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Member Since 11 Sep 2012
Offline Last Active Mar 13 2015 11:31 AM

Topics I've Started

Stickers On Fruits And Veggies

13 March 2015 - 08:59 AM

I've always been one of those people who will not lick an envelope -- something I read somewhere about the glue containing gluten. It occurred to me that there seems to be stickers on nearly every piece of fruit and many vegetables as well. They must have some sort of adhesive -- should I ( we) be worried about those as well?


13 March 2015 - 08:49 AM

I am 2.5 years post diagnosis. I have had a celiac panel done six months after diagnosis and then each year since. I am always eager to get those test results since I had no symptoms when I was diagnosed, and have never felt "glutened" even though I'm sure I must have made some mistakes along the way. Luckily the results of the Celiac Panel have been very good-- my antibodies in the normal range. 


When my GI sent me my most recent results , he wrote 


- the Celiac Panel lab result is normal and this is good news.
- this means the disease is in remission


I was apalled that he used the word remission. No! The Celiac disease did not go away --- it's being controlled with a gluten free diet! He---sadly--- is the same GI - who after my first follow up appointment suggested that since I healed so well that I can occasionally treat myself "to a special treat" ( I did not follow that advice)


So I did some research -- and on the University of Chicago's website - which I think is one of the best - it states:


you can assess remission if everything is perfectly fine clinically. In other words, if the symptoms that were present prior to a gluten-free diet have not returned, you may be able to assume the disease continues to be in remission.


I was so surprised that they used the word remission as well. I think that the word remission is very misleading -- making it sound like the disease has gone away. Just like a diabetic who depends on insulin still has diabetes -- I feel that Celiacs who depend on a gluten-free diet still have Celiac.


What do you all think of the word remission?

Dental Floss

13 March 2015 - 08:16 AM

I recently wrote Oral B to check if their dental floss is gluten free-- and I thought people may like to see their response:


No. None of the ingredients in Oral-B/Glide floss contain gluten.

All of our flosses are made on designated lines so there is no chance of cross contamination with gluten.
Thanks again!
Oral-B Team
Yeah! Good News!

Trader Joe's And The New Fda Law

01 August 2014 - 10:26 AM

I was hoping with the new FDA labelling law that it would be easier to determine if Trader Joe's products are indeed gluten free. Many products have the "g" icon, and a statement "no gluten ingredients" - with a disclaimer that it was manufacturered on shared equipment.


Does anyone know the law well enough to tell me - does a label saying "no gluten ingredients" qualify as gluten free? (despite the disclaimer)

I've Been Wondering About Our Differences

29 April 2014 - 07:53 PM

Since being diagnosed - I have always wondered  about our differences. Reading this forum, it is very apparent that we all react with varying types and degree of symptoms - from having no symptoms to becoming violently ill. I have always been curious - do we also have differences internally. I know that the standard is that we are able to tolerate 20 ppm - but have read that some people can only tolerate 5 ppm. Does that mean some of us can tolerate 30 ppm? Do our intestines get equally inflamed?? Or do some people get mild inflamation while others get severe inflammation.


Does anybody know the science of this??


I posted something similar to this when I first got diagnosed, and got a lot of preachy - "don't eat any gluten! "-responses. I know that - and I have never cheated. My second endoscopy showed full recovery and my latest blood test showed normal antibody levels. So I am not looking for permission to cheat - I am just curious about the science.