping. Since removing gluten and changing my diet, most of my symptoms, from the extreme joint pain, to the neuropathy, to the mouth ulcers, seasonal allergies, and energy levels (at least in the mornings) have all improved (although I do have setbacks at times). The one thing that has gotten progressively worse has been the snapping and popping in the joints. What started in the wrists/shoulders moved to the jaw, hips, knees, and now neck. It migrates from hips to knees. I've started feeling my back pop as well, and it's definitely not cool.


In Topic: Joint Popping And Muscle Twitching?

12 June 2014 - 02:57 PM

I am very confused now.  It sounded like you could barely talk - but now you say that isn't a big deal.  Doctor's don't see anything unusual in your joints.

 

 

I never said neither of those things. I said I had difficulty lecturing when I was experiencing the jaw popping, and I never said it wasn't a big deal.