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Member Since 11 Sep 2012
Offline Last Active Jul 19 2014 03:47 PM

Posts I've Made

In Topic: Rash, Hives, Dh, I Really Have No Idea.

19 July 2014 - 03:35 PM

I also get hives - on occasion. But once they start, I can't get them to stop unless I take a lot of meds to treat them - Benadryl, a prescription anti-histamine, and prednisone as well. I had this problem before I was diagnosed with celiac - and was referred to an immunologist. He said there was no way to determine what caused the hives - but he believe that it was an auto-immune reaction - that we were only able to treat the symptoms since we could not figure out the cause. About a year later I was diagnosed with celiac - and started my gluten free diet. I have only had one outbreak in the two years since diagnosis. Everything that I have read says that one auto-immune disorder begets another auto-immune disorder. I am hoping that if I can keep my celiac under control that it will minimize or stop the hives.

In Topic: Heard It On The Radio, So It Must Be True!

22 May 2014 - 07:20 PM

Am I the first lefty to reply???


Now this is interesting - after I was diagnosed - I encouraged my siblings to get tested.


My left handed brother has the celiac gene (but normal antibodies for now) - and my right handed sister does not have the gene.

In Topic: What Is Your Restaurant Spiel?

22 May 2014 - 07:14 PM

I usually will preface my order by saying, " I don't want to be a pain, and I am NOT on any sort of fad diet - but I have a severe allergy to gluten" Sometimes I'll throw the word celiac in. Even though I am asymptomatic - I want to stress that I will have a severe reaction if I am served gluten.


It's been nearly two years since diagnosis - and I find that eating out to be the hardest part of the whole diet. At home - I can replicate/ substitute nearly anything. But when going out - I feel like I am walking in a mine field. Most times I can tell within a minute if the server "gets it" Even after two years - I am still uncomfortable spelling out my health issues to a server and even more uncomfortable trying to direct them in how to prepare my food. I will order things that are naturally gluten free - give my short shpiel - and then admittedly, hope for the best.

In Topic: Newly Dx - How Do I Tell If I've Been Glutened?

21 May 2014 - 06:44 PM

I was asymptomatic when diagnosed - I don't count osteoporosis as a noticable symptom. I had a follow up blood test and endoscopy six months after diagnosis - with good results. I then had only a follow up blood test a year following that - also showed normal antibody ranges - and it also showed there was no inflammation going on in the body. I am on schedule to have yearly blood tests. I am so happy to do so - since it's the only way for me to know if I am keeping the diet. 

In Topic: Kudos To Costco

13 May 2014 - 05:12 PM

So - I decided to write to Costco - and let them know how appreciated their gluten free products are - and to encourage them to read this post and start carrying more of these products across country. I received back what seems to be a "form letter" :(


Dear Tina,

We appreciate you taking the time to email Costco Wholesale.

Thank you for sharing your experience with this item. We work hard to ensure that we are selling the best products available at the lowest prices possible. It’s always a pleasure to hear when a member is happy with our choices!

We appreciate your feedback and have forwarded your email along with your suggestions to the buyers so they are aware of your satisfaction.  

Thank you,

Elizabeth R 
Member Service Center
Costco Wholesale Corporation


--Original Message--

To: service@contactcostco.com
Subject: Other

Note this message was submitted through the costco.com web site customer suggestion page on Mon May 12 2014 20:19:10 GMT-0700 (Pacific Daylight Time)

As a person with Celiac Disease - I want to let you know how much I appreciate your recent increase in a variety of gluten free products. I shop at the Issaquah store, and every week there seems to be more and more items. I belong to a "celiac forum" which has thousands of members - and recently made a post commending Costco. You may like to see it
This posting has had about 600 views to date. Unfortunately for others, their Costco's do not seem to carry these products.
Please - keep it coming!!