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Celiac Mindwarp

Member Since 10 Sep 2012
Offline Last Active Apr 04 2014 02:36 PM
*****

#874197 Is This A Kidney Pain?

Posted by Celiac Mindwarp on 12 June 2013 - 12:45 PM

money.gif

Hope you get some answers soon :)


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#873070 The What's For Dinner Tonight Chat

Posted by Celiac Mindwarp on 06 June 2013 - 03:10 PM

Strop = bad mood, hissy fit, throwing a wobbly, sulking like a big girl, throwing my toys out of the pram. What do you guys call that?

Mr M told me what you guys might mean, and it's nothing like that. Even if was, I wouldn't have the energy for that after the day I have had...

Mr M made chicken, butternut squash, zucchini, mushroom. I think he must have seen what went in the trash.

I am in a marginally better mood now, and attempting to pack into a small car everything we used to have in a large van for a camping trip.

See y'all after the weekend, have a good one.
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#872669 New Here, Not New To gluten-free, But Ready To Eat gluten-free...please Don...

Posted by Celiac Mindwarp on 04 June 2013 - 11:39 PM

If you are eating gluten regularly now, you can get tested for celiac disease. A diagnosis may help you.

Either way, only you can decide if your health is important to you.

Folks here will help you through the process of going gluten-free (once testing is complete if you choose that route). Sometimes once you get gluten out of your system, cravings may reduce or stop.

It seems tough when you start, but will eventually seem normal. Feeling better can be a good incentive.

I wonder if you were getting some cross contamination before?

Try the newbie 101 thread in 'coping with'.

Celiac and gluten intolerance can both affect a whole range of health issues, including fertility. It is also genetic, so has a chance of affecting any kids.

We take im pretty seriously around here, and are passionate about helping people, but you have to want to do it :)
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#872339 Is Okay To Self Diagnose?

Posted by Celiac Mindwarp on 03 June 2013 - 11:19 AM

I was massively relieved when my endoscopy came back with just a small hiatus hernia. I had been gluten-free for a while, so didn't really expect a celiac diagnosis. I spent years thinking something terrible might be in there.

Sounds like you have decided to take control now, great choice :). I am Non Celiac Gluten Intolerant, and my life has been transformed.

Stick around, we are happy to help :)
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#872056 Do You Think A Person Can "recover" From Gluten Intolerance?

Posted by Celiac Mindwarp on 01 June 2013 - 02:07 PM

Hi dawn
Welcome to the board.

Sounds like you have lots of questions, and you might find you get a good response if you start a new thread with your questions too.

Glad you found us, lots of experience and good advice here

Mindwarp :)
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#871171 The New Celiac Drug Is Out There

Posted by Celiac Mindwarp on 28 May 2013 - 12:07 PM

ABQ
I will be honest, and say I sometimes felt the same when I came here 1st 8 months ago.

I wanted and needed a good wallow, and time to get my head round things.

But I gradually got used to things, and realized the folks here are passionate about helping people recover, and not get into the dreadful state some of us, especially if undiagnosed, got into.

I have a take or leave it approach to advice here, just use what works for you. Your brain will be busy storing away info you might call on later.

One step at a time is all any of us can do.
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#871077 Disappointing Endo Results

Posted by Celiac Mindwarp on 27 May 2013 - 11:31 PM

Sorry you didn't get the results you wanted. I was just the same last year, and I threw in a negative gene test to prove the point.

I was diagnosed NCGI. I have to say, that removing gluten 'as if' celiac has transformed my life. I have lost migraines, brain fog, anxiety, bloating, inflammation, and the list goes on.

I found that as long as I take it as seriously as celiac, so do those around me. In restaurants, I just say I have celiac - they don't need a doctor's note to prove it :).

It is really worth trying for a few months.

Stick around and ask lots of questions. The folks here take it seriously (they must do, they even made me a moderator!)

Good luck
Mw
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#870501 The New Celiac Drug Is Out There

Posted by Celiac Mindwarp on 24 May 2013 - 12:48 PM

I am NCGI, so it probably doesn't apply to me, but if it did...

It honestly wouldn't be something I would want now. I have a host of other food intolerances, uncovered since I went gluten-free. I now have a healthy, clean diet. I never would have got there if I hadn't been forced to, and if I could pop a pill and then eat all that junk I used to, it would be very hard not to. That is some addictive stuff.

I suspect I have added years to my life, and it is now so much better quality than it was.
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#870166 The What's For Dinner Tonight Chat

Posted by Celiac Mindwarp on 22 May 2013 - 01:58 PM

Wooooohooooski!!!!!!!!

Isn't it great to be back?

Having my own little celebration here. Just got out my map and thread, and I walked 10 and a half miles today. As well as half a day volunteering. And watching The Great Gatsby. (I loved it. And I think I have an idea for a new cabana boy).

Hope you had seconds of that cake. You are just awesome.

Mw x
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#869604 Struggling With Anger At Doctors

Posted by Celiac Mindwarp on 19 May 2013 - 11:52 AM

Hi greeniebeanie
I am so sorry to hear you have had such a terrible time with doctors. No one deserves to be treated like that. Sadly, this is a very familiar story. Many of us have been told we are stressed, making it up etc.

It sounds as if you are doing exactly the right things. There is a list around of the FULL list of tests to request.

The fact you had such a positive response to the gluten-free diet speaks volumes, as does your suffering back on. You may be referred for a biopsy, and will need to carry on on gluten for that too.

Your symptoms sound like a good possibility of celiac or non celiac gluten intolerance.

Stick around, ask questions, rant, we are here
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#869047 Support Forum Is It?

Posted by Celiac Mindwarp on 15 May 2013 - 09:59 PM

I hate it when people are mean and make assumptions.

But the support I have had here and on another site of a man known for the odd rant, have given me back my life. I will always be grateful to the folks who give so much of their time and knowledge here.

When I started here I remember thinking some people were a bit hard on people who hadn't found their way through the diet. I ended up having to make radical changes to my diet, and I now have a very clean diet, and have my life back. So I understand. I am glad I read their posts. Not everyone will need it, but for anyone not getting rid of symptoms, it could be a lifesaver.

I am not excusing some of the awful rudeness of the last few days. At all.

I hope you find ways to benefit you health, or that of your loved ones. It is what the vast majority of us are here for.
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#868819 Gluten And Ankylosing Spondylitis

Posted by Celiac Mindwarp on 14 May 2013 - 11:26 PM

Hi Marcus
I tested negative too, but the reduction in all sorts of symptoms has been phenomenal. I have ended up paleo plus rice, with several intolerances on top of gluten, including dairy, soy and corn. I had back and neck pain, shoulder, was treated for repetitive strain injury in my hands, plantar faciitis, migraines etc. I had physio twice a week to get out of bed at one point.

I am now walking several miles a day, no physio for months, and considering returning to work full time.

Sorry to hear your GI experiences were bad :( hope the new one is more helpful, and that you are able to get back to gluten-free soon. I didn't agree with mine on everything,and my endoscopy was rubbish, but I wrote down my history, and my response to the gluten challenge and gluten free, and he used this to diagnosis ncgi. He also took my list of questions and WROTE to me to answer.

(Look, no questions this time! )
Hopefully your jigsaw is coming together. Very good luck
Mw x
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#868618 Battling No Food

Posted by Celiac Mindwarp on 14 May 2013 - 08:14 AM

Before I knew I was non celiac gluten intolerant, I was 'mostly' wheat free.

If I ate wheat, maybe just half a piece of toast, the next day I would have 2 slices. Within a week I would be eating cakes and pastries every day. It would stop after about 3 weeks, when I would be very violently sick.

I am not proud of this.

It happened about every 18 months.

While I was going through diagnosis, my husband said he thought something must be medically wrong, as he had never known me not do something I wanted to.

When I got diagnosed and went totally gluten free, the cravings went.

When I get glutened now, I eat like it is going out of fashion, and feel starving for 2 days. I stay gluten free, and it passes.

I see now that when I was eating all that 'healthy' rye and getting cross contaminated, I never gave myself a chance to get better, so the occasional binges happened.

I feel better physically now I have quit the gluten, but I also feel better about myself now I have control.

If you make it this far OP, I hope you can pick out some useful information from everything here, and give yourself the gluten-free future you deserve.

Mw
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#867687 The What's For Dinner Tonight Chat

Posted by Celiac Mindwarp on 09 May 2013 - 11:10 AM

Sweet potato, scrambled eggs, mushrooms and parma ham.

Odd day, I think I got dairied for the first time, my black decaf tea looked a bit cloudy. I had massive cravings and spent the day eating, and had to do the school run through a migraine fog (walking). I think the teachers thought I had been on the gin at lunchtime...
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#867403 How Strict If You Are Ncgi?

Posted by Celiac Mindwarp on 08 May 2013 - 07:14 AM

For me, the key is the improvement in so many symptoms being completely gluten-free. I have ended up virtually paleo.

I was more or less wheat free for 9 years, but the change from that to gluten-free is almost unbelievable.

There is not much long term evidence about effects of untreated ncgi.

For me, there is no going back to the pain and exhaustion of life pre gluten-free.

Evidence is starting to emerge that ncgi and celiac are on a spectrum. Early days though
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