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TGK112

Member Since 11 Sep 2012
Offline Last Active Aug 06 2014 01:12 PM
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#917199 Heard It On The Radio, So It Must Be True!

Posted by TGK112 on 22 May 2014 - 07:20 PM

Am I the first lefty to reply???

 

Now this is interesting - after I was diagnosed - I encouraged my siblings to get tested.

 

My left handed brother has the celiac gene (but normal antibodies for now) - and my right handed sister does not have the gene.


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#887725 Is It Necessary To Have A Bone Density Test If Blood Work Is Normal?

Posted by TGK112 on 08 September 2013 - 03:15 PM

What's Fosamax?

It is a prescription medication given to people with osteopenia or osteoporosis to strengthen bones in order to prevent fractures.

 

My celiac and osteoporosis go hand in hand - I am equally concerned about both of them


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#887490 Is It Necessary To Have A Bone Density Test If Blood Work Is Normal?

Posted by TGK112 on 06 September 2013 - 07:55 PM

I went in reverse. My bone density problems were discovered before celiac. I was seeing a bone density specialist - because I was losing - and he ran blood tests on me ( "to rule things out") - which showed celiac, confirmed with an endoscopy. I was pretty asymptomatic and my other blood tests showed normal ranges of calcium, Vitamin D and iron. I posed the question to my doctor - If it does not appear that I have a malabsorption issue going on -  is celiac even contributing to the osteoporosis? His response was that ANY inflammation is bad for bones - and yes the inflammation of the small intestine can contribute to osteoporosis - even with normal Vitamin D levels.


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#874490 The Stuff Doctors Tell Their People...sad

Posted by TGK112 on 13 June 2013 - 05:05 PM

When I was first diagnosed my primary care dr told me, despite my bone loss "Celiac has nothing to do with osteoporosis".

 

After being on the diet, I had a follow up endoscopy. My GI told me that because I healed so quickly "You could treat yourself on occasion with a (gluten) treat"

 

I live in Seattle - anyone know of good doctors here?!?


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#874486 Happy Recovery Stories?

Posted by TGK112 on 13 June 2013 - 04:54 PM

I was pretty asymptomatic - except for bone loss and some weight loss. 

After six months on the diet my anti-bodies were near normal and my endoscopy showed complete healing!


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#851515 To Add A Bit Of Humor

Posted by TGK112 on 31 January 2013 - 05:56 PM

I think most of you will enjoy this - especially those of you with multiple allergies or intolerances.


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#841920 Kudos To Red Robin - Redmond, Wa

Posted by TGK112 on 09 December 2012 - 04:31 PM

After being diagnosed with celiac, a friend told me that surprisingly Red Robin does a great job with gluten free. And they do!!

There is a gluten free menu, which describes what alterations are made to make the meal gluten free - including gluten free buns. The restaurant in Redmond has a separate work area, and my meal comes out on a plate, rather than the typical basket. We were told that the fries are prepared in their own fryer, so no worries of cross contamination. All servers seem to be well aware of what they need to do - and we even noticed on the bill, my meal has an "allergy alert" next to it.

We are so impressed - we've even signed up for the Red Robin card - which let's us earn burgers. I hadn't been to Red Robin since my kids were young - now they're grown, but my husband ( non-celiac) and I are regulars there!
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