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Member Since 11 Sep 2012
Offline Last Active Aug 09 2015 04:48 PM

Posts I've Made

In Topic: Osteoporosis Medications And Celiacs

09 August 2015 - 04:51 PM

I've had osteoporosis for about 8 years.  I was put on Alendronate ( generic Fosamax) -- had no side effects from it, but my bone density was not improving. I eventually saw a bone specialist ( at the age of 56) - who ran some tests to rule things out. And that's when Celiac was ruled in. Unfortunately -- a perfect storm was happening all along. I had gone through menopause, had undiagnosed Celiac for who knows how long, was taking prednisone for all those "unexplained" rashes that I was getting.  I am now three years gluten free. Last year, since the Alendronate was not making much of an impact, my doctor switched me to Prolia ( twice a year injection) I've had no side effect from it ( except to my pocketbook since it is quite expensive) but it is too early to have a bone density scan to see if it is working.


The one advantage to my osteoporosis diagnosis is that it kick started me into exercising. My past scans have been so bad -- osteoarthritis and degenerative discs in the back -- that they can't even get accurate results from the back. However -- all the exercising that I've been doing has totally relieved me from my back pain.  :)

In Topic: Non Symptomatic Celiac

06 July 2015 - 12:59 PM

I was also asymptomatic when diagnosed and have always been nervous that I will never know when/if I've been glutened. Six months after diagnosis I had a repeat blood test and endoscopy. The endoscopy showed complete healing and the blood work was very near normal. After this, I have had blood tests on a yearly basis - showing that I am in the normal range. So I figure that my level of precaution seems to be working. I look forward to these yearly blood tests -- as positive reinforcement!


I do though wonder about "false negatives" If people have to go through a gluten challenge to show accurate results -- I wonder if my results are skewed in any way without my knowing it.


My gastroenterologist has suggested possibly having a follow up endoscopy around every five years as well.

In Topic: Canker Sores

08 May 2015 - 07:24 PM

I was what I thought to be asymptomatic. But for several month prior to my diagnosis I kept getting canker sores. I'm guessing the lip balm that I kept putting on them was doing more harm than good! Since being gluten free - past almost three years - I now rarely get them  -- maybe once or twice a year. I have no doubt that they are related.

In Topic: Dental Floss

13 March 2015 - 11:31 AM

Thanks for all the support. I looked all over online regarding the safety of dental floss - and got a lot of mixed comments -- but bottom line was no one seemed to know. I thought it would be helpful to post my findings to this forum in case anyone in the future had a question regarding dental floss. I didn't realize it would be so amusing.

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