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Celiac Mindwarp

Member Since 10 Sep 2012
Offline Last Active Jul 13 2015 05:30 AM

#858812 First Time Declining An Invitation

Posted by on 16 March 2013 - 12:03 AM

Sounds like you did just the right thing. It is so important to keep socializing, and each of us has a new dilemma every time we have a new event.

I am getting better at it. And I think most of that is down to my response, and most of that I credit to reading about how people on this board handle things, so I treasure posts like yours to get new ideas.

I am off.to my in laws tomorrow, and taking my own lunch and snacks. I don't yet know if we are eating there or at a restaurant,, but I know I will be eating safely.( last time we went, one family member gleefully turned up with a gluten free chocolate cake. I wouldn't eat it, but asked a few questions, and it was made with almond flour. My son has an anaphylactic allergy to almond. Other people just don't get food issues and I won't take the risk. Makes me sad I can't safely leave my son with his grandparents or aunt. But that's another story).

My own silver lining is that as I cook my own food, I always like what I eat:)

I hope you have a lovely evening when you go ahead. Don't be afraid to chase the invitation if it takes a while, I think we end up having to be super reassuring to people sometimes

Mw x
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#858251 The What's For Dinner Tonight Chat

Posted by on 12 March 2013 - 03:36 PM

They are fantastic Addy :)
Had chicken and rice, with zucchini and mushrooms.

Just spent an exciting evening building Ikea furniture. I'm on a sorting kick. Those years of brain fog did my organization and filing no favors, so I have a long way to catch up....
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#856786 The What's For Dinner Tonight Chat

Posted by on 03 March 2013 - 10:00 AM

Happy anniversary ski :). Tough journey, but way better than the $#!% that came before I am guessing...

Mr Mindwarp is cooking up surprise in the kitchen and I RAN on the beach with my son this afternoon.

Second successful white potato at lunch today, and I had a few blueberries last 3 days.

Some days rock :)
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#856678 Celiac Disease And Miscarriage

Posted by on 02 March 2013 - 01:59 PM

I am so so sorry for your loss.

I had early miscarriages, and 2 healthy kids.

I did a lot of research, and miscarriage is much.more common than people think. It may or may not be related to the celiac, but it is extremely unlikely you could have done anything differently.

Once diagnosed and on the gluten-free diet pregnancy outcomes are virtually the same as for non celiacs.

Take time and get support if you need it.

Very best wishes for the future, and for each day.
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#856665 The What's For Dinner Tonight Chat

Posted by on 02 March 2013 - 01:13 PM

Legumetastic news there ski!

I had roast chicken, cauliflower, broccoli, carrots, mangetout and ...my 1st white potato this year! That was 2 hours ago, so we''ll see if I am a zombie tomorrow. It was baked and crispy and soft and fluffy.

Gaining things back really makes you appreciate the simple things.
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#856554 Strangest - But Positive - Effects Of The gluten-free Diet?

Posted by on 01 March 2013 - 03:21 PM

FINALLY going on a whole foods diet, once I realized I had other food intolerances. I feel way better. I danced for an hour and a half recently, where I struggled to do 10 minutes last summer.

General reduction in inflammation, plantar fasciitis gone, hand an neck pain drastically reduced.
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#856552 The Paleo Diet?!

Posted by on 01 March 2013 - 03:08 PM

Yep, I am meat fish, eggs veg, all unprocessed, tiny bit of fruit, seeds, nuts and rice. Suiting me well so far. I started 2 January and feel way better.
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#856342 My Kitty Is Sneezing!

Posted by on 28 February 2013 - 01:02 PM

I had a kitty that used to get hayfever at the same as me :) We often sat around sneezing together...

Hope kitty gets better soon x
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#853882 Living Normally While Battling Celiac Is Like:

Posted by on 14 February 2013 - 10:50 AM

I would say my life isn't normal at the moment.

I am optimistic by nature. But I have been thoroughly tested by this illness.

I keep smiling, and it helps to see those further along who are recovering. I am tremendously grateful for that.

I would agree we need to be able to share the hard stuff too.

Humor helps enormously, dark and otherwise.

I don't feel very articulate. I kinda understand the different points of view. But I hope people still feel able to share whatever is going on, good or bad. It seems the most important thing.

Please don't shout at me for saying so :)
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#853830 Living Normally While Battling Celiac Is Like:

Posted by on 14 February 2013 - 06:37 AM

I have described pre diagnosis and recovery as like the week that you have all your final papers or dissertation to to get in on time, so you stay up late, have too much caffeine and chocolate, maybe smell a bit, can hardly string a sentence together. Only it has been going on for weeks.

(I hope I have the gist of the thing here :))
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#853658 Healing - Running Out Of Patience.

Posted by on 13 February 2013 - 10:48 AM

Hey Mo
I have been gluten-free since September and am definitely struggling. I have more good days than bad now, but find the bad days hard too. I seem to be working out other food intolerances. I had a great month on whole foods, but doing reintroductions are tough. I think I just lost dairy for a while.

I am hanging on to the good days, and trying to get through the bad.

In my heart I know things are improving, and that there was no way I could go on as I was.

And I met all these guys :)

I think the thing that keeps us fighting is the thing that gets us frustrated.

Hang in there, celebrate the good days
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#853602 Staying In Hotels

Posted by on 13 February 2013 - 05:42 AM

I would only be concerned about any area I was preparing food. Then kitchen towels for wiping and my own nifty folding chopping board are my friends :)

Have a good trip, wherever you decide to go.
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#853579 I Need Help, Someone Give Me Answers... Please

Posted by on 13 February 2013 - 12:07 AM

Yes, it is going to take a while longer yet.

Try to eat mostly simple foods to start with, like meat, fish, vegetables, maybe save gluten free processed foods like cookies for occasional treats.

Do you and your family know about cross contamination? This is where gluten sneaks into your diet, for example if you share a toaster with normal bread, or a knife gets used in butter for gluten toast and puts crumbs in to.

Do come and ask lots of questions, most of us have been through it and can help. It takes a while to get used to it.

It might not feel like it now, but if you get to know the stories of some of the folks here who took years to get diagnosed,, and have had a lifetime of ill health, you may be glad you have plenty of time to regain your health.

Good luck
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#852664 I'm Done

Posted by on 07 February 2013 - 08:28 AM

Hey razzle
Just wanted to let you know I was wrecked like you after my gluten challenge. It took me a few weeks to start feeling better, once gluten-free. My sugar levels were a mess. I found I needed to eat good nutritious foods and lay off the junk. I have been better than for years now.

The challenge was hell for me, but my silver lining was that it convinced me never to eat gluten again, and that my problems are real. It convinced my GI to give me a non celiac gluten Intolerance diagnosis after my genes were negative.

Hang in there, be kind to yourself

Mw x
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#852440 The What's For Dinner Tonight Chat

Posted by on 05 February 2013 - 06:26 PM

I reckon I look 30 lbs lighter having lost half that. 60 real ones to go. Sadly not all of that inflammamation. Gotta.keep at it now I am on the way, and healing too.
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