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Member Since 11 Sep 2012
Offline Last Active Aug 06 2014 01:12 PM

Posts I've Made

In Topic: Trader Joe's And The New Fda Law

03 August 2014 - 10:54 AM

Thank you for the responses. It seems, from the responses, that "no gluten ingredients" can be posted - but that doesn't necessarily make it gluten free. 


I've been disappointed with Trader Joe's. Everyone else seems to have jumped on the bandwagon. They  have so many products with "no gluten" - I wish they would test them and verify that they are gluten free.

In Topic: Rash, Hives, Dh, I Really Have No Idea.

19 July 2014 - 03:35 PM

I also get hives - on occasion. But once they start, I can't get them to stop unless I take a lot of meds to treat them - Benadryl, a prescription anti-histamine, and prednisone as well. I had this problem before I was diagnosed with celiac - and was referred to an immunologist. He said there was no way to determine what caused the hives - but he believe that it was an auto-immune reaction - that we were only able to treat the symptoms since we could not figure out the cause. About a year later I was diagnosed with celiac - and started my gluten free diet. I have only had one outbreak in the two years since diagnosis. Everything that I have read says that one auto-immune disorder begets another auto-immune disorder. I am hoping that if I can keep my celiac under control that it will minimize or stop the hives.

In Topic: Heard It On The Radio, So It Must Be True!

22 May 2014 - 07:20 PM

Am I the first lefty to reply???


Now this is interesting - after I was diagnosed - I encouraged my siblings to get tested.


My left handed brother has the celiac gene (but normal antibodies for now) - and my right handed sister does not have the gene.

In Topic: What Is Your Restaurant Spiel?

22 May 2014 - 07:14 PM

I usually will preface my order by saying, " I don't want to be a pain, and I am NOT on any sort of fad diet - but I have a severe allergy to gluten" Sometimes I'll throw the word celiac in. Even though I am asymptomatic - I want to stress that I will have a severe reaction if I am served gluten.


It's been nearly two years since diagnosis - and I find that eating out to be the hardest part of the whole diet. At home - I can replicate/ substitute nearly anything. But when going out - I feel like I am walking in a mine field. Most times I can tell within a minute if the server "gets it" Even after two years - I am still uncomfortable spelling out my health issues to a server and even more uncomfortable trying to direct them in how to prepare my food. I will order things that are naturally gluten free - give my short shpiel - and then admittedly, hope for the best.

In Topic: Newly Dx - How Do I Tell If I've Been Glutened?

21 May 2014 - 06:44 PM

I was asymptomatic when diagnosed - I don't count osteoporosis as a noticable symptom. I had a follow up blood test and endoscopy six months after diagnosis - with good results. I then had only a follow up blood test a year following that - also showed normal antibody ranges - and it also showed there was no inflammation going on in the body. I am on schedule to have yearly blood tests. I am so happy to do so - since it's the only way for me to know if I am keeping the diet.