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Member Since 09 Sep 2012
Offline Last Active Jul 16 2014 06:15 PM

Topics I've Started

Joint Popping And Muscle Twitching?

11 June 2014 - 04:19 PM

I posted about my issues with joint popping a while back, but I wanted to try and again to see if I would get any more responses. Does anyone have chronic joint popping? It started with my wrists and shoulders. I had it a while in my jaw but it went away. However, it never stops in the wrists and shoulders and progressed to my knees, hips, and now neck. Once in a while I can feel my back pop as well.


I am curious if there are others experiencing this, how their symptoms have progressed over time, and if they have found a way to address it. I have been off gluten now for about a year and a half. My joint pain in my hands, wrists, and knees is pretty much gone since going gluten free. But, the popping is the one constant. My hip joints hurt because of the popping and if I eat some foods.


I've also begun experiencing muscle spasms/twitching in my thighs and arms over the last couple of weeks. I'm wondering if this is a vitamin deficiency or just another unexplained symptom like my popping. 



Powders And Shakes To Heal The Gut?

30 May 2014 - 04:21 PM




Anyone take either of these and have any advice on them? Have you found that products like these are beneficial for healing?

Sugar Causing Symptoms?

30 May 2014 - 03:01 PM

Do many of you have problems if you eat foods high in sugar even if they are natural sugars coming from fruit? Sugar triggers joint pain for me. Just wondering if there are others who experience symptoms from eating a lot of sugary fruit and such?

Advice Needed - Intolerant To So Many Foods And Have Malabsorption Problems

23 May 2014 - 07:26 PM

I'm 40, male, and have had Celiac symptoms that I didn't recognize until I started having major joint problems 2 years ago. I've been thin my entire life (couldn't gain weight), had a lot of stomach aches/diarrhea growing up (went away for the most part during my college years and through my 20's and early 30's), delayed puberty, chronic canker sores, sore throats, slight anemia, and other symptoms that now lead me to believe I likely have Celiac's disease.


My gastroenterologist has told me I'm not absorbing fat and my pancreas has been checked through a CT scan. It appears my pancreas looks fine, but for whatever reason, my body is not absorbing fat. I told my doctor I think this has been a lifelong issue, b/c I used to eat loads of carbs, fats, and calories and never really gained weight. I've had a six pack since I was about 8 years old. No matter how much beer I drank or how many fast food meals I ate, I've never been able to gain weight. But I could at least maintain weight. Two years ago, after coming down with severe joint pain, I was told (through a blood test) that I'm intolerant to at least 31 different foods (all the majors: wheat, egg, dairy, tomatoes, and a bunch of others). A year later my stomach could no longer tolerate salads, and beans do a number on me. I went from 155 pounds to now 128, and I can't put weight on. Since that joint pain started 2 years ago, I've had just about every test imaginable done to rule out RA, Lupus, parasites, MS, gout, diabetes, Crohns, UC, and many others. I went to the Mayo Clinic last summer for many of those tests. The problem with ruling out Celiac was that I stopped eating gluten several months before I had an endoscopy and colonoscopy done. Everything checked out ok except that my stomach was reddish inside.


So I've posted in the past on this site. My joint pain is much better now that I'm off gluten and the other problem foods. However, my joints began popping a few months after the initial pain started, and it continues to progress throughout my body. My neck is now starting to pop which really concerns me. My hips are also popping/moving, and it is painful. I went through a period where I thought I was getting better, but now it's coming back again with a vengeance.


My GI doc said that he wants to move forward under the notion that I have Celiac. I am having more stomach issues and I can't gain weight. Basically, I have major absorption problems, and I am thinking I am likely not getting some important vitamins/minerals to support my joints. My doctor wants me to swallow the camera pill next to have a look at my small intestine. She also wants me to get another food intolerance blood test to see what new foods my body is reacting to. I'm having it done this week and fear that everything I am now eating will be on the new list of trigger foods. Right now, I eat a lot of rice, chicken, almond butter, avocados, bananas, apples, sun butter, fish, quinoa, buckwheat, and certified gluten-free oats. I also eat a lot of Lara bars for snacks along with fruit.


I thought eating these foods all the time along with my daily probiotic and digestive enzymes would be fine. But now my doctor is telling me that eating any particular food more than once every three days puts that food at risk for becoming a trigger food. This is all based on the "leaky gut" problem that my body is turning on foods that I eat a lot of.


So, where do I go from here? Were any of you intolerant to almost everything, and how were you able to battle this problem or the malabsorption problem that I seem to be having? 


Do any of you have popping in the JOINTS?! I would love to know what is causing this, b/c no doctor has been able to explain it. But, this isn't harmless popping. This is getting worse by the week. I've seen a couple of nutritionists who believe it stems from malabsorption problems and possibly a shortage of a particular protein or something. 


What kind of supplements should I be taking to heal the gut and fix the malabsorption problem? Do any of you use Chelation therapy or IV Vitamin drips?


Any advice would be helpful and appreciated. Thanks.

Questions For You, The Experts...(Advice Needed)

13 February 2014 - 08:32 PM

I still fairly new to the board, and I'm not diagnosed Celiac. I had removed gluten from my diet several months  before I had my endoscopy.


A little history...I had a severe onset of joint pain in March of 2012. I was convinced I had RA but have been told by four rheumys that I do not have arthritis including one at the Mayo Clinic. After seeing rheumatologists, an orthopedic surgeon, a nerve specialist, and a gauntlet at the Mayo Clinic (along with GPs), I finally settled in on seeing a GI doctor in Austin. Noone knows what is wrong with me, and I was told by Mayo that I have some kind of autoimmune response coming from the gut. Whether it's Celiac or not, I don't know, and I'm not willing to go back on gluten to figure it out...at least not at this point. I was in so much pain (joints only) that I wanted to do anything to feel better. Adding gluten back was not an option. With a VERY clean diet, my joint pain has improved, but now they pop. On bad days my shoulders, wrists, elbows, knees, and ankles will pop. Right now I'm experiencing these symptoms. I can go weeks where my joints don't pop too much and then they'll pop like crazy for weeks. I'm convinced food and weather are both tied to my popping and pain.


I'll also add that I've suffered from mouth ulcers, seasonal allergies as an adult, and have had difficulty gaining weight my entire life. I've had constipation (likely due to poor diet). I had a lot of diarrhea as a kid and through my teenage years. I used to wonder why I always had an upset stomach and my siblings didn't. Those symptoms went away through my college years and never really surfaced again. I ate terribly and never drank water. It was sodas, fast food, Starbucks, candy, and chips most of the time. Meanwhile I was never overweight, never had high cholesterol, or high blood pressure. I thought I could eat anything I wanted as long as I exercised! That all changed in March of 2012 with the onset of severe joint pain. I couldn't even lift my 2 year old daughter without feeling like my wrists were going to break. Washing dishes or turning door handles was excruciating in the beginning. In hindsight, knowing what I now know, I think I could have been asymptomatic for years and damaging my body. I used to wonder why my wrists and hips hurt and thought is was from old athletic injuries. But now I look back and realize that doing pushups in my mid 30's shouldn't be painful in the wrists. After removing gluten and other unhealthy foods, I no longer get mouth ulcers, I have less allergies than ever, and I don't get sick very often at all (other than pain in joints or stomach).


So I've been on this near-2 year journey of eating healthy and trying to understand what is wrong with me. My wife has been very understanding and supportive through the process, and we have a 3 year old daughter as well. I think it's very possible I have Celiac or something very similar to it. My GI doctor agrees, but I have no diagnosis.


So after cleaning up my diet with simple, clean foods and nothing but water, honey/organic fruit spreads for sweeteners, and no gluten, dairy, nightshades, eggs (although I still eat Udi Bread), and many other foods that I was tested to have inflammation to, I have lost a lot of weight (from 155 to 130 pounds) and I'm now starting to have some stomach issues. I can't eat salads anymore, and now my stomach/intestinal area has pain/gurgling at times. Sometimes I have diarrhea, sometimes I don't. I had to stop juicing after doing it for weeks without problems. Suddenly my stomach said, "no thanks" along with salads and sliced cucumbers. I'm wondering if almond butter is doing it now or rice. It seems as though my joint pain has improved, but my stomach is slowly becoming weaker and less tolerant to foods.


So a couple of questions (any other advice is welcomed as well):


1. I currently take a probiotic by Transformations ($50 for 30 capsules). I take it early in the morning. Should I be taking two a day instead of one? They are expensive, but I've found that Renew Life brand seems to give me the same pain as salads now.


2. How long through your journeys did it take you for your gut to heal to the point that you weren't experiencing more pain/upset stomachs? I've had these joint issues for almost two years, but I haven't been strictly gluten free for that long. I used to eat chips from factories that produced soy/wheat, and I used to eat out at Jason's Deli and other places where CC can occur. I stopped all that about 2 months ago.


Finally, do any of you have joint pain and popping? I've asked this question on the board before, but it never hurts to ask again. Perhaps someone will see my post who didn't before who can shed some light my way. Thanks for taking the time to read my post, and thanks for any advice.

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